Lyme Disease Support Group

I'm sure that this has been discussed before, but I am wondering...

For those of you that experience the sensation of things crawling on your skin (but you don't have Morgellon's so you don't actually have them)... is this related to Lyme or a specific coinfection?

I remember my LLMD asking me if I had this symptom a while back (but I didn't at the time) and it seemed like it was a coinfection question.

More importantly, has anyone found anything to be helpful in alleviating this symptom? Is there a specific antibiotic that should be used for this?

Usually if I rub my arm or back or wherever the sensation is occurring, that seems to help (although the relief is only temporary). That's about it though.

Any input or info would be great. Thanks!

Post edited by: Jessalynn1, at: 11/13/2011 12:22 PM

Fibromyalgia, is a classic lyme symptom. I dont think there exist a single lyme patient that has not had such a crawling sensation. What concern me though is that you still have this stuff going despite treatment. Are you using metronidazol and some broad spectrum antibiotic in your treatment?

The feeling of bugs crawling on your skin is caused by Peripheral Neuropathy. PN is caused by 1 or 2 things.... Diabetes or Endocrine issues.

If you have this symptom tell your LLMD as it can get worse. I lost almost 1/2 my left body function due to PN because the reg. Drs. said I was a Hypochondriac. By the time I got into my LLMD I had hardly any reflexs at all. My LLMD could scrap the bottom of my foot & I didn't even flinch let alone pull my foot back.

Vit. D3 will help with this. (4000 UI a day or more)

Raven - All of my endocrine tests came back normal and I'm not diabetic. I'm already on D3, but I guess I could try upping the dose.

davmark - Thanks for the info, I think I have heard/read about that as a fibro symptom. Makes sense... I temporarily had to stop abx, but will be pulsing a cyst buster once I work myself back up on the dosage of Bicillin. If I can't tolerate this option, my next move is the Buhner protocol.

Thanks for the input guys.

Post edited by: Jessalynn1, at: 11/13/2011 05:14 PM

Jess,

The B vitamins can help with this (benfotiamine is especially good for neuropathy- you can google this and read many articles on this.) Calcium and Magnesium can also help.

I had this crawling sensation terribly- for the first 1+ years of treating this. Minocycline cleared this symptom from my head after about 4-5 months on this. It was at one time- one of my worst symptoms...

This symptom can go away...you need an antibiotic that has good penetration into the central and peripheral nervous system...IMO...I would talk to your LLMD about this. It seems that both Lyme and Bartonella are notorious for causing this type of sensation.

Hope you feel better soon.

Hugs,

Jackie

Post edited by: shorelinelyme, at: 11/13/2011 06:27 PM

Thanks so much for the info Jackie. I just read something similar in a Lyme book that stated that magnesium (which I already take, but it looks like I'm not taking enough), lots of B6 & B12, and folic acid can all be helpful for this. I'm definitely going to up the magnesium and the B vitamins and add some folic acid.

Jessa - You might not have tested positive for Neuropathy but those are beginning sign of it. I had over 50% loss on my left side & the Neuro said I was mild, yeah whatever!!!

I would treat as if you had it so it doesn't srpead any further if you can help it.

Don't bother wasting your time with a Neuro, they won't do anything for you. All the advise that has been given by me & the others will help you control it. Good luck

Also, detox, detox, detox. As nasty as the neuro symptoms like this can get, so far the more I have detoxed the more they have lessened.

Hope that helps.

Thanks iren- will def up the detox. I needed to do that anyway