hi agnes,IMPORTANT! if you're going with IGENEX blood lab; WED. AM IS THE DEADLINE FOR GETTIGN IT TO CALIF SO IT DOESN'T STAY IN POST OFFICE OVER WEEKEND WHERE THE BLOOD GOES BAD!!
WHAT STATE ARE YOU IN? igenex has in calif/ and in CONN!
in my welcome letter link, i have extensive info there on igenex and what is needed.
coming back again! i feel igenex would be better than neuroscience; it's a NEW lab; haven't heard that much about it.
no lab testing or tick testing are 100% accurate; the symptoms list i'm referring you to below is the most accurate for CLINICAL DIAGNOSIS of kids/adults.
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so much to be tell you; my brief welcome is below; please break up your text using my guidelines at the bottom ok; we neuros can't read/comprehend as is. i broke up both of your above posts; see what i did ok; big thanks!
YES, MENINGITIS is related to lyme for your newborn son!
yes, more than likely your son was born with CONGENITAL LYME.
below is my WELCOME LETTER LINK, please print off the following for you both ok:
** dr. burrascano's lyme treatment guidelines, 37 pages;
**below that is his DOSAGES/MEDS FOR KIDS/ADULTS ... babies are discussed in there
** go down to LYME FACTS, DR. CORSON'S KID'S EVALUATION applies to adults except meds/dosages are different. she explains the entire body and which DISEASES affect those body parts. by the time you get done reading it, you'll know what you have.
i believe she discusses babies/toddlers too; if NOT, using my welcome letter, go to the link on SYMPTOMS; there are specific ones listed for babies/toddlers by my friend, GENEAL compiled them.
in same letter, print off the 1st visit to llmd.
also, please post in LLMD REQUEST FORUM; that link is below the line here.
you didn't state what state you are in. i/other leaders here have my nationwide/intl. llmd list. we know of the MAJORITY of them per state.
i may have missed some things. thank you for the DETAILED medical history on yourself/son.
after you read the SYMPTOMS shown in geneal's compilation, you'll know what to look for in patrick's behavior, etc.
hugs/prayers for you both. majority of us NEVER see a tick nor have any type of rash; i was that way too 42 yrs. ago; 35 yrs. misdiagnosed!
bettyg, llmd coordinator/leader
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Welcome to MD JUNCTION! I'm so glad you found us! You’ve come to the right place for education and support!
Private messages DELETED in 30 days!
ARCHIVE, upper right!
My WELCOME LETTER is posted at the top of SUPPORT FORUM in sticky pin full of good info and HYPERLINKS ready to be read.
http://www.mdjunction.com/forums/lyme-disease-support-
forums/general-support/2356916-bettygs-welcome-letter-wgood-
beginner-links-
The most important things are at the top; MUST READ and print off as mentioned there already to start your lyme/co-infection journey with us all.
The 1st things to do are:
• JOIN LYME BOARD;
• Post in LLMD REQUEST FORUM for a LYME LITERATE md; see my welcome letter and the INSTRUCTIONS there if you are SPECIALLY FROM CALIF. Where it’s broken down into 8 NAMED AREAS.
• You’ll need to give me my calif. NAMED area where you live in the areas shown there in SUBJECT LINE plus if it’s for ADULT or a child; we need age of CHILD; some llmds have AGE restrictions.
• OTHER STATES will show the SPECIFIC NAME OF THEIR STATE and closest, largest city to them in SUBJECT line plus adult or child; UNDER 21; we need their age!.
http://www.mdjunction.com/forums/lyme-disease-support-
forums/llmd-info/Itemid=217/func=post/do=reply
• Also, I’ll need the following info in your request post:
in your llmd request, please EDIT and add more info ok.
Are you UNDER AGE 21;; if yes, I need your age shown as some of our llmds have AGE RESTRICTIONS; thanks!
how long you've been sick
if you've tested for lyme/co-infections;
which labs doing work for which specific test, etc.
did you have western blot igm/igg done by igenex?
if yes, what were the POSITIVE & INDETERMINDED numbers; NOT negatives.
thanks for understanding; just EDIT your post. you can find all by going to left MY DISCUSSIONS, click on it.
after you add more, i'll send you names ok.
just send me a PRIVATE MESSAGE left side, giving me the direct link to come to here, and i'll send you the names ok big thanks.
Betty’s suggested posting guidelines:
Many of members have neuro lyme, and it is hard to read long solid block text and be able to comprehend; example, me, 42 yrs. neuro chronic lyme, so we are UNABLE to comprehend and read. Thank you for helping us help YOU 
please post in short paragraphs like you see below or look at a few other posts, but we neuro folks need them short.
1-2 sentences MAX per paragraph and hit ENTER TWICE to doublespace between each paragraph. We’ve lost our comprehension skills to read solid block text.
we neuros lose our train of thought if the sentence is broken up in the middle; so please keep an ENTIRE sentence together as ONE. hugs
For easier reading, please edit your post. You can break up your longer paragraphs into smaller paragraphs. Please hit ENTER key twice after each paragraph.
Go to left hand corner; click edit send. Then go to bottom and click SUBSCRIBE TO THIS DISCUSSION.
Thank you for posting in a manner that makes it easier for all to read and help others.
"Md Junction to me is my safe place. A place where I can feel safe to just open up talk about everything without burdening my wife. With all my health issues its nice to know that I am not alone, suffering form fibromyalgia,depression, and costochondritis with anxiety is a nightmare. Having the great people here at MDjunction is so great its hard to put into words. I dont think I would be getting through what I am going through without this great resource. I think everyone should know about mdjunction!" (Fmsdaddy)
. We are going to PCP tomorrow and we'll see what he has to say.