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Scandic Posts: 107
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I'm on clarithromycin and have had some heart issues on and off, the doc had me stop the plaquenil and things were calmer, so went back on a full dose of clarithromycin. Been back on 2x 500mg clarithro for 10 days now. The past 5 days my heart-rate has not gone under 90, is mostly around 100. Trying to sleep is hell, pound, pound, pound, against my ribs and in my head. Any movement and my heart-rate is at least 120, even walking slowly. But I've been gritting. Last night it took over 4 hours to fall asleep, and when I finally did, I had a horrible nightmare, where I dreamed I was hallucinating, I couldn't wake up, I started screaming inside my nightmare, until my husband woke up and woke me up. I'm sitting here now, heart-rate 112 at rest, feeling trembly, exhausted and awful. The rapid heart rate, the nightmare, the sleeplessness, are all on the list of side-effects of the clarithro. I'm considering easing off for a few days, I've emailed my LLMD, but thought I'd ask some thoughts here - stop completely, go half dose? I'm exhausted, how long can a heart take this rapid beating, and virtually no sleep? |
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Bettyg Posts: 26564
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i'd stop for NOW; wait until you talk to your llmd.i'm so sorry forall you are going thru. do the side effects outweigh the positives. scarry/hallucinating nightmares myhubbyhas in his advnced parkinson's.hugs/prayers to you. bettyg BettyG, IOWA ACTIVIST
RETIRED llmd coordinator of 6 yrs; group leader
NOTE: I DO "NOT" USE CHAT thanks!
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Information on those sites is the opinion of those who publish the sites and is NOT necessarily that of BettyG.
43 yrs. chronic lyme; 35 yrs. misdiagnosed by 40-50 drs. unacceptable; see my profile for more. |
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Scandic Posts: 107
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Thanks for the support & advice ! I feel like such a failure when I have to back off the meds. I can live with the fast heartrate during the day, but the no sleep already has me feeling like "gee, another horrible night to get through listening to my heart pound" and then with an awful nightmare thrown in. I'm desperate to sleep, like "just give me something to knock me out" kind of desperate. I'm supposed to start pulsing with Flagyl, wondering/hoping that will help. Sorry to hear your husband has nightmares, it's just so awful. I'll back off until I hear from my LLMD. |
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Scandic Posts: 107
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Well, I just discovered some bruises on my left knee that I cannot explain. Either I bumped into something and have no memory of it, or my blood is too thin from the clarithro (which would explain the rapid heart as well). I also forgot to mention that during the night I had 4-5 rounds of an icky vibrating feeling, sort of like a cell phone, in my rib cage. I've had that feeling before, but not so many in one night. The bruises were the clincher, I'm stopping the meds for now. Suspecting my liver has had enough. |
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tizmo Posts: 676
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I too have been getting the vibrating in my chest. It's the bronchial tubes vibrating. Every time I'm on tetracycline type antibiotics for 2 weeks it starts. It's scary and I'm so short of breath. The doctor switched me to azithromycin today but I think that gives me horrible stomach upset. I guess we'll have to find out. Finding the right antibiotics is hard when you have sensitivities to everything. It's like the body doesn't want to get better. It's sickening. |
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Scandic Posts: 107
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Bronchial tubes that vibrate? Interesting. I hope I don't feel it again too soon, but I'll try to localize it, it felt like all my ribs were just buzzing. It only happens at night. Yes, ugh to it all. My LLMD mailed me to stop the meds and he will call me tomorrow to discuss. I had a pounding episode after dinner even though I've not taken any today. Hoping I can get a decent night's sleep. |
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tizmo Posts: 676
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I too hope you get a good nights sleep, especially since they claim that is when our body does its healing. |
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Scandic Posts: 107
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Well, to pick up on this again. My LLMD told me stop the meds, initially for 5 days. He says I am one of his over-sensitive patients, my vagus nerve is over-stimulated, either from the meds or the Lyme itself, and with the bruising added to it, he preferred to play it safe and give me a break. He said the vibrating is the vagus nerve itself causing it. Well, 5 days on, the heart is a little slower, but not enough, it's still beating too fast and keeping me awake at night, but I have about 2 vibrating sessions a night instead of 5, no nightmares. I was just gathering the courage to re-start the clarithro yesterday, when I discovered yet another unexplained bruise, so am now hesitant. I've also been breathless again, and since I have had severe iron deficiency, I let my husband take me to my local house doc (LLMD is very far away), and she took blood to check my iron, liver and a few other things. Of course, when she listens to my heart,it's fast, but not fluttering, it only misbehaves when I'm nowhere near a doc of course. I've gotten in touch with my LLMD again, not sure whether to interpret the heart not fully calming down as that it was not the clarithro causing it, or if I need more time. The bruising is throwing me. Can't say I have more of the Lyme pain in my fingers and knee off the abx than on... |
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