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Lyme Disease ForumsGeneral & SupportLyme Disease and Hyperbaric Oxygen Therapy
10/13/2011 10:03 PM
MBC25
MBC25
 
Posts: 129
Member

Hello everyone. Has anyone done HBOT for Lyme treatment? I'm not talking about the blow up portable chambers, but the really big ones that are used at HBOT centers?

I have read very promising research, but it is VERY expensive, so I just wanted to see what anyone's experience has been.

Reply

10/14/2011 12:03 AM  Top
Bettyg
 
Posts: 26579
VIP Member
I'm an Advocate

hi thereWink

i do know of some who have done this; can't remember about members on this board.

1 person i know of is LYMEDAD whose daughter had extensive dives. was doing better for a short while, then SEVERE relapse where they were going to try them again.

may i suggest using our search feature, upper right hand corner,

lyme and HBO in lyme board click enter

you always need to add lyme board since there are over 800 other boards here.

go past ads, skim summaries; if it looks interesting, click on link to read post and all replies.

best wishes to you. up to top for more input.

hugs/prayers,

bettyg

BettyG, IOWA ACTIVIST
RETIRED llmd coordinator of 6 yrs; group leader

NOTE: I DO "NOT" USE CHAT thanks!
**************************************

NO INFORMATION SHOULD BE CONSIDERED MEDICAL ADVICE.
please see my WELCOME LETTER/BEGINNER'S LINKS with important links/info galore :)

http://www.mdjunction.com/forums/lyme-disease-support-forums/general-support/2356916-bettygs-welcome-letter-wgood-beginner-links-

Any information provided should not be used to take the place of advice from your personal physician or other professional.

Information on those sites is the opinion of those who publish the sites and is NOT necessarily that of BettyG.

43 yrs. chronic lyme; 35 yrs. misdiagnosed by 40-50 drs. unacceptable; see my profile for more.

10/14/2011 05:39 AM  Top
wlkthlne
wlkthlne
 
Posts: 1605
Senior Member

long time no see, Yes, Dave..djp1972 I think is his title???

He tried the HBOT for a few spells...may want to talk to him..

Umm, I looked into it...same time Dave started doing it...I waited to see how he made out cuz he as Bart as I do.....

I can't really remember what Dave thought about it....

I do remember that there was some info out there that it is great for some with lyme...but if you have Bart...it feeds off of it..

I DO NOT KNOW what to be true...or false in this topic...perhaps you can get a hold of Dave....

He put alot of time looking into it...then he tried it......

Good luck

May you find your "treatment" to get past all this!

wlk--Cool

Anything I post or respond to comes from a Lyme and Bart victim himself. I am NOT a doctor. I do my own research for ME...I may share my findings and will post them. They are for general talk and vent...If a group leader feels the info is worth saving somewhere, they are more than welcome to do with it as they like. Wlk=)

10/14/2011 08:17 AM  Top
MBC25
MBC25
 
Posts: 129
Member

Well the Hyperbarics place that I went to sees about 40% Lyme patients come through their doors, so they are VERY well versed in Lyme and the co-infections. They do not start treating you for Lyme until the co's are gone (or mostly gone), because they know that HBOT is only intended for Lyme itself.

They also don't allow you to do short "stints" of treatment, as they say it is ineffective. The way treatment works is 40 days of consecutive 60-90 minute sessions in the chambers, 5 days on, 2 days off.


10/14/2011 09:02 AM  Top
steelers
Posts: 885
Member

i did 100 sessions it helps but the coil machine is the silver bullet

10/14/2011 09:52 AM  Top
MBC25
MBC25
 
Posts: 129
Member

Did you do 100 sessions at a HBOT center?

10/14/2011 09:57 AM  Top
steelers
Posts: 885
Member

yes

10/14/2011 10:11 AM  Top
MBC25
MBC25
 
Posts: 129
Member

Do you think it is worth the money? Insurance won't cover it for Lyme treatment, and it will be about $8500-$10k out of pocket at the places in California that are well versed in treating Lyme...

10/14/2011 12:10 PM  Top
waxby
waxbyPosts: 4124
VIP Member

~~~Hello MBC,

~~~I did about 85 dives and I don't feel that Lymewise it helped me. But that is just me.

~~~I think that if you are going to spend that kind of money you should contact dozens of their patients and ask what their condition was before treatment, how long they were ill before treatment, and how they felt about it after treatment.

~~~$10,000 is a lot of money to spend on an iffy at best therapy if you cannot afford the loss.

~~~HBOT is like all other effective treatments and combination therapies. Some work for some and not for most.

~~~As we all know, even cat poop has worked for someone.

``` Mitchell ```

~~ "The way to 'Heaven' is to bring it with you ..." -Mitchell
~~ "Sometimes, we gotta go through hell to get to 'Heaven'" -Mitchell
~~ "The way out is in" -Mitchell
~~ "A miracle speaks ...'I don't believe in Miracles.' " -Mitchell
~~ "Life is good, even when it isn't." -Mitchell
~~ "Sometimes you gotta lose to win." -Mitchell
~~ "It's easy when it's easy! Find reason, purpose and meaning when it's hard!" -Mitchell
~~ "If you're gonna think, think again!" -Mitchell
~~ "Make it so!" ...
~~ “When life do what it do, as it do-do, simply say ‘Of Course!’ (to soften life’s ‘blows’)” - Mitchell
~~ A master once said, "When embarking on the spiritual path, 'Oh Dear! There's no turning back! You've really done it now!' "
~~ “Not thoughts be your guide, rather, guide your thoughts.” -Mitchell
~~ "That which is within, and that energy entering this body/mind/spirit, causing harm and ill health, must and will be transformed into love healing energy and sent out in every direction" -Mitchell
~~ One morning ten years ago I awoke from a dream chanting over again and again, and writing this down so as not to forget ... "It doesn't matter who did what, there's nowhere else to go but up ..." -Mitchell
~~ "This life, our life, and what we do with it on this planet is “simply” a display, a reflection, of what is going on in our consciousness. The proof is in the puddin’. Look at our planet, what humans are doing to it, and with it, and to one another, and ask yourself ... ~ 'How’s this working for us/me?' ” -Mitchell
~~ "Step away from monkey mind, not tangle ... Observe ... Inhabit your higher self ..." -Mitchell
~~ "Anything is possible, but manythings you think are true, are not ... " -Mitchell
~~ "Grow where you are planted ..." -Mitchell
~~ "Change your future now ..." -Mitchell
~~ “Write your equation … 4 u r the sum of u … “ -Mitchell
~~ “We are largely a product of our environments … how’s your inner environment doing? …” -Mitchell

Previous discussions I participated in:
Not suppose to have emotions?
ALS
Activated Charcoal

10/14/2011 01:09 PM  Top
steelers
Posts: 885
Member

my insurance company paid for mine but to answer your question save your money and buy a coil machine
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