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Lyme Disease ForumsGeneral & SupportI NEED A HUG
02/22/2012 06:58 PM
PrettyExile7
PrettyExile7  
Posts: 25
New Member

Sad

Almost done with IV treatment and all of the sudden symptoms are getting worse. I don't get it.

Post edited by: PrettyExile7, at: 02/22/2012 07:01 PM

Reply

02/22/2012 07:29 PM  Top
sebnova81
sebnova81  
Posts: 626
Member

Does your dr. have a plan for what's next? Have you been tested for coinfections?

HUGS!!!!

Treating lyme, bart and babs

Hoping for better days in the near future.

"To be yourself in a world that is constantly trying to make you something else is the greatest accomplishment." -Ralph Waldo Emerson

02/22/2012 07:34 PM  Top
JoJoMa830
JoJoMa830  
Posts: 69
Member

Stay strong, you will figure this out! Give your doctor a call and let them know what's up for some peace of mind. Hugs!

02/22/2012 07:53 PM  Top
PrettyExile7
PrettyExile7  
Posts: 25
New Member

Yes I have other things wrong with me too...such as cfs. It just seemed like everything was getting better and now the symptoms are back but worse. I have an appointment at the end of this week and I guess I'll find out if I continue with this or go onto another type of treatment. Not sure what treatment would come after the IV though.

Previous discussions I participated in:
STARTED IV TREATMENT...
Lyme is Making me Suicidal

02/22/2012 08:45 PM  Top
runner64
 
Posts: 282
Member

Boy I have my fingers crossed for you. I thought that IV sounded good you know.
First year Mar 2012-2013 on 6 plant abx only.Second year had to add pharma abx in conjunction.Physical brain/head/eye symptomatic too severe and excrutiating "just coping with the physicality feeling infection in cns thru brain, and brain overprocessing with no sleep daily" rendering me non functional since Oct 2010. Can't read a book, follow programs properly, stutter talking due to the "physical feeling and interference in head." Stuttering less with more coming down since pharma abx added.

It's slowly helping. I dry sauna every other day/colonics daily.Very strict diet.

Sida Acuta-babs/bart*Houttunyia-bart*Stephania-lyme/bart*Andrographis-lyme*Cat's Claw-lyme*Japanese Knotweed*lyme/bart*Artminisin-babs*Serrapeptese-biofilm* GSE-Cysts*

Sporadic severe hits of acute pain in body/joints/bone pain & face/head/brain/bone & nerve pain 95% healed/gone from plant abx only. 5% that is left is rare and not severe only in right forearm bone and around left extra orbital eyebone.Body flutters less.Chronic acute head/eyeball pressure gone from plant abx in first year from plant abx only.Ammonia feel inside head mostly gone from plant abx only.Visual distortion gone from plant abx only.BUT,brain/head/eyeballs still BAD/chronic/acute which is why I started pharma abx in conjunction because this is still severe & won't come down enough>>>Infection/brain encephalitis (brain inflammation somewhat less now) feel inside head,wooshing,rage/brain overstimulation and over processing thoughts too fast,chronic. NON cortisol related, it's simply pathogen load causing overstimulation. Still cope daily with brain physicality and non functional. Hard head hit. Debilitating insomnia.

Added Bart/Lyme pharma abx = Apr 13 zithromax in conjunction with my 6 plant abx & May 2 added rifampin. (I dose very aggressively in tsp of my homemade tincture plus drink tea decoctions of my plants and herx daily on both plant and pharma abx. No normal baseline yet but coming.)

02/23/2012 12:46 AM  Top
Bettyg
 
Posts: 27275
VIP Member
I'm an Advocate

Kissing Kissing Kissing wish we had HUG ICONS too; so consider them that ok.Kissing Kissing Kissing

sending you gentle and loving hugs and most of all understanding and patience on this road with countless detours, bumpy roads, road out situations.

glad you are seeing your llmd this week though to work on plan b.

were you 1 of lucky ones to actually see a tick embedded or bulls-eye rash to give you an idea how low you have been sick?

hugs/prayers always, keep us informed ok.

bettyg, leader/iowa

BettyG, IOWA ACTIVIST
RETIRED llmd coordinator of 6 yrs; group leader

NOTE: I DO "NOT" USE CHAT thanks!
**************************************

NO INFORMATION SHOULD BE CONSIDERED MEDICAL ADVICE.
please see my WELCOME LETTER/BEGINNER'S LINKS with important links/info galore :)

http://www.mdjunction.com/forums/lyme-disease-support-forums/general-support/2356916-bettygs-welcome-letter-wgood-beginner-links-

Any information provided should not be used to take the place of advice from your personal physician or other professional.

Information on those sites is the opinion of those who publish the sites and is NOT necessarily that of BettyG.

43 yrs. chronic lyme; 35 yrs. misdiagnosed by 40-50 drs. unacceptable; see my profile for more.

02/23/2012 07:13 AM  Top
waxby
waxbyPosts: 4262
VIP Member

~~~Hello PX7,

~~~ xxx!

~ "Almost done with IV treatment and all of the sudden symptoms are getting worse. I don't get it." ~ For your sanity, it is critical for you to understand this may be a VERY long journey to recovery/remission.

~~~The fact that you feel worse, Herxing, is actually a "healthy" sign of the healing process.

~~~relief or remission, not cure, from ONLY long term treatment, even years, in MOST IF NOT ALL chronic persistent cases. That is, if not caught immediately and treated with at least three months of antibiotics, or other effective treatments, and not necessarily for longer ONLY if symptoms are not present after the first month and through the second two months of treatment BEFORE even considering stopping treatment yet!

~~~You Must NOT, please, stop now!

``` Mitchell ```

~~ "The way to 'Heaven' is to bring it with you ..." -Mitchell
~~ "Sometimes, we gotta go through hell to get to 'Heaven'" -Mitchell
~~ "The way out is in" -Mitchell
~~ "A miracle speaks ...'I don't believe in Miracles.' " -Mitchell
~~ "Life is good, even when it isn't." -Mitchell
~~ "Sometimes you gotta lose to win." -Mitchell
~~ "It's easy when it's easy! Find reason, purpose and meaning when it's hard!" -Mitchell
~~ "If you're gonna think, think again!" -Mitchell
~~ "Make it so!" ...
~~ “When life do what it do, as it do-do, simply say ‘Of Course!’ (to soften life’s ‘blows’)” - Mitchell
~~ A master once said, "When embarking on the spiritual path, 'Oh Dear! There's no turning back! You've really done it now!' "
~~ “Not thoughts be your guide, rather, guide your thoughts.” -Mitchell
~~ "That which is within, and that energy entering this body/mind/spirit, causing harm and ill health, must and will be transformed into love healing energy and sent out in every direction" -Mitchell
~~ One morning ten years ago I awoke from a dream chanting over again and again, and writing this down so as not to forget ... "It doesn't matter who did what, there's nowhere else to go but up ..." -Mitchell
~~ "This life, our life, and what we do with it on this planet is “simply” a display, a reflection, of what is going on in our consciousness. The proof is in the puddin’. Look at our planet, what humans are doing to it, and with it, and to one another, and ask yourself ... ~ 'How’s this working for us/me?' ” -Mitchell
~~ "Step away from monkey mind, not tangle ... Observe ... Inhabit your higher self ..." -Mitchell
~~ "Anything is possible, but manythings you think are true, are not ... " -Mitchell
~~ "Grow where you are planted ..." -Mitchell
~~ "Change your future now ..." -Mitchell
~~ “Write your equation … 4 u r the sum of u … “ -Mitchell
~~ “We are largely a product of our environments … how’s your inner environment doing? …” -Mitchell
~~ “We reveal ourselves to ourselves in everything we do … life is our mirror … howdoyoudo? …” –Mitchell

02/23/2012 09:19 AM  Top
WiscLamLymie
WiscLamLymie  
Posts: 1386
Group Leader

Hey there... We see that you are treating... But what are you doing for detox?

There may be a reason for your issues to be piling up again possibly?

Let us know what your detox regimen is and let's go from there.

(((((((((((((((((BIG HUGS!!!))))))))))))))))))

Keep your chin up. We are here for ya!!

Was diagnosed with Autonomic Disorder, POTS, Interstitial Cystitis, and Fibromyalgia. True story is I have late stage Lyme which has caused these things. Just began the fight in October 2011 (have been full-blown Lyme since Sept. 5, 2010), and WILL be victorious! Positive bands: IgG 41 and 60; IgM 23 and 41. CDC positive!

Not a doctor, not anyone of any legal standing... just someone on the search.
(Translation: Please do not take anything I say as medical advice. Always see your doctor when needing medical advice.)

02/23/2012 11:17 AM  Top
suzyoo
suzyoo  
Posts: 131
Member

I'm sending healing energy your way, and hope you feel better soon!

Previous discussions I participated in:
Floaters Question
Lyme vision problems
Carnovora

02/23/2012 06:52 PM  Top
benniferobin
benniferobin  
Posts: 354
Member

hugs to you!! hoping your yuckies leave as quickly as they came!!!
***in good health, jen***
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