Neurological Lyme Disease...more testing

I saw an ID in New York City that works with Lyme and he said that it is very possible I have neurological lyme disase. He tested again for Lyme and the other things that can cross-react with lyme. I have taken doxy for 2 3-week courses with no improvement. I also have to get a spinal tap and neurological evaluation. He will do 28-day IV depending on the results of the tests.

I just want to be better. I am bed-bound this weekend, including today. I slept yesterday from 1pm - 7pm and then 12midnight-11am. My head feels heavy and foggy and I can't move around much. I hate this!

I don't think WHERE you were bit has to do with it, but who knows? I don't know where I was bit. I just know I had a rash on my arm, armpit, neck and around my eye...4 years ago. So, obviously it has had plenty of time to spread.

What kind of treatment have you been on? Are you currently taking anything or are you stuck with those symptoms for ever? (Please tell me you are getting better I need to know there is hope!)

My symptoms were mostly neurologicl especially in the summer months. A lot of feelings like going to black out or just very foggy and staticy(if that makes sense to you), headaches, even creepy crawly feelings in my head and feeling like it itches, but scratching wouldn't allevite it, and of course, no memory or word recall. Having conversation with me is probably pretty painful for others. VERY SLOW!

I am finishing my second month on CEFTIN and although it has been hellish 2 month, I am finlly okay these days. I don't know if it is going to last, but..hopefully!

Many drs. didn't get it or believe me.

You are definitely not alone!

Take good care!

AMY