Lyme Disease Support Group

I am geting no relief. I do not talk to my parents anymore. I do not talk to my sister anymore. There care only went so far.

I am the type of person who always was there for everyone and never asked for help. Now that I need it they all turned there back.

None of my friends understand. They feel put out if I need to talk. One said to me "i hate when you get like this" Another said "how could you be cute but so crazy". I feel like their eyes are always being rolled at me.

I am suppose to be having help from doctors for the depression and they just let it go. Maybe they send an email here or there. But it is a waiting game. I have tried the psych drug route and it did not help at all.

I try to detox and that does not help. I try to eat the best and that is not helping. I cannot even et to a large dose of abx because i get so sick. My tests do not even come out positive.

i just stare on my couch by myself 24/7 with tears streaming down my heart begging God for help. I beg for guides or angel. someone who care to tell me i am on the right track with the right professions. I pray to just feel a little love to keep me going.

i cant see the light at the end of the tunnel anymore. everywhere i look for hope leads to a tragic story of continual pain and suffering.

the anger i have in me is best described by fiery rage. for 15 years they told me i had this and that. no one listened to me. My parents always told me to get off the stage and stop being over dramatic. my friends turned their backs.

i am tired. my heart hurts so much. i feel so alone. my body, mind, soul, and spirit feel empty hollow and black as charcoal.

i never thought humanity could be so evil. i never thought i would be in such a desperate place of despair. my an acquaintance friend of mine last year ended his life. I never knew why and his friend told me he had lyme and couldnt take it anymore. I didnt understand. now i do. and it hurts so badly.

i pray for healing for all of you. I hope you find peace.

I'm so sorry that you have not had the support from friends and family that you need while treating this disease. It's so hard for people to understand how incredibly sick you can be from this...and for many- to look well.

Please come on this forum more, though. There is always someone that will be able to relate to what you are going through and lend you some support.

When I read your post...a few lines reminded me of me early on in my treatment. When I first started treating this I remember sitting on the couch, crying from the pain- and begging God for help as well. My family felt helpless- because they had no idea what I was going through.

Two years later- I am back to almost myself. I don't wake up thinking about what I can't do because of Lyme today....I am working & enjoying life...and still just have a few minor symptoms to go...

Please don't lose hope...you can get well & feel free to PM me anytime.

Hugs,

Jackie

I am so very sorry you aren't getting the support that you need for this from your family and friends..unfortunately that is what happens sometimes with this disease.

Too many people don't understand what we are going through, and it's almost impossible to make them understand unless they experience it themselves.

That's why you need to reachout to us more , just like the others have just suggested..we understand, we've been there, and we are here for you with wide open arms.

We will listen, we will comfort you, and we will love you throughout this whole journey. Unconditionally.

I can tell you that you are already stronger than what I was, I didn't pray to God to fix things or help me..I prayed for him to take me.

I didn't want to be here any longer, I didn't want to live like this..

He had a different plan for me, and although it frustrated me and angered me, I surrendered and listened to what was being told to me.

I know He has some plans for you too transformed, that's what is really going on right now...it's not punishment, it's what needs to be done.

This disease forces us to stop our lives, clean up everything that isn't serving us, and do some soul searching to find ways to look for the good in everything, not the bad. It's the only way to get through this..

Please keep your faith, I know things seem like they are too out of control, but they're not. It's just an illusion.

You have all the power to transform this. Your mind can overcome these feelings you are having without the need for pharmaceutical drugs, without the need for approval of your family and friends..

Remain strong in your will and your intentions, remain strong in your heart and convictions...we are here to help support you and remind you of how strong you really are.

Focus on the exact moment that you are in, not yesterday, not what might happen tomorrow or the next day..just focus on the moment that you are in..

Nothing else will matter and it willl have no importance..only what is going on in that moment matters. The rest is either history or it will take care of itself when it happens.

It's hard to feel like you have no control of what's going on. We can't control others, but we can control ourselves. You have control of what is going on with you and in your mind.

If you find yourself getting into that spinning/sprialing downward feeling, stop for a minute, recognize what is going on, and choose not to believe it. Choose a different thought. Something that makes you smile and warms your heart.

Keep that thought in your back pocket for when you are feeling overwhelmed..that way it's always there within your grasp. You can use it anytime.

Just simply reach back and take it out ..and say "Oh yeah, this is what makes me feel good, this is what I want to think about right now".

If you can change your feelings and thought patterns, your health will begin to improve immediately..I promise you, it's that simple.

It takes some practice, but you can do it, we all have faith in you.

Remember we are ALWAYS here for you...we'll never let you fall.

I'm personally sending you some extra light today, right now, so you can still see it there at the end of the tunnel...it's right there waiting for you.

God bless transformed...

eternal peace love and light to you-kim

~~~RE your "I can't do this anymore."

~~~Do you know how many times I said that? Me neither! Do you know how many times all of our frieds here colectively have said it? Got a calculator?

~~~DO NOT GIVE UP! PLEASE!

~~~Our Native American Grandfather said "Every step toward the mountain top, no matter how difficult, is greater than the most powerful storm. Keep Going ... "

~~~We are here with you, together, taking those same steps ...

``` ~~~from my straight jacket~~~out on a limb~~~lookin like a cocoon~~~hangin by a thread~~~waitin for a butterfly~~~under the moon~~~Lovey Dovey~~~Mitchell ```

Post edited by: waxby, at: 11/12/2011 10:49 AM

~~~It may not be clear to you, YET, but, you are learning some of the most valuable lessons in life that only this pain and suffering can provide. This is the Gift and Miracle from your rich life and this Bless-ed Curse.

~~~You have been Blessed, not Cursed. Make it so ... Don't squander this precious Gift.

~~~This I know sounds crazy to most, except for those who have suffered so and lived to tell about it.

~~~Nelson Mandela, Michael J. Fox, Me, Us, You ...

~~~I tell you this from twelve years of this Lyme Complex "hell", downstairs away from my bed for a year, after a full lifetime of normal health and mobility, from my 24/7/365 electric kitchen recliner, peeing in a bottle, unable to leave my house and look at the stars ...

~~~If I could go back to the day that TICK landed on me and flick it off before THE BITE, and the deal was to keep my "health" but lose every thing I have learned and gained because of it, I would ask that tick "you want a beer with that?"

~~~This is Crazy Wizdom. You can't buy it ... You can't read it ... You can only experience it for yourself ...

~~~Emerse yourself fully, wholeheartedly, bravely, courageously, into this experience as you would a character in a play. You will come out far richer than you already are, given this gift of life ... And so will those around you.

~~~All my understanding and love to you transformed,

``` ~~~from my straight jacket~~~out on a limb~~~lookin like a cocoon~~~hangin by a thread~~~waitin for a butterfly~~~under the moon~~~Lovey Dovey ~~~Mitchell ```

I've basically lost all of my friends and the only family that understands me is my mom.

She has become my best friend

If I could appeal to your understanding of what life use to and ought to be and that this road you're on doesn't leave any doubt to me and others that you'll achieve what is and has always been possible.

I know it's hard and I know it's painful but it was always only you all along.

Who is the one person that understands you no matter what?

Who is the one person that never leaves your side no matter the cost?

Who is the one person who's words always mean the most to you?

That person is YOU!!!

There is a life beyond this temporary haze of hell and only you have always had and always will have the will power to take on any obstacle you've been plagued with.

transformed, please know for one, God does Hear us. there was a time that i wanted to jump. then my 5% brain said, NO this is why the doctor gave you his personal phone number.

i was sitting on my bar stool one morning, i felt as though i was not connected to my body. i looked at my right arm and it was weird. i somehow just knew i was still connected to my right arm.

eventually i could feel myself become whole again.

one week i prayed to God to just take me. I could not live like this and I did not deserve to die a slow death. No one does.

the next week i began to see a future in the distance. i was getting better from that point.

i was only crawling to good health.

i have friends, relatives, boy friend, tons of girl friends and i could see they did not understand.

my sister said to me the second week i was sick, when are you getting better, i am tired of running around for you. my sister! did she treat my father like that too?

i was soooooooooo frustrated. i knew that i could not do this. i knew i could not do this alone either.

well one day i woke up and said, i am not dealing with this, you are! i am going to put all my problems in your hand.

and i did! i put all my problems in Gods hands.

from that moment on things really changed for me. not over night but change did take place.

my boy friend thought i was going to nutty doctors. so HE found one and asked if i would go and see him.

I was shocked because THIS is the doctor i wanted to go to but he was two hours away!

Then just recently my girl friend could not sleep one night and saw a PBS show called, under our skin.

the next day i received a email from her apologizing and didn't realize how serious this was.

yet she told me she knew lots of people who had lyme and only lasted for a short time....please do you think i believed that one?

please and i beg you to just know God is looking over you. Put your problems in His hand.

things will change.

we are going to make Lyme Disease known and we are going to find a cure for this horrible disease.

and this is why you are here is for support and take all the support you can.

i have been down and out. sometimes i just want to cry! i want this over with. i know it takes time.

i have been in bed for over a year and a half. never getting out of my pajamas.

today i do have a future. stay away from the negative and only allow positive people into your world.

this is not a disease that we take a few pills and we are better. get that into your head.

just know what it is going to take. it is going to take time, good spirits, good food, good doctor, good friends, good family.

if you have none of those remember WE ARE HERE FOR YOU. WE ARE GOOD PEOPLE WITH GOOD ADVICE.

we have walked in your shoes! all of us!

all the newbies that will come to this group will be in the same position as you. but you will be many steps ahead of them and you too will be giving them valuable advice!

won't you be happy to be a part of their success.

think happy thoughts! mind over matter.

Hang in there! All my best.