Lyme Disease Support Group

Somewhere in the past, I read something about vitamin D being an aggravating factor in Lyme flareups. Because it does something to suppress the immune system.

Then other people ( especially among my friends in New Mex. ) have been telling me that it actually helps the immune system, so I cant get the story straight on this vitamin.

My doctor at Kaiser has insisted that I need more of this vitamin as my blood test for it shows I am too low. He thinks it will improve my immune system. And I think it at least explains why my teeth are not so strong.

Anyway, the big question is, does it or does it not help Lyme? Would love to hear peoples' experiences with this.

So far, I have been trying to add it to my regime, and seems like my head pressure worsens more when I take it. But not sure if that is the cause.

Note I have lyme and I also have vitamin D-deficiency. I am just not sure how much significance we should put to such a fact

Post edited by: davmark, at: 11/06/2011 03:45 AM

I have heard both sides of this vitamin d discussion as well...and I have chosen to take vitamin d.

If you are low in vitamin d- your immune system will not be functioning properly. In my viewpoint- this is a much higher risk. Low vitamin d has been associated with MS and other autoimmune illnesses as well.

I have never actually tested "low" for vitamin d- by Quest's standards. I started this illness at 45...dipped down to 38...started supplementing it each day and am up to 58. Many naturopaths/LLMDs like this number to be around 70 for optimal immune function. I am planning on supplementing daily until I reach this and then reduce it to 1x/week.

Just my opinion on this...I know there are other opinions out there.

Hugs,

Jackie

I just got retested and was 35 so it's been dipping again. I decided to start supplementing since I know it can really help with energy.

I know that does not help with your actual question though

I just had to bring my dad to my llmd thinking he was bit by a tick from the rash on his head..it was shingles.

The doc told him to take 15,000 units of Vit. D3 for 4 days for the virus and then go down to 3/5,000 per day after that.

My dad is like me and loves to sun himself..it's winter here in Maine now...he was depleted in his D. He also got a flu shot last month without telling me.. My doc and I both gave him a lecture on that one..

Most people are deficient..

peace-kim

Post edited by: fabajenna, at: 11/06/2011 04:50 AM

The book "The Vitamin D Solution" by Michael F. Holick, Ph.D, M.D is packed with information about Vitamin D's essential role(s). It also gives great guidelines on how to get your levels back up without reaching toxic levels. Bringing it up is a fairly easy thing to do with supplements.

I wrote this in a post not too long ago... http://www.mdjunction.com/forums/lyme-disease-support- forums/general-support/1839136-treating-lyme/limitstart/ 170#3173155

Also many many ..most people are VitD3 deficient.. People don't understand that some of the pain can come from that.... Yes there is a test to test your "levels"..but the levels are NOT what most of us NEED.

so the test can be used a different way... Let's say they think your test of 50ng or less is fine...It is NOT.. it should be higher..

50ng/ml -or 158nm/L or HIGHER...

how the test can be used the interesting way..is this..lets say you are at 50ng...take some Vit D3 for up to 12 weeks...then have the test again...your test results should show some improvement...if not..you ARE vit D3 deficient... You can do a home test..if you can't find a Doctor to do it for you...(If you are in NY you can not!)(cheapest home test I found was close to 80$)

...Everything is important...lots of people like me find that just our Mag and D3 levels "balance" are too low for us to keep away the pain...

Now I am not a tech...or doctor..but I found it interesting that in another post I made on GcMAF...it ..if I read it right...can't work right if there is not sufficient D3???????

Now another thing...I heard or read that if you have lots of Mag in your system you are feeding Bart....don't know if that is true..but here's the kicker...

When I took the Leviquin it distroyed and took away every last drop of the Mag I had....the ONLY thing that is gettin' me back is high amounts of the mag...unless I want to be in pain walkin' on my kneecaps...

Through all that crap....I still have Bart symptoms in the exact same places....no change.......no worse......no better....

So...what are we supposed to do? deplete our bodies of all the things it needs so we can beat a disease..that seems to find a way to survive and hide anyways?

Gosh-darn-it! Vic....why can't you ask a simple question

I would love to see more on this topic from others...I'm as fusterated as many here...when will we find cut and dry answers? lol

Wlk=

~~~The only source I have heard of the advantage of depriving one's self of vit D is from the controversial marshall protocol and is considered to be dangerous by many. This protocol barely ranks at the bottom of the list of effective protocols.

~~~No one from this forum has claimed any success from it including myself. Please, someone correct me if I am mistaken.

``` Mitchell ```

i am on about week 4. makes a huge difference. tinglies in feet are going away etc. also getting energy back (less need for naps)

if you look up vit D deficiency it can cause alot of symptoms real similiar to Lyme.

i would definitely take it and get your level up. i feel alot better since taking it

The sourse a book written by a nurse.....said...NOT to take the kind from a doctor in script form.....

It is not the same as buying and finding a good product from health place.

So this adds to my confusion.. Why would she say that???

Ohh, and I never finished......but....as I was lookin' for a "better" Vit D product.....it comes from sheep!? Wool?

Again....this is an interesting topic...and makes you wonder all the rights and wrongs....

Geesh....never an easy answer...

Waxby....I don't know....I wish for you that you had some success...

It really....perhaps boils down to an individuals needs..or what is missing??

Again......Vic....you have done it again! perhaps the next question you ask like how many fingers on a hand...would be cool

regardless.....interesting....

Wlk=