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"When I was diagnosed I was scared didn't know what to do or where to go..I started reserching bipolar and somehow ended up here at MD....Again scared but needing to know what was in store I asked a question..WOW the people who care..I know I would be lost now if I did not join..made many friends and they have helped me through thick and thin. and never judged...........XX Thank you MD and all.Love all of you.......Laurie Pachin" (puppylover)
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03/21/2008 15:03
Clayton72
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Ok Fin, I will be happy to end this posting and will pm you.

Now, people can stay on topic about the documentary ----

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03/21/2008 16:59
jaime1978
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I have one thing to say here. NOBODY knows EVERYTHING there is to know about lyme, not even the doctors. I believe many of us know more than some doctor out there, as we have researched the heck out of this disease, as it's our lives. We are all entitled to our opinions and research. And I don't think anyone is ignorant enough to take what one person says as the "golden rule" and just stand by it. I'm sure they will do thier own research on something they find interesting that is mentioned.

Here at MDJ we love having many opinions, but nicely. This is not a place like lymenet where attitudes fly around. IT's just not tolerated. We consider ourselves more like an onlince family, honestly trying to help eachother. Some of us choose alternative (by the way I have seen many of my people here get well from alternative treatments alone), some of us choose antibiotics only, and still some of us, like me do a mixture of both. The one thing we all agree on is we must build up our immune systems so they can help us fight this , because it's usually not just lyme we are fighting, lyme opens the door to many things, parasites, systemic candida, co infections, activated viruses, etc. I don't believe peopel have to always site where they found thier information, although it can be helpful. And I am the moderator here, if I find it appropriate for a site to be mentioned, I will do so, as well as in others posts, if I feel someone is putting a site in for a selfish "plug" I will delete it. But if the site is included to genuinly help someone, then I will allow it.

End of discussion on this thread about this. I have several threads about how we act here, and what is tolerated. As I said, we are a family here. We genuinly care about eachother, many of us have even spoke on the phone. This site is not like several out there (I can think of 3 right off the bat) who are really just there to let thier lyme rage out.

If you have any more questions regarding this, please pm me privately. Thank you.

Please do not take anything I say as medical advice. I am not a doctor.

~lyme disease support group leader~
please pm me with any special concerns
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03/21/2008 17:13
fin24

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TURN THE CORNER FOUNDATION and OPEN EYE PICTURES

proudly present a community premier and launch party of

UNDER OUR SKIN

Monday May 12, 2008

6-9 PM

the Times center

New York City

for information and about tickets go to www.turnthecorner,org

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03/22/2008 05:33
Julie4848
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DITTO to what Jamie just said. I have not time for who said what and why. What works for one may not work for another. I left a board because I would not take years and years of abx and they hit me hard with emails.

We are here for support...I have no time for anything else in my life at the moment.

So Ditto to Jamie

Julie

Lyme will not win, we will and we WILL…

Popular posts by Julie4848
    Merry Christmas
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03/22/2008 11:42
ConnieD
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Amen. I like this website because I could feel the pure intentions of the members on this site. I like it that way.
Please do not take anything I say as medical advice. I am not a doctor.

Open your mind to the possibilities available to you.

An attitude of gratitude is good 'medicine,' too.

~Lyme Disease Support Group Leader~
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03/22/2008 11:43
tomakin
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@tina.r

long term antibiotic therapy, especially with strong doses will always lead to serious side effects. Keep in mind, that in ABX doses of antibiotics are sometimes 10 times higher. Metronidazole (and other similar like Tinidazole) cause damage to brain, always. Its only question how hard it will strike. Every tetracycline group antibiotics (including doxycycline) always cause damage to calcium resources in bones, which result in osteoporosis - and again, question is if it will be serious damage or not. All of them cause damage to liver, reversible one but it take years to recover. They always cause damage to immune system, in most cases reversible too - but not always. So, if you have any choice - do NOT take ABX. It will smash your own body together with bacteria. Sure it helps and in most cases cure patient from Lyme, but price is always high. Even if today one who take ABX don't feel any side effects, osteoporosis might appear after 10 years, same for brain damages - they don't matter so much unless patient is old and need every brain cell to work properly.

So, back to topic - I know personally alot of vegans with ruined health, even on organic food, because they don't know how to eat healthy. For example, pure vegan diet do not have B12 vitamin, iodine, there might be problems with proteins. Its important to choose fats wisely, to balance omega 3 and omega 6, its not that easy just on organic food.

But once again, as once Max Gerson did with "uncurable" tuberculosis - if natural immune system of patient is returned to optimal state, bacteria have no chance.

Sure antibiotics helps alot, but they NEVER kill every single bacteria inside our body. Always some survive. Either our white blood cells kill these few, or we will be sick again in few months or years.

And this is what I missed in this movie.

BTW - in Czech Republic they found vaccine for Lyme, its in last state of development right now.

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03/22/2008 12:10
fin24

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one more time to quote Jaime:

[End of discussion on this thread about this]

TURN THE CORNER FOUNDATION and OPEN EYE PICTURES

proudly present a community premier and launch party of

UNDER OUR SKIN

Monday May 12, 2008

6-9 PM

the Times center

New York City

for information and about tickets go to www.turnthecorner,org

WORLD premier at Tribeca film festival April 26th and it cannot be shown until then so other than a brief few seconds/min of a trailer or marketing ad for it NO one other than those involved with the film has seen the whole thing!!

It's descriptions are of a balanced film showing both the sides of IDS camp ( 3 week illness all are cured or then suffer another condition sometimes called "post lyme syndrome") and those who feel that SOMETIMES TBDs can go persistent or chronic or need more individualized and longer tx ( NOT just with abx).

In an era when information needs to be shared, this film makes an attempt to drag off the dark veils of conflicts of interest surrounding TBDs and bring all out into the light.

Who can argue with that??

Finette

Post edited by: fin24, at: 03/22/2008 14:12

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03/22/2008 14:20
jaime1978
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Tomakin~please start a new thread dealing with what you are talking about. Don't add new topics to an already started thread. But since you have stated about the abx destroying things in your body, I must also point out that lyme is EVERYWHERE in your body, your heart, your ligaments, your brain, your bones, your cartilage, nowhere is safe. I am of the position of taking some antibiotics, while trying to build up the immune system as well as one can, and then go natural. END OF DISCUSSION ON THAT IN THIS THREAD.

I think Under our Skin is a wonderful thing, even if everyting in it isn't correct, it's still going to draw much needed attention to lyme disease, its going to give us a voice. (kinda like the AIDS movement, when Majic Johnson got AIDS, it gave AIDS a voice) as far as I'm concerned, anything to get the word out there about LD is wonderful. And I'm sure most people are pretty smart and can research things they question. I am self educated about lyme disease and now am a moderator on this forum. I do not know everything, nor do I pretend to, but nobody does, not even the doctors, there's always more to learn. So reeearch, research research.

Please do not take anything I say as medical advice. I am not a doctor.

~lyme disease support group leader~
please pm me with any special concerns
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