Lyme Disease Support Group

I think I am also gonna have to treat this on my own without a doc.

I dont want to get so far into treatment with abx and llmd---then have to stop going and not know how to keep in under control from there.

Financial issues and some personal reasons why I dont think Im gonna be able to do this with abx and a doctor much longer.

I also battle candida and have grown up on antibiotics...so I think my body wont be able to handle them long term anyway besides the future hurdles I must face with my care.

http://www.mdjunction.com/forums/lyme-disease-support- forums/general-support/3200332-stomach-pain-feels-like- pacreatitis#3200354

Everyone is different...Just because Naturals did not work for one does NOT mean they will not work for another...

I spent more then 12 years on ABX...one that nearly killed me...in the beginning...

I do believe that ABX have a role to play in this illness...but clearly here there is ABSOLUTELY no definite one or the other.

Dave that is your opinion...but members are supposed to be supportive and NOT fill others with dread and doubt. And if you don't know the persons mental state you should certainly proceed with caution as you may effect them more negatively...

If lost has issues with Candida - going on abx can be more devastating for her - especially if she cannot gain control over it...she wont be able to fight the Lyme...

With natural and Nutritional options...she has more options for what she can do...and that does not mean she wont be able to holistic either...or other Alt methods of treatments...

Options are NOT just limited to Conventional or Natural...there are MANY options out there...

Sorry...I know I said I will not be posting here...but quite frankly I am getting very upset with so much of the opinion throwing that has been going on...and having people coming to me privately because after some responses like this they loose HOPE...

State your opinion - fine...but don't make a person question themselves...offer options and explanations...but don't make one person's failure be a decision maker for the masses....

What has happened to tizmo is NOT uncommon...not at all...sometimes you NEED more aggressive treatments before the naturals can have a greater and more noticeable impact...

Plus there could be other issues with tizmo - on a nutritional level as to why the naturals are not working...

I don't mind working with people behind the scenes here...but I do mind the nature of some of these posts as of late...having people come to me in a panic...feeling there is no hope - feeling that they have 10x's more things wrong with them...

Things have NEVER been like this before - and it is saddening and very disappointing...

There is a way to present people with your opinions, and knowledge - and still be compassionate and still give them a sense of hope EVEN when you disagree with their decisions...

Christine

But only naturals does not feel ok to me. But as I stated previously it is a AlostSouls choice! No one can make the decision for her.

I just want her to be aware that tizmos was doing naturals and as I understand went back on abx and I even think waxby mention somewhere that he regret going of abx looking back on it (waxby am I wrong?). But again, I reiterate it is not my decision to make!

Steelers

The first person I went to was a homeopathic doctor who has cured many from lyme disease with his remedies. I did the remedies for 11 months. I even bought a good rife machine that he recommended and did that for 4 1/2 months, but I continued to decline and my lab tests are proving that.

I then saw a LLMD, and a person for core synchronism. After my lab results kept getting worse and I was making funeral arrangements I finally went to see a new naturopath. She strongly suggested that since my central nervous systme/brain/joints/heart are highly infected to get on antibiotics.

My naturopath said for her it is hard for her to recommend antibiotics since she believes in naturals, but she has seen what damage this disease can do to people if the infection load is too high.

In my case, I have Lyme disease, Mycoplasma, Anaplasmosis, Brucelliosis, reactivated Varicella virus, and fungus's. The naturals, rife machine, and good diet weren't even making a dent. In fact I was/stil am getting sicker and sicker.

Monday night after finally realizing that the naturals aren't working, I started the antibiotics. Hopefully I can get the infection load down and go back to just naturals and my rife machine because I know how hard antibiotics are to the system.

After this horrible journey so far. I definitely think it all depends on how compromised your system is and if you have a large infection load. If your not too seriously ill then do naturals/rife machine all the way. But if you have a vaccine in the mix messing up your system then you might need the antibiotics to help you along the way.

I am not proud that I had to resort to antibiotics, but I would regret it if I died because I was too stubborn to do something else other than the naturals. My stubborness is maybe why I've gotten so ill. I probably should have been on the antibiotics a long time ago.

Everyone has to try there own thing and see what works. There definitely is no "one thing" fits all to this disease. Genetics also play a role in how well someone recovers.

Best of luck to you all in your treatments!

Then it was on and off for the years following...

And just so you know...even tho I have been treating naturally and through diet and nutrition...I had gotten very sick 3 years ago with viral bronchitis and pneumonia - the cough was so bad I had NO CHOICE but to go on prednisone...

And since that doc would not touch my Lyme it was friend from here and my mother who sent me enough abx to treat my body after having to take those pills for 3 days...9 months of hard work...and I was dropped back - and the ONLY thing that I KNEW would work fast was the abx - and it took 3-4 months...

In Tizmo's case...that vaccine is probably what really did it in...I know of others who have had this happen...what ever is in that crap is working against him...His body NEEDS the help of the abx - as it has just been wiped...

But that doesn't mean it FAILED him...he says that he was handling things fine UNTIL that vaccine....

And my issue was more with the WAY you came across in your response...

I think you will regret your decision to stop abx in a year or so.

When you are dealing with people who are sick and have severe issues with anxiety...coming on strong...or making them feel bad about their decisions...it is BAD for them...

They are LOOKING for support...your opinion is yours...that's fine and good...but DONT go make someone feel bad for a choice that they feel that they have to make...

And I know her rather well...and if her history of Candida is right...then the ABX direction will be for what? And there is a possibility that she has parasitic infections...these things need to be cleared before Lyme can be treated most successfully...

And if she is more prone to yeast and Candida...then she is going to constantly be fighting with that - and It does and will interfere with Lyme treatment.

There are MANY options out there...No one is right or wrong...each has to find the path that suits them best...

BUT PLEASE dont make them feel bad about it...and that is what this post may have done...THAT is the point here DAVE...Have more compassion in how you voice your opinions...

And don't assume that every member will handle your posts just fine and dandy...this one...I happen to know...could have a very upsetting effect...when you have people who are so distraught and confused...care NEEDS to be taken - and you Need to remain more supportive...

Christine

Post edited by: cmany, at: 11/11/2011 01:55 PM

I was on abx’s for 6 months, knew it was enough and went to see my “Natural chiropractor Dr.” He is the one that got me on track with my lyme and I’m 2.5 years in remission, never once have I gone out of remission with everything I have been through and the old members on this board know what I have been through and still going through.

For me I never had to put abx’s in my system for years on end, for me that was not the answer as I know the damage they can do to the body, so I decided to go NATURAL. But that is just me.

For my Breast Cancer I am doing the "Natural Route" instead of the "Chemo" pills and yesterday when I went for my Mamo "NO CANCER FOUND". So yes they do work for some.

Does it really matter how you get well as long as you get well??????

This could have easily been handled via pms..there's no need to make anyone feel uncomfortable for stating their opinion..yes, sometimes people's opinions come across as something othere than it's meant to, but that's what pms are for when this needs to be addressed.

Fingerpointing is not what this board is for, we're here to support one another...let's get back to it.

peace-kim

Besides - this has turned more into a debate - and debating is also a good and healthy Process...

But you got it Kim...You have a PM coming your way from me...You want it YOU got it!!

Christine