~~~Hello Jacki, Welcome!~~~For faster LLDr requests response ...
~~~For LLDr (Lyme Literate Dr) request, at the top of this page click onto Forums tab to take you to Lyme Disease Forums page. Scroll down to Doctor (LLMD) Requests and click to take you to that page and at bottom of page left click onto Start a New Discussion and then proceed with your request.
~~~Please go here, my profile page, and scroll down to "Read My Diary" for around 36 entry shorts, for some support ...
~ http://www.mdjunction.com/mem/117464
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~~~Hello Newbies ...
~~~If you suspect you may have Lyme Disease, you MUST, please, find a legitimate Lyme Literate Dr, LLDr.
~~~If this is Lyme Disease that you do have, only an experienced LLDr who follows the ILADS guidelines, and NOT the IDSA’s nor the CDC’s guidelines, will be able to properly diagnose and treat you properly.
~~~All other specialists, including especially non-LL Infectious Disease Drs, will only potentially misguide, mislead, mistreat, misdiagnose, and did I say MISS, and quite possibly destroy your life!
~~~For LLDr (Lyme Literate Dr) request, at the top of this page click onto Forums tab to take you to Lyme Disease Forums page. Scroll down to Doctor (LLMD) Requests and click to take you to that page and at bottom of page left click onto Start a New Discussion and then proceed with your request.
~~~Or just click this …
http://www.mdjunction.com/forums/lyme-disease-support-
forums/llmd-info/Itemid=217/func=post/do=reply
~~~Lyme cannot be treated as a lone entity.
~~~Less than 50% of those found to have Lyme Complex ever find a tick or develop a rash from a tick bite, (or mosquito, or any other biting insect that may carry Lyme Complex).
~~~Lyme Disease can be, and often is, a very serious, chronic persistent, potentially dangerous and life threatening, COMPLEX disease, and so, Lyme Complex Disease, or LCD, most often with any number of co-infections, such as Babesia, Bartonella, Erlichia, Mycoplasma, and many more, that must be treated before Bb, Borrelia burgdorferi, or Lyme, one by one, or simultaneously until at least two months of symptom freedom before even considering stopping treatment yet!
~~~LCD knocks your whole body/mind/spirit out of sight. You need to rebalance, and rehabilitate your whole being!
~~~It is important to realize that each of our needs, and symptoms, are unique and require our careful and discerning, educated, well read, attention.
~~~And there is no magic cure or magic DR or magic clinic. And there are a lot of "snake oils" and "snake oil salesmen" out there, so be cautious!
~~~Some find relief or remission from conventional/pharmaceuticals alone or alternatives/naturals such as herbs etc alone, or a combination of any.
~~AND, relief or remission, not cure, from ONLY long term treatment, even years, in MOST IF NOT ALL chronic persistent cases. That is, if not caught immediately and treated with at least three months of antibiotics, or other effective treatments, and not necessarily for longer ONLY if symptoms are not present after the first symptom free month and through the second two months of treatment before even considering stopping treatment yet!
~~~We each have our own combination lock, code, puzzle, conundrum, mystery to figure out.
~~~Here is another of the main issues with Lyme Dis-ease...
~~~If you do not see a Lyme Literate Dr (LLDr), a big mistake, and your tests APPEAR “negative,” (or positive), they may treat you for whatever symptoms that your symptomatology SEEMS to fit.
~~~Also, by not seeing a LLDr (Lyme Literate Dr), a non-LLDr, including Infectious Disease Drs!, will normally follow the IDSA’s guidelines, rather than the ILADS’ guidelines, http://www.ilads.org/files/ILADS_Guidelines.pdf , or a LL, Lyme Literate/ILADS/IGeneX Lyme Disease test, and so may declare you negative of Lyme Disease based on false standards of detection, including not basing your diagnosis of LCD on symptomatology and pathology, even with a “negative” Lyme test.
~~~And in most cases, if you are, or are not, being treated for the actual culprit, LCD, the phantom treatments for mocking symptoms will do little, or nothing at all, or even cause more problems.
~~~Incorrect treatments can even do damage, such as being treated for MS, which Lyme mocks, with steroids, or any other drug designed to suppress the immune system, that will only intensify the Lyme invasion and wreak additional havoc inside of you and on your life.
~~~Some have even been prescribed surgery, by a non-LLDr for a Lyme mocking "phantom" problem, and the mistaken, misguided surgery, in many or most cases, failed.
~~~Lyme dis-ease can mock 300 dis-eases and exhibit hundreds of symptoms, in any number or combinations, timelines, intensities, coming and going, on and off, and to be repeated or not. This Complex is as different for each individual as no two fingerprints or snowflakes are alike.
~~~However it does remain important to carefully rule out other possible maladies.
~~~But, let a LLDr do this to save you many middle steps.
~~~If you are working with, WORKING WITH (as in not blindly following) a Dr, hopefully a LLDr, OR only with yourself as your healer, if you so choose for your own reasons, pay careful attention to your reactions to each potential remedy.
~~~If the reactions are much too intense, and you are monitoring and comparing them to possible allergic response and …
~~~having carefully ruled out adverse allergic response, as many reactions are the "herx", the Jarisch/Herxheimer reaction to therapies that actually make you feel worse before better, and are a sign of effective therapy, and may be indicative of probable Lyme Complex Disease …
~~~try trimming down, ramping down, dosages to 1/2 or 1/4, even as much as 1/8 the dosage in some cases, to find your personal, more tolerable, not overly aggressive, therapeutic dosage, and then "ramp-up" slowly and carefully.
~~~And always take probiotics between doses of antibiotics, two hours before and after dosing are a good rule-of-thumb. ANTI-biotics kill unfriendly as well as friendly bacteria and so the intestinal flora must be re-constituted with the friendly PRO-biotics.
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~~~There is a general consensus to get a superior diet in order.
~~~That is, no junk. Everyone with any sense whatsoever knows what that is.
~~~This means no sugary sodas or even diet ones or any carbonated dead beverages. Pure junk!
~~~No processed sugar either. No empty calories!
~~~Only nutritiously dense foods in a wide variety of the rainbow such as fresh mixed sprouts, purple and green cabbage and mixed greens salads, mixed berries, etc.
~~~Mostly if not all vegetarian.
http://www.secrets-of-longevity-in-humans.com/vegetarian-
protein-sources.html
http://www.vegparadise.com/protein.html
http://www.vrg.org/nutrition/protein.htm
http://makingpages.org/health/myths.html
http://sugarrocket.com/vegan/vegan-myths.php
~~~Mostly if not all raw - fresh unheated fruits and vegetables are raw.
~~~Little to no dairy.
~~~Cut out gluten, wheat, rye, oats, and bran, if you happen to be gluten intolerant, as many Lyme Patients are.
~~~Eat whole grains and brown and wild rice blends, quinoa, amaranth, buckwheat, kamut, etc.
~~~Raw nuts and seeds, raw so as not to destroy living enzymes and essential fatty acids, such as raw walnuts, almonds, pumpkin and sunflower seeds.
~~~Beans, such as kidney, black, and garbanzos.
~~~Cooled down teas to warm (under 110 degrees) with some almond milk and a couple of ice cubes etc, not hot so as not to destroy living enzymes in raw honey and raw choc, etc if added. You should be able to hold your finger in it and just feel the warmth, not hot ...
~~~Green tea, red (rooibos) tea etc, almond milk, etc, raw honey, raw cocoa powder. Yum!
~~~You could vigorously stir into the warm mix a Tablespoonful or two of some organic chia seed (from health food store and not from the ch-ch-chia pet getting place), and drink it through a straw, unless you want a chia pet mustache!) and/or freshly ground flax seed.
~~~You could also vigorously stir in some brown rice protein powder (from "NutriBiotic") and brewer’s yeast (from "Lewis Labs" - no this is not the yeast that contributes to yeast growth problems, and is very nutritious and a tasty brand), and also some raw maca powder.
~~~I make a mixture in equal amounts of brown rice protein powder, raw maca powder, and brewer’s yeast and use a couple of tablespoons of this mixture in my breakfast tea.
~~~I also include in my breakfast tea my own brewed chai mixture, in descending order of decreasing amounts, of cinnamon, ginger, cardamom, nutmeg, turmeric, cloves, and black pepper. Google each of these spices to learn of their benefits. Mix a big batch of these beneficial dry spices and keep it in an airtight jar in the fridge.
~~~Stir one or two teaspoons of this mixture into a cup of cool water and bring to a boil and stir and pour into tea mug and let steep and settle for about five minutes. Pour slowly and gently into another mug leaving the settled “mud” at the bottom of the cup behind to discard.
~~~Plenty of water, between meals, some with freshly squeezed lemon, for detoxifying, one simple, of many methods critical for consistently, persistently, clearing toxic load from our bodies.
~~~A good rule of thumb for quantity of water to drink is to divide your body weight number in pounds in half, and use that number for number of ounces of water to drink each day.
~~~Go to a health food store and get a sprouting kit and make your own mixed sprouts at home in your kitchen.
~~~Try 2 Tablespoons of broccoli, 2T fenugreek, 10T(5oz) mung bean sprouting seeds in a half gallon sprouting jar (screened lid for draining and breathing).
~~~In three to five days, depending on the temperature, Winter or Summer, and poof, fresh nutritiously dense food.
~~~Don't rinse on last day to keep on dry side to keep longer in fridge. They'll keep for a week in the fridge in an airtight container. Leave uncovered overnight in fridge the first night to chill and breath out initial condensate and then cover and leave covered.
~~~Start a new batch some days before they run out to keep a constant supply for sandwiches, salads, etc. Add it to a big mixed greens salad.
~~~Omega 3 fatty acids and fiber rich seeds such as chia (whole or ground) and freshly ground flax - freshly ground flax as the omegas become unstable after some time after being ground, and flax is indigestible whole. Unheated so as not to destroy vital omega fatty acids and living enzymes.
~~~I use 2 tablespoonsful of whole organic flax seed (and /or unground chia) and grind the flax fresh in a coffee grinder each time I use it. I stir this vigorously into 16 ounces or more of tepid water and soak for five minutes to absorb water and expand and then drink this through a straw 30 minutes before meals.
~~~I continue to drink more water in between meals away from food for better digestion and elimination.
~~~Drinking liquids with meals only dilutes your food not allowing it to digest more properly.
~~~Drinking this flax/water mixture gives our digestive/elimination system a jump start ahead of meals in order to capture more bile and transport it out of the body, so the bile is not recycled back into your body, as is what happens to the bile, thus ushering the bile's excess cholesterol and toxic load out of the body. Your body will readily produce more fresh unpolluted bile.
~~~Also flax and chia will help regulate an unbalanced digestive system, whether too sluggish or too loose.
~~~Flax (as well as chia) also contains essential omega 3s and 6s in a healthy proportion of 3 times more 3s than 6s. Most diets contain way too many 6s than 3s.
~~~Corn oil has 46 x more 6s than 3s, very bad. Olive oil has a ratio of 3-6s to 13-3s, very good. We tend to get way more 6s than 3s, not good.
~~~Your body will convert these essential fatty acids into necessary DHA and EPA.
~~~Organic everything as much as possible.
~~~No harmful habits such as smoking etc, or alcohol, which is very bad for many Lyme patients.
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~~~As examples, out of hundreds of potential remedies, I have done MMS, and in alternating days, frequencies, amounts, and combinations,
~~~teasel, samento, venus fly trap, banderol,
~~~smilax, Japanese knotweed/resveratrol, andrographis, ("Buhner's Herbs from his book "Healing Lyme.")
~~~Dandelion and parsley extracts, mangosteen extract, olive leaf extract, grapefruit seed extract, bromelain, systemic enzymes, nattokinase, or better, lumbrokinase, Graviola, Sangre de Drago, Jatoba (these three are South American rainforest herbs)
~~~vits, mins, supps, baking soda, superior diet.
~~~And for about a year 100mg a day or every 2nd, 3rd, or 4th day, week, or month of minocycline.
~~~However, for now, I am only doing the MMS and at one to three drops one to three times a day, even skipping a day or more as I am very ill and for many years, as I think I am doing too much too soon for my level of infection.
~~~And now doing HBOT, Hyperbaric Oxygen Treatment, IM Rocephin, Myers' Cocktail IV, Medical/pharmaceutical grade supps, vits. coloidal silver.
~~~However, (update) now …
~~~I am doing every day MMS, Minocycline, Azithromycin, and Rifampin. Rocephin IM, (breaking), Atomidine (hoping to replace Armour Thyroid), HBOT (hyperbaric oxygen treatments, 85 dives and taking a break), Myers Cocktail IV plus glutathione (vits, mins, + glutathione) twice a week, (taking a break), Byron White's A-Bart and A-L pulsing and ramping up very slowly starting with 1/16 of a drop each twice weekly, Samento, Banderol, Teasel Root, Grapefruit Seed Extract, Lumbrokinase, vitamins/minerals/supplements, superior diet, ... pondering the seen and the un-seen …
~~~Update, 3/2012, to my present MMS Lyme protocol …
~~~Lyme MMS Protocol of … (working up to this amount slowly and carefully over a period of weeks or months or longer, as necessary, according to your own unique condition),
~~~MMS, Sodium Chlorite, properly prepared with, properly prepared citric acid solution, usually on an empty stomach, and away from Vitamin C or any Vitamin C containing food or drink, as Vitamin C, or Baking Soda, will neutralize MMS,
~~~approximately 12 times to 15 times a day, MMS at 3 drops per dose, of properly prepared MMS solution, once around each hour, so about 45+/- drops a day total, or more.
~~~I prepare and keep three one quart bottles at a time and keep them in the fridge.
~~~For a one quart bottle, which will yield two drops MMS per one ounce, or one drop MMS per one Tablespoon …
~~~64 drops, approximately ½ teaspoon MMS, counting 64 drops into a ½ teaspoon to see the exact level to fill teaspoon with the MMS, thus learning how to quickly measure 64 drops without counting every time, and ½ teaspoon properly prepared citric acid solution,
~~~poured into the bottle and swirled and allowed to stand for three minutes while clear mixture turns golden and evaporates off its gaseous vapor. Then fill bottle with water and the mixture should have a golden tint.
~~~I keep a jar of this mixture next to me and take a one and a half ounce sip through a straw, which you practice doing this by measuring one and a half ounce serving in a measuring cup, and filling your mouth with this one and a half ounce serving, by sipping it through a straw, thus becoming expert at what a one and a half ounce sip serving feels like in your mouth, without having to measure in a measuring cup each time, to make this process quick and easy,
~~~every hour, 10 to 15 times a day, approximately 45 drops total a day, or more.
~~~And, of course, you must remain dedicated and committed to this protocol for many months or longer, as is necessary with any effective Lyme Complex Protocol.
~~~Some MMS info … http://phaelosopher.com/2007/09/09/no-miracle-just-
wonderful-chemistry/
http://www.healthsalon.org/264/mms-de-mystified-sodium-
chlorite-stabilized-oxygen-chlorine-dioxide-detox/
~~~I get my MMS from Healthy Living at http://www.mms-healthyliving.com/
~~~in addition to 600mg Rifampin 2x a day, 600mg Azithromycin 1x a day, 100mg Minocycline 2x a day,
~~~Three drops Banderol, 3 drops Samento, 3 drops Teasel extract, each once a day,
~~~waiting on deck with the Byron White Formulas, because they frighten me right now!
~~~Atomidine 3 drops a day, hoping to replace thyroid meds,
~~~100mg NutriBiotic Grapefruit Seed Extract 1x a day, 40mg Lumbrokinase on an empty stomach one hour before food,
~~~which I've been eating smaller amounts of nutritiously high density nutrients.
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~~~Your symptoms will change, come and go, see-saw, roller coaster, scare you, tickle you, nauseate you, turn you shapes, colors, and sizes, make you laugh, make you cry.
~~~Hold tight! This is some Amusement Park!
~~~This forum is your refuge. We "get" you. USE IT!
~~~And remember, "this is a marathon and not a sprint." Be the turtle, not the hare. Moving too quickly could be potentially harmful.
~~~Chronic, persistent Lyme Dis-ease can take a very long time to diminish towards remission. It must be approached carefully, systematically, persistently, patiently...
~~~And ... Never give up!
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~~~On ramping and pulsing...
~~~When a remedy dose hits too unbearably hard, your dose may be too high, and that is after making certain this is not an allergic reaction.
~~~Take a day or two or three off , if you must, until the "Herx" calms down to a reasonably, more tolerable manageable, level, and begin again, every other day, or more, if you must, thus pulsing...
~~~Begin again at a lower more tolerable dose, if necessary, such as 1/2, 1/4, or 1/8 the dose thus ramping down.
~~~If one more dose hits too hard again, take every other or third day off, pulsing, until you arrive at a more tolerable Herx event level and tolerable therapeutic dosing level.
~~~As your Herx effect lessens over time, begin turning up the volume by adding back some dosage level, ramping up, and then closing the pulsing gaps.
~~~And always take PRO-biotics between doses of ANTI-biotics to re-constitute intestinal flora as ANTI-biotics destroy both bad and good bacteria. Take pro-biotics, breaking open the capsule, if acid resistant strain and not in an enteric coating, starting in your mouth, the beginning of your digestive system, 2 hours before and after dosing, after anti-biotics have cleared the stomach and intestines, are a good rule-of-thumb.
~~~Unfortunately, feeling worse before feeling better, the Herx, is par for the course, but is a useful gauge for pulsing and ramping and consistently, persistently, keeping fire under the critters butts.
```~~~from my straight jacket~~~out on a limb~~~lookin like a cocoon~~~hangin by a thread~~~waitin for a butterfly~~~under the moon~~~Lovey-Dovey, Mitchell~~~
Post edited by: Bettyg, at: 01/06/2012 05:21 AM
Post edited by: waxby, at: 03/27/2012 01:22 PM
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