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Lyme Disease ForumsGeneral & SupportGoing to see a LLMD...
10/04/2011 08:47 AM
Explodo
Posts: 42
Member

...and now I've got reservations. The cost of care is going to kill me as sure as the disease. The office visits are not covered by insurance, but it seems prescriptions are. I am completely up to my neck already in medical bills...This is going to break us. So now I'm in the quandry of let the lyme do its work on you or face bankruptcy...I'm madder than a bag of cut snakes about this choice

The doc called last night told me they couldn't see new patients until 2/2012 and asked about 30 minutes worth of questions about my physical condition. After we spoke, she said I really needed to be seem pronto and told me to call the nurse this morning. Needless to say I see the doc on Friday.

So I guess I'm wondering how this is going to go...Anyone have experience with this kind of event?

I'm quite worried to get that kind of reaction from a doctor (You know...We really need to get on this quick)

Do they all react like this?

Are scams common in the lyme treatment community?

What am I missing?

Reply

10/04/2011 09:32 AM  Top
wlkthlne
wlkthlne
 
Posts: 1605
Senior Member

Yeah, it's called screening. It's sad, it's my feeling they have to do that. There are not enough LLMD's out there to handle the epidemic.

So they try to weed out those who "think" they got Lyme and by the servirity of the symptoms.....this is my guess......

It's so not right? Well, lets think about this another way..how about those 7 doctors that I went to with a tick I pulled off of me that tested possitive???( I had to pull their teeth to test the tick)

Those Doc's as plain as day made it clear to me they will only give 14 days of Doxy and anything else is a "special case" and must be treated seperatly by symptom and not the cause......

Now if those 7 doctors where "on board" and not in bed with the CDC and IDSA....that would be 7 more doctors to help treat Lyme and Co. patients?

Explo...I'm sorry of your situation, but glad you are in to get treatment.

wlk--Cool

Anything I post or respond to comes from a Lyme and Bart victim himself. I am NOT a doctor. I do my own research for ME...I may share my findings and will post them. They are for general talk and vent...If a group leader feels the info is worth saving somewhere, they are more than welcome to do with it as they like. Wlk=)

10/04/2011 12:56 PM  Top
lymeinmich
 
Posts: 1074
Member

I feel that LLMD's can be trusted. Not many Dr. want to even treat this. It is a risk for them.

Seems that many are doing this because they feel compelled to help for one reason or another.

I think it would be easier for them to make $ in any other practice. My LLMD was a family practice MD. His wife and 2 of his children had LD. That is why he does this.

I have heard similar stories about other LLMD's.

Scams exist I'm sure, but I am more leery of quick fix meds and protocols from clinic and non MDs.

My LLMD does not take insurance, however he gives me the paperwork to submit it myself. I get reimbursed from BCBS.


10/04/2011 02:49 PM  Top
irenwill
irenwill
 
Posts: 1849
VIP Member

Explodo -- please make your financial situation known to your doc. He or she may be able to offer cheaper alternatives, etc. Also, there are links on the forum about different ways to pay for your care.

Personally, I think you are kind of lucky that you were brought to the front of the line, so to speak. If the doc thought you were sick enough to do that, you're facing serious effects from this disease.

Hopefully you can take in whatever forms your insurance company needs and get reimbursed. If not I will send positive thoughts hoping that you are able to find a way through the financial mire.

It's your future and it's worth it. The good days (once you have them) will show you that treatment is worth pursuing.

I am not a doctor, just a patient striving for recovery and hoping to offer support to others, too! Many blessings to you!

Any information offered is just sharing my experience and friendly advice, NOT a prescription. You should use your own judgment and discretion when making health care decisions.

10/04/2011 03:26 PM  Top
Bettyg
 
Posts: 26472
VIP Member
I'm an Advocate

you asked me a question earlier today, i'm going to answer it here for you/others to learn from ok.

"I'm having a little trouble understanding the way I pay for all of this in that I have to pay her 150/hr, but...I can submit the reciepts to Blue Cross and they will re-emburse 80% of that.

Then the presrciptions she reccommends are covered by insurance. So I'm a little scared of the whole situation..."

1st, you are fortunate it's only $150/hr; many are around $500 - $1800/hr. for specialists out of pocket. so you have that going for you ok.

DOCUMENT all conversations you have with bcbs...date, time, WHO YOU TALKED TO AND EXACTLY WHAT THEY SAY..WORD FOR WORD; they can wait for you as you write or TYPE THIS AS THEY SPEAK! FILE/SAVE IN SAFE PLACE!! you may need this info later to file APPEALS.

bcbs lied to me over and over when i started this whole ordeal. i had 50-60 phone calls; they said i didn't have to do anything; they lied over/over and DENIED paying anythign.

i went thru appeals system and got iowa's insurance commissioner attorney involved; he got a little more out of bcbs, but they would NOT approve my $5,000 out of pocket for appts, lab tests, etc.

explodo, i am NOT trying to scare you even more than you are now; i want you to have yoru eyes open to PROTECT YOURSELF ok.

MAKE COPIES OF ALL RECEIPTS, ALL PAPERWORK YOU PREPARE, AND SEND THESE BY CERTIFIED RETURN RECEIPT so someone has to sign for these that they RECEIVED them. they lose things over and over in their systems.

in my WELCOME LETTER at top of support forum, go down looking for FINANCIAL BURDENS LINK; 26+ pages of detailed info/links. i suggest you print this off so when you try something, you can check it off so you don't duplicate your efforts.

look for a STICKY/PUSH PIN ON LYME-TAP also; that's funding where someone recently posted they got hundreds of dollars that went to pay majority of bill.

you're in my thoughts/prayers/hugs to you.

bettyg, llmd coordinator, group leader, iowa activist

BettyG, IOWA ACTIVIST
RETIRED llmd coordinator of 6 yrs; group leader

NOTE: I DO "NOT" USE CHAT thanks!
**************************************

NO INFORMATION SHOULD BE CONSIDERED MEDICAL ADVICE.
please see my WELCOME LETTER/BEGINNER'S LINKS with important links/info galore :)

http://www.mdjunction.com/forums/lyme-disease-support-forums/general-support/2356916-bettygs-welcome-letter-wgood-beginner-links-

Any information provided should not be used to take the place of advice from your personal physician or other professional.

Information on those sites is the opinion of those who publish the sites and is NOT necessarily that of BettyG.

43 yrs. chronic lyme; 35 yrs. misdiagnosed by 40-50 drs. unacceptable; see my profile for more.
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