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workingal Posts: 94
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I just want to vent my frustrations. Please excuse my anger. I had a doctor appointment yesterday. He was recommended to me from some lymies. He told me "you don't have lyme disease". Ugghhh not again. Then I had another appointment today with a neurologist. He told me that he knows nothing about lyme. He said in order for me to get treatment for lyme I would have to go up north. Then this "Dr" preceded to tell me how I was too young to have alzheimer's or parkinson's so my memory problems are related to stress. He continued with my tremors were normal and all of my other symptoms are just stress related. He was demanding that I start taking antidepressants. I simply said "NO I AM NOT TREATING ANY MORE SYMPTOMS HERE" This doctor raised his voice and said "This IS your problem, STRESS and this IS the way you fix it!" He followed me down the hallway with his card telling me to call him if I changed my mind about the meds. I really feel like I am going to lose it. I just can't deal with this CRAP anymore. Depresssion? ARE YOU SERIOUS? My shaking is normal? That's normal? REALLY?? Do any of these Dr's listen when you are telling them how sick you are? I think they only hear what they want to hear... I guess he would say the same if I rolled up in a wheelchair? |
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wlkthlne Posts: 1608
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workin' gal...this vent..was my vent over 3yrs ago...all 7 doctors did to me what happened to you....(I am assumin' the Doc's were not LLMD's)I know these 7 where clueless! Don't you dare give up....be persistant as..."heck"..... I noticed you have like 36posting's.....so I take it you've seen some info here... While you are going through these "terrible motions" are you able to self treat yourself?....ie: get diet under control etc...... .....supplements........naturals?????? Just wanted ya to know....I heard your vent.....and "I get it"... my best to you WLk= Post edited by: wlkthlne, at: 12/14/2011 04:43 PM Anything I post or respond to comes from a Lyme and Bart victim himself. I am NOT a doctor. I do my own research for ME...I may share my findings and will post them. They are for general talk and vent...If a group leader feels the info is worth saving somewhere, they are more than welcome to do with it as they like. Wlk=) |
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VicMac Posts: 1653
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 Workingal, you are not at all alone in those feelings. And this is the place to vent them. I spent nearly 18 years listening to the same thing from doctors, over and over. WE KNOW that the symptoms we are having are not as simple as "stress" related. How many times I wished SO BAD, I could trade bodies with the doc I was sitting in front of, just long enough for him/her to feel what I was. So many times I would come away also feeling like I had somehow conveyed my information about myself insufficiently. Like I was some how to blame for the outcome of the appointment, when all I did was try to be thorough. Anyway, don't give up. Try another LLMD. A good one will realize that we are not mental cases who are psychosomatically creating our physical symptoms. Big hug!! 
I wish I had solutions for everybody here who is suffering, but I am still hunting for them myself and seem to be more of a student on this board than a teacher. All I have to offer is my experience, support, and prayers based on what I have learned in my recovery. I am not a physician. |
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GWB Posts: 817
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Doesn't sound like you saw and LLMD, or did you? Can't imagine a LLMD telling you that. The solution to your problem is only going to be resolved when you see a LLMD, otherwise, you're wasting your precious time and $$$. Not only that, the longer you put off getting appropriate treatment for this disease (from a LLMD), the more difficult it's going to be to treat it and recover from it. See an LLMD asap! Gary |
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Bettyg Posts: 27235
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workingal,i believe i personally sent you llmd names for your area; if you went to any of these folks, please send me a PRIVATE MESSAGE WITH FULL NAME, CITY/STATE of who you saw, etc. i'm appauled at their behavior IF they were on my list i sent you. i'm so sorry. hugs/prayers; DON'T GIVE UP; TOOK ME 35 YR. TO GET CORRECTLY DIAGNOSED and treated by 2 different llmds. bettyg, leader/llmd coordinator BettyG, IOWA ACTIVIST
RETIRED llmd coordinator of 6 yrs; group leader
NOTE: I DO "NOT" USE CHAT thanks!
**************************************
NO INFORMATION SHOULD BE CONSIDERED MEDICAL ADVICE.
please see my WELCOME LETTER/BEGINNER'S LINKS with important links/info galore :)
http://www.mdjunction.com/forums/lyme-disease-support-forums/general-support/2356916-bettygs-welcome-letter-wgood-beginner-links-
Any information provided should not be used to take the place of advice from your personal physician or other professional.
Information on those sites is the opinion of those who publish the sites and is NOT necessarily that of BettyG.
43 yrs. chronic lyme; 35 yrs. misdiagnosed by 40-50 drs. unacceptable; see my profile for more. |
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RavenLunatic Posts: 2602
Group Leader
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If the LLMD said it wasn't LD, then what is it? I went thru the same thing, tested neg. for Bb, 5 times. My LLMD didn't blow me off, she tested for other infections/viruses. Even though I am Bb-, I have multiple LD Co-infections. Sadly, you are not alone. I was told for 25+ yrs. that I was mentally ill. Put on 100's of drugs, hospitalized & even had 8 rounds of shock therapy. Nothing helped!!! I see a LLMD, get DXed, do a HM detox, start a gluten free diet & ABX/Antivirals & guess what? 25+ yrs. of Psych evaluations, DXs, meds & total BS are thrown out the window. I'm not on a single psych med. They're all full of it, IMHO!!! You know your body... don't let one of those "IVORY TOWER" MDs push you into something you know in your heart isn't right. Trust in yourself!!! "My Disabling, Chronic Illness Is More Real Than Your Imaginary, Medical Expertise!!!" |
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waxby  Posts: 4256
VIP Member
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~~~That's our gal, ~~~Welcome home! ``` Mitchell ``` ~~ "The way to 'Heaven' is to bring it with you ..." -Mitchell
~~ "Sometimes, we gotta go through hell to get to 'Heaven'" -Mitchell
~~ "The way out is in" -Mitchell
~~ "A miracle speaks ...'I don't believe in Miracles.' " -Mitchell
~~ "Life is good, even when it isn't." -Mitchell
~~ "Sometimes you gotta lose to win." -Mitchell
~~ "It's easy when it's easy! Find reason, purpose and meaning when it's hard!" -Mitchell
~~ "If you're gonna think, think again!" -Mitchell
~~ "Make it so!" ...
~~ “When life do what it do, as it do-do, simply say ‘Of Course!’ (to soften life’s ‘blows’)” - Mitchell
~~ A master once said, "When embarking on the spiritual path, 'Oh Dear! There's no turning back! You've really done it now!' "
~~ “Not thoughts be your guide, rather, guide your thoughts.” -Mitchell
~~ "That which is within, and that energy entering this body/mind/spirit, causing harm and ill health, must and will be transformed into love healing energy and sent out in every direction" -Mitchell
~~ One morning ten years ago I awoke from a dream chanting over again and again, and writing this down so as not to forget ... "It doesn't matter who did what, there's nowhere else to go but up ..." -Mitchell
~~ "This life, our life, and what we do with it on this planet is “simply” a display, a reflection, of what is going on in our consciousness. The proof is in the puddin’. Look at our planet, what humans are doing to it, and with it, and to one another, and ask yourself ... ~ 'How’s this working for us/me?' ” -Mitchell
~~ "Step away from monkey mind, not tangle ... Observe ... Inhabit your higher self ..." -Mitchell
~~ "Anything is possible, but manythings you think are true, are not ... " -Mitchell
~~ "Grow where you are planted ..." -Mitchell
~~ "Change your future now ..." -Mitchell
~~ “Write your equation … 4 u r the sum of u … “ -Mitchell
~~ “We are largely a product of our environments … how’s your inner environment doing? …” -Mitchell
~~ “We reveal ourselves to ourselves in everything we do … life is our mirror … howdoyoudo? …” –Mitchell |
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irenwill Posts: 1849
VIP Member
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Hi workinggal -- so sorry to hear of your bad experience and frustration. Totally don't blame you for being angry. Definitely time to try a different doctor! Most of us have seen 10-20, or even more doctors prior to our diagnosis. I was so relieved when I found my LLMD. I hope that you can find an LLMD who can help you. All the best to you! I am not a doctor, just a patient striving for recovery and hoping to offer support to others, too! Many blessings to you!
Any information offered is just sharing my experience and friendly advice, NOT a prescription. You should use your own judgment and discretion when making health care decisions. |
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nank59 Posts: 814
Member
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I'm just curious... Have you received any positive test results? I have seen only one doctor who is somewhat knowledgeable of Lyme, but after 30 days of Doxy and a low Lyme antibody ELISA result, he recommended that I see an RA specialist. I don't have insurance, and based on the horror stories that I've read similar to yours, I simply can't afford to see any more doctors. I'm afraid that if I don't get a positive result, I can't get a positive diagnosis based on symptoms. My symptoms and evidence of bites could not be more classical!!!! Attempting to treat with rest, diet and supplements. This whole thing is like a bad dream. Doctors don't take it seriously...and, others don't take it seriously unless you have "positive blood work". nan
I am not a doctor, nor have I ever been. All comments are based on my personal experience or opinion.
IgM
41+
IgG
41+
31 IND
39 IND
Currently treating Lyme & Babesiosis.
Have many Bart symptoms.
Blessings! :) |
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Avalon Posts: 370
Member
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Not one of the doctors or specialists I saw while I was suffering believed me when I complained about the pain and mental problems I was having. The neurologist I saw told me to stop pain meds I wasn't taking and go back to school. It took me a long time to finally give up the dream of graduating from University, and here was this, supposedly intelligent doctor, telling me my pain wasn't real. If they don't know it, understand it, or believe it then apparently it's not true, because who are they? They refuse to just admit they don't know, they would rather make us feel like useless hypochondriacs. Now I feel better lol. I love ranting and railing against those doctors I am not a doctor and the advice I give is my opinion only.
Diagnosed with Lyme Disease in 2006. 36 years and counting.
Treatment that's working for me: Heilkunst Homeopathy |
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"MDJ is an integral part of my everyday life. Since joining in 2010, I have met so many amazing people. It is truly incredible to be able to share good times and not so good times with others who face the same health challenges. And MDJ has support groups for every condition I have. I don't know of anywhere else that can offer that. I love that I can learn from others as well as offer my own experiences for others to learn from." (jaguarandcubs)
