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01/20/2008 21:22
rocheleau
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I am wondering how you explain to you kids what is happening to you, especially when you are going through die off cycles? I have a 4 and 6 year old who can't understand my moods and fatigue and physical ailments. I never yelled at them before and suddenly i am doing it a lot and my patience... well what patience. I used to be so active with them and now, well, not so much.

But more importantly, my daughter is having stomachaches and I am sure they are a reaction to my stuff. I don't want to tell her I got bit by a tick, because I don't want her to be scared of being bit. But I have to tell her and my son somthing more than mommy doesn't feel well.

Can someone share with me how you explain it to your kids so they understand(as much as they can) without being scared or confused.

Thanks!!!!!!!

AMY

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01/21/2008 04:02
Julie4848
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Hi Amy:

I wish I could tell you but I don't have kids, just two doggies...I'm sure Jamie will jump in, she has two small ones at home.

Did you try telling them you "Caught a bug" and it will take sometime, and you don't mean to yell and not want to do things with them, its just the "Bug" causing this...Just keep reassuring them that you "Love them" and on your "Good Days" you will be active with them, but on the "Bad Days" you just can't.

Being that small I know it has to be hard on them and you..

Hang in there, someday this has to end for all of us...

Julie

Lyme will not win, we will and we WILL…

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01/21/2008 10:55
lisa3
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Hi Amy....

I am not sure how long you have been sick for, but I have been worsening since summer of 2004. I have 3 kids...now ages 8 (almost 9), 5 and 4. I am divorced and was raising them on my own..they would visit their father every weekend. I had them on my own for about 1 1/2 years or so and had to make the decision for them to live with their father. I had no energy to care for them. I was working then had to come home and care for the kids. I couldn't do it anymore. They have been living with their father for 1 1/2 years now or so. I didn't know what was wrong with me until recently, however I am still trying to get the correct treatment.

I tell the kids I am sick and sometimes I am very tired. I tell them they are better at their daddy's house right now. I visit them at least 3 times a week (it is almost an hour drive to their house). I keep them overnight sometimes on the weekend. I told my oldest daughter that it was because of a tick. I would rather her be aware of them and to make sure she checks herself and her brother and sister after they have played outside.

I am basically completely honest with them. I would rather that, then them wonder why I am grouchy sometimes and crying others.

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01/21/2008 13:30
tina.r
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I have a two and a four year old and when I was really sick I felt I was the worst parent on earth, so much guilt. I saw a therapist to helped me dealing with my pain and she really helped me dealing with my guilt towards my kids.

My kids gets plenty of ticks every summer (one day I picked 16 ticks of my youngest) and I have therefore been very straight forward to them explaining what is going on without scaring them. They know when bed time comes in the summer we check them very thourough for ticks, it has almost become a "fun" bed time ritual. My deepest consern is that I am so scared same thing that happened to me will happen to my kids and I am trying to not show this even if it is hard. I think it is all about finding the right balance for each one of us.

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01/21/2008 18:21
cooley420
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I know the feeling I have one that is almost 3, and a step daughter that is 9! The older one knows, kids are smart and figure it out I think. She doesn't even live with us full time and she knew something was very wrong. My little one, also very bright, unfortunaltely you can't hide some things. I feel so bad she trys to hold mommys hair back when I throw up, and to push my life alert button if you can't wake up mommy, and the list goes on. Not even 3 I feel I'm robbing her child hood, but I also think it just helps to make a more compastionate person. My grandmother had MS from the time my mom was 6, she learned to help out and be more careing. She says she nerver resented her mom for being sick and having to help out more. I just hope mine feel the same.

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