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Lyme Disease ForumsGeneral & Support16,000 NAMES; AFFECTS HEALTH INS REIMBURSEMENT
02/28/2012 04:14 AM
Bettyg
 
Posts: 26546
VIP Member
I'm an Advocate

folks, go here please!

3 SEPARATE POSTS i put up just now; too much to copy/paste. AT END OF LAST PAGE.

http://www.mdjunction.com/forums/lyme-disease-support- forums/lyme-disease-activism/3416271-sign-petition-to- change-idsa-lyme-guidelines/limitstart/

see about getting folks to sign the PAPER COPY FORMS i showed on other link!

send in 1 sheet PROMPTLY; we can SIGN ONLINE OR PAPER COPY ... NOT BOTH WAYS!!!

so lymedisease.org/calda can show natl. clearinghouse how upset we are that IDSA IS NOT UPDATING THEIR GUIDELINES.

they lied and snuck one in with clearing house BELIEVING THEIR FRAUD STATEMENTS.

this is effecting our HEALTH INSURANCE REIMBURSEMENTS due to the HOGWASH they idsa docs have gotten away from.

are you willing to LET THEM GET BY WITH THIS BS; I AM NOT!

Post edited by: Bettyg, at: 02/28/2012 04:16 AM

BettyG, IOWA ACTIVIST
RETIRED llmd coordinator of 6 yrs; group leader

NOTE: I DO "NOT" USE CHAT thanks!
**************************************

NO INFORMATION SHOULD BE CONSIDERED MEDICAL ADVICE.
please see my WELCOME LETTER/BEGINNER'S LINKS with important links/info galore :)

http://www.mdjunction.com/forums/lyme-disease-support-forums/general-support/2356916-bettygs-welcome-letter-wgood-beginner-links-

Any information provided should not be used to take the place of advice from your personal physician or other professional.

Information on those sites is the opinion of those who publish the sites and is NOT necessarily that of BettyG.

43 yrs. chronic lyme; 35 yrs. misdiagnosed by 40-50 drs. unacceptable; see my profile for more.
Reply

02/28/2012 12:44 PM  Top
WiscLamLymie
WiscLamLymie
 
Posts: 1325
Group Leader

Giving a bump. This one's important folks!!!!
Was diagnosed with Autonomic Disorder, POTS, Interstitial Cystitis, and Fibromyalgia. True story is I have late stage Lyme which has caused these things. Just began the fight in October 2011 (have been full-blown Lyme since Sept. 5, 2010), and WILL be victorious! Positive bands: IgG 41 and 60; IgM 23 and 41. CDC positive!

Not a doctor, not anyone of any legal standing... just someone on the search.
(Translation: Please do not take anything I say as medical advice. Always see your doctor when needing medical advice.)

02/29/2012 12:21 PM  Top
runner64
 
Posts: 234
Member

bump
First year Mar 2012-2013 on 6 plant abx only.Second year had to add pharma abx in conjunction.Physical brain/head/eye symptomatic too severe and excrutiating "just coping with the physicality feeling infection in cns thru brain, and brain overprocessing with no sleep daily" rendering me non functional since Oct 2010. Can't read a book, follow programs properly, stutter talking due to the "physical feeling and interference in head." Stuttering less with more coming down since pharma abx added.

It's slowly helping. I dry sauna every other day/colonics daily.Very strict diet.

Sida Acuta-babs/bart*Houttunyia-bart*Stephania-lyme/bart*Andrographis-lyme*Cat's Claw-lyme*Japanese Knotweed*lyme/bart*Artminisin-babs*Serrapeptese-biofilm* GSE-Cysts*

Sporadic severe hits of acute pain in body/joints/bone pain & face/head/brain/bone & nerve pain 95% healed/gone from plant abx only. 5% that is left is rare and not severe only in right forearm bone and around left extra orbital eyebone.Body flutters less.Chronic acute head/eyeball pressure gone from plant abx in first year from plant abx only.Ammonia feel inside head mostly gone from plant abx only.Visual distortion gone from plant abx only.BUT,brain/head/eyeballs still BAD/chronic/acute which is why I started pharma abx in conjunction because this is still severe & won't come down enough>>>Infection/brain encephalitis (brain inflammation somewhat less now) feel inside head,wooshing,rage/brain overstimulation and over processing thoughts too fast,chronic. NON cortisol related, it's simply pathogen load causing overstimulation. Still cope daily with brain physicality and non functional. Hard head hit. Debilitating insomnia.

Added Bart/Lyme pharma abx = Apr 13 zithromax in conjunction with my 6 plant abx & May 2 added rifampin. (I dose very aggressively in tsp of my homemade tincture plus drink tea decoctions of my plants and herx daily on both plant and pharma abx. No normal baseline yet but coming.)

03/01/2012 04:52 AM  Top
Bettyg
 
Posts: 26546
VIP Member
I'm an Advocate

this is your HEALTH INSURANCE REIMBURSEMENTS; IMPORTANT!

please reply here after you have signed up taking ONE MINUTE!

bettyg, activist

BettyG, IOWA ACTIVIST
RETIRED llmd coordinator of 6 yrs; group leader

NOTE: I DO "NOT" USE CHAT thanks!
**************************************

NO INFORMATION SHOULD BE CONSIDERED MEDICAL ADVICE.
please see my WELCOME LETTER/BEGINNER'S LINKS with important links/info galore :)

http://www.mdjunction.com/forums/lyme-disease-support-forums/general-support/2356916-bettygs-welcome-letter-wgood-beginner-links-

Any information provided should not be used to take the place of advice from your personal physician or other professional.

Information on those sites is the opinion of those who publish the sites and is NOT necessarily that of BettyG.

43 yrs. chronic lyme; 35 yrs. misdiagnosed by 40-50 drs. unacceptable; see my profile for more.
Reply

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