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12/14/2011 03:06 PM


Posts: 94

I just want to vent my frustrations. Please excuse my anger.

I had a doctor appointment yesterday. He was recommended to me from some lymies.

He told me "you don't have lyme disease". Ugghhh not again.

Then I had another appointment today with a neurologist. He told me that he knows nothing about lyme.

He said in order for me to get treatment for lyme I would have to go up north.

Then this "Dr" preceded to tell me how I was too young to have alzheimer's or parkinson's so my memory problems are related to stress.

He continued with my tremors were normal and all of my other symptoms are just stress related.

He was demanding that I start taking antidepressants. I simply said "NO I AM NOT TREATING ANY MORE SYMPTOMS HERE"

This doctor raised his voice and said "This IS your problem, STRESS and this IS the way you fix it!"

He followed me down the hallway with his card telling me to call him if I changed my mind about the meds.

I really feel like I am going to lose it. I just can't deal with this CRAP anymore.

Depresssion? ARE YOU SERIOUS? My shaking is normal? That's normal? REALLY??

Do any of these Dr's listen when you are telling them how sick you are?

I think they only hear what they want to hear...

I guess he would say the same if I rolled up in a wheelchair?


12/14/2011 03:59 PM
Posts: 1877
Senior Member

workin' gal...this vent..was my vent over 3yrs ago...all 7 doctors did to me what happened to you....(I am assumin' the Doc's were not LLMD's)I know these 7 where clueless!

Don't you dare give persistant as..."heck".....

I noticed you have like 36posting' I take it you've seen some info here...

While you are going through these "terrible motions" are you able to self treat yourself? get diet under control etc......


Just wanted ya to know....I heard your vent.....and "I get it"...

my best to you


Post edited by: wlkthlne, at: 12/14/2011 04:43 PM

12/14/2011 04:16 PM
Posts: 1659
Senior Member

Sad Workingal, you are not at all alone in those feelings. And this is the place to vent them.

I spent nearly 18 years listening to the same thing from doctors, over and over.

WE KNOW that the symptoms we are having are not as simple as "stress" related.

How many times I wished SO BAD, I could trade bodies with the doc I was sitting in front of, just long enough for him/her to feel what I was.

So many times I would come away also feeling like I had somehow conveyed my information about myself insufficiently. Like I was some how to blame for the outcome of the appointment, when all I did was try to be thorough.

Anyway, don't give up. Try another LLMD. A good one will realize that we are not mental cases who are psychosomatically creating our physical symptoms.

Big hug!!


12/14/2011 04:23 PM
Posts: 901

Doesn't sound like you saw and LLMD, or did you? Can't imagine a LLMD telling you that. The solution to your problem is only going to be resolved when you see a LLMD, otherwise, you're wasting your precious time and $$$.

Not only that, the longer you put off getting appropriate treatment for this disease (from a LLMD), the more difficult it's going to be to treat it and recover from it. See an LLMD asap!


12/14/2011 04:39 PM
Posts: 33642
VIP Member
I'm an Advocate


i believe i personally sent you llmd names for your area; if you went to any of these folks, please send me a PRIVATE MESSAGE WITH FULL NAME, CITY/STATE of who you saw, etc.

i'm appauled at their behavior IF they were on my list i sent you. i'm so sorry.

hugs/prayers; DON'T GIVE UP; TOOK ME 35 YR. TO GET CORRECTLY DIAGNOSED and treated by 2 different llmds.

bettyg, leader/llmd coordinator

12/14/2011 04:56 PM
Posts: 2673
Group Leader

If the LLMD said it wasn't LD, then what is it? I went thru the same thing, tested neg. for Bb, 5 times. My LLMD didn't blow me off, she tested for other infections/viruses. Even though I am Bb-, I have multiple LD Co-infections.

Sadly, you are not alone. I was told for 25+ yrs. that I was mentally ill. Put on 100's of drugs, hospitalized & even had 8 rounds of shock therapy. Nothing helped!!!

I see a LLMD, get DXed, do a HM detox, start a gluten free diet & ABX/Antivirals & guess what? 25+ yrs. of Psych evaluations, DXs, meds & total BS are thrown out the window. I'm not on a single psych med. They're all full of it, IMHO!!!

You know your body... don't let one of those "IVORY TOWER" MDs push you into something you know in your heart isn't right. Trust in yourself!!!

12/14/2011 05:12 PM
waxbyPosts: 4843
VIP Member

~~~That's our gal,

~~~Welcome home!

``` Mitchell ```

12/14/2011 07:51 PM

Hi workinggal -- so sorry to hear of your bad experience and frustration. Totally don't blame you for being angry.

Definitely time to try a different doctor!

Most of us have seen 10-20, or even more doctors prior to our diagnosis. I was so relieved when I found my LLMD. I hope that you can find an LLMD who can help you.

All the best to you!

12/14/2011 08:47 PM
Posts: 832

I'm just curious... Have you received any positive test results?

I have seen only one doctor who is somewhat knowledgeable of Lyme, but after 30 days of Doxy and a low Lyme antibody ELISA result, he recommended that I see an RA specialist.

I don't have insurance, and based on the horror stories that I've read similar to yours, I simply can't afford to see any more doctors.

I'm afraid that if I don't get a positive result, I can't get a positive diagnosis based on symptoms. My symptoms and evidence of bites could not be more classical!!!!

Attempting to treat with rest, diet and supplements.

This whole thing is like a bad dream. Doctors don't take it seriously...and, others don't take it seriously unless you have "positive blood work".

12/14/2011 10:18 PM
Posts: 371

Not one of the doctors or specialists I saw while I was suffering believed me when I complained about the pain and mental problems I was having.

The neurologist I saw told me to stop pain meds I wasn't taking and go back to school. It took me a long time to finally give up the dream of graduating from University, and here was this, supposedly intelligent doctor, telling me my pain wasn't real.

If they don't know it, understand it, or believe it then apparently it's not true, because who are they?

They refuse to just admit they don't know, they would rather make us feel like useless hypochondriacs.

Now I feel better lol. I love ranting and railing against those doctors Smile


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