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12/13/2011 05:27 PM


Posts: 17
New Member

has anyone had the ccsvi procedure done for the neuro part of the lyme?

I found it very interesting and the couple of people that had it done found it to be like a miricle aside from having to have a second procedure

due to relapse of the vien or whatever sorry kinda out of it right now, Its been a long day...

adding info from a 2nd post about a CCSVI video she posted; bettyg, leader

length unknown? forums/general-support/3283891-watch-this-video- ccsvi#3283891


Post edited by: Bettyg, at: 12/14/2011 01:48 AM


12/13/2011 08:12 PM

Hi stormytonya --

I am not familiar with that procedure, but this will at least bump the topic to the top of the list Smile

Hopefully someone will be on shortly who can help you out.

12/13/2011 08:14 PM
Posts: 17
New Member

lol thank you i just posted a new link about it Wink thanks again

12/14/2011 04:47 AM
Posts: 33536
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I'm an Advocate

watch this video- CCSVI

12/13/2011 08:11 PM


Posts: 8

New Member

for those who don't know about CCSVI its very interesting.

maybe a lyme breakthrough for some who knows.

10 min.


12/14/2011 04:43 AM Top


Posts: 15442

Group Leader

hi tonya,

i do have an ONGOING VIDEO LYME COLLECTION; you can find it by going to the INDEX FOR MEDICINE/TREATMENTS,

then topics are by A-Z; so videos are at the end of the 1st long, long post of links.

please add it there and spell out what CCSVI stands for and add it's 10 min. in length.

it was good! i hadn't heard of this before!

thanks for sharing tonya;

i'm going to combine this post with your other post about cssvi.

bettyg, leader ... deleting this after copying your/my comments.

01/04/2012 05:31 PM
Posts: 141

i am told to have the CCSVI and insurance will cover it. my brain is being so affected.

i too have heard that it can re-stenos. and maybe i should wait until i get my

viral/lyme load down. but when i read how amazing people feel...getting that blood back to the brain.

anyone else have it done.. PLEASE tell all Smile

11/14/2012 12:54 PM
Posts: 15
New Member

My friend had it done and her cognitive abilities have increased greatly!!! She had it done in Atlanta at some clinic. From my little understanding you have do undergo a test prior to see how narrow or much blockage is in the veins. Then from there they determine if you need the operation. I'll try and find out more. I know this was initially done for MS patients.

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