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Lyme Disease ForumsGeneral & SupportDying for proof!!!!!
03/01/2012 09:45 AM
SB144
 
Posts: 297
Member

Ok, although I have had positive test results for Lyme back in December 11'.

However my current test results is showing up as negative after treatment with Doxycycline 3 weeks.

Now, I am having difficulty proving to everyone(primary physician, family, friends) that I STILL have lyme.

I understand that when I finally see my LLMD he will base diagnosis off of my symptoms and treat me, but

I still want solid proof, on paper I guess that I have lyme.

~So any ideas as to what could make my next test results actually show that I have lyme?

~ I know that it sounds like a crazy question, and that i should just be grateful that i have found a LLMD, and

will soon be getting treated, but this is really making it hard for others to support me,

when they arent even sure of what I have.

~thanks.

Post edited by: SB144, at: 03/01/2012 09:46 AM

August 2011-Ab:1.86(meaning?) Bands 41, 66 igg

September 2011-Treated:Cefuroxime -3 weeks 500mg

November 2011-Ab: 2.19 Bands 41, igm (symptoms return)

December 2011- AB:1.99 Bands23, 58 igg.
and 23, 41-igm

January 2012-treated doxycycline 100mg 3 weeks.(symp return)
Reply

03/01/2012 11:10 AM  Top
toothfairy55
toothfairy55
 
Posts: 3856
Senior Member

There is a new lab inPA that cultures blood. It costs about 600. It's proff positive that theBbis still in your blood stream
Carol

I am NOT a doctor, anything I share is based on my experience & research. I encourage you to discuss any and all information that I share with a health care provider.

Previous discussions I participated in:
bad day
Happy Birthday Cmany
Welcome New Leader

03/01/2012 11:15 AM  Top
SB144
 
Posts: 297
Member

But I thought the spirochete bacteria stay away from your blood because they hate oxygen so how would this test show up positive?
August 2011-Ab:1.86(meaning?) Bands 41, 66 igg

September 2011-Treated:Cefuroxime -3 weeks 500mg

November 2011-Ab: 2.19 Bands 41, igm (symptoms return)

December 2011- AB:1.99 Bands23, 58 igg.
and 23, 41-igm

January 2012-treated doxycycline 100mg 3 weeks.(symp return)

03/02/2012 04:08 AM  Top
Bettyg
 
Posts: 26697
VIP Member
I'm an Advocate

check out tom's link; he had this test done ok.

http://www.mdjunction.com/forums/lyme-disease-support- forums/medicine-treatments/3527278-has-anyone-done-the-new- lyme-culture#3528359

you can ask him more about it on his post since he's subscribed to receive all replies.

that's the lab carol is referring to above; thanks carol ;|)

bettyg, leader

BettyG, IOWA ACTIVIST
RETIRED llmd coordinator of 6 yrs; group leader

NOTE: I DO "NOT" USE CHAT thanks!
**************************************

NO INFORMATION SHOULD BE CONSIDERED MEDICAL ADVICE.
please see my WELCOME LETTER/BEGINNER'S LINKS with important links/info galore :)

http://www.mdjunction.com/forums/lyme-disease-support-forums/general-support/2356916-bettygs-welcome-letter-wgood-beginner-links-

Any information provided should not be used to take the place of advice from your personal physician or other professional.

Information on those sites is the opinion of those who publish the sites and is NOT necessarily that of BettyG.

43 yrs. chronic lyme; 35 yrs. misdiagnosed by 40-50 drs. unacceptable; see my profile for more.

03/03/2012 09:13 PM  Top
SB144
 
Posts: 297
Member

thanks bettyg
August 2011-Ab:1.86(meaning?) Bands 41, 66 igg

September 2011-Treated:Cefuroxime -3 weeks 500mg

November 2011-Ab: 2.19 Bands 41, igm (symptoms return)

December 2011- AB:1.99 Bands23, 58 igg.
and 23, 41-igm

January 2012-treated doxycycline 100mg 3 weeks.(symp return)

03/04/2012 12:53 AM  Top
Piccoli
Posts: 44
Member

I recently had this test done. I may be wrong on the science here, but from what I understood, they were able to culture the bacteria and therefore prove I did have the Lyme bacteria in my blood. They also added a little picture of what I assume was the cultured bacteria, so you could see what it looks like yourself.

03/06/2012 06:40 AM  Top
SB144
 
Posts: 297
Member

what was the name of the test?
August 2011-Ab:1.86(meaning?) Bands 41, 66 igg

September 2011-Treated:Cefuroxime -3 weeks 500mg

November 2011-Ab: 2.19 Bands 41, igm (symptoms return)

December 2011- AB:1.99 Bands23, 58 igg.
and 23, 41-igm

January 2012-treated doxycycline 100mg 3 weeks.(symp return)

03/06/2012 07:45 AM  Top
i70pb
i70pb
 
Posts: 208
Member

The test are "bad" for a reason...... http://www.youtube.com/watch?v=dNB8o5nFaOQ&feature=share
I am getting BETTER everyday ! Here's How http://www.mdjunction.com/diary/lyme-warriors-unite

23-25 IND, 39 IND, 41 +, and 83-93 +.IgM showed 34 +++, 41 + and 83-93 IND. CD57 is 215

03/06/2012 09:56 AM  Top
GlitchyMomma
GlitchyMomma
 
Posts: 283
Member

You could have a Stricker Panel done, which will show your CD57. It's a "marker" for Lyme because supposedly low CD57 is only caused by borreliosis (lyme) or HIV.

I'm so sorry, because those gd tests are so miserably inaccurate they should be illegal.

One of my local lyme friends completed a month of IV antibiotics and then did SpiroStat testing and it came back negative Sad. Her symptoms are worse since her original positive Western Blot.

With all the research we've been doing, she knows those bugs are just dug in and cloaked. She is choosing an LLMD and making an appointment asap.

GlitchyMomma

I am not a doctor, nor do I play one on TV. All comments are based on my personal experience or opinion.
______________________________
Only major "bites" I remember were chigger bites in June 2000 and flea bites in early 2001.

First weird symptom was a panic attack w/ tachycardia in 2001. My husband brought me to the ER, and I was released when everything showed normal.

~June 2001 - Possible VERY early miscarriage, 10 EPTs were positive then I had a heavy menses a few days later. ER said I was never pregnant.

Hashimoto's Thyroiditis dx July 2003
Cholecystectomy March 2010
Vit D3 Deficiency 2011
Progesterone Deficiency 2011
Adrenal Fatigue September 2011
January 2012 Labcorp: IgG 41 Positive, IgG 18 Positive, IgG 23 Positive, IgM 39 Positive, IgM 41 positive
CD57 - 32

ABX: Doxy 28 days, Minocycline 30 days, Ceftin 37 days, 4/16/2012 started Azithromycin

03/06/2012 10:56 AM  Top
SB144
 
Posts: 297
Member

what test are inaccurate cd57 or western blot. what is spirostat testing? my white blood cells are low is that the same as cd57?
August 2011-Ab:1.86(meaning?) Bands 41, 66 igg

September 2011-Treated:Cefuroxime -3 weeks 500mg

November 2011-Ab: 2.19 Bands 41, igm (symptoms return)

December 2011- AB:1.99 Bands23, 58 igg.
and 23, 41-igm

January 2012-treated doxycycline 100mg 3 weeks.(symp return)
Reply

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