Lyme Disease Support Group

I am already Igenex positive, CDC negative, and have been on lyme treatment for 11 months. Doing better but not yet well.

Any other thoughts? Suggestions? Things to think about?

Thanks!

Post edited by: threeofus, at: 08/15/2011 07:42 PM

Even if they say they will, you might have to pay for it yourself and send it to IgeneX to get reliable results. Might want to call them and find out what they recommend, since they are the Lyme gold standard.

I'm just wondering if ovarian cysts/tumors are part of Lyme symptoms. I had both during the period when my hormones & thyroid started whacking out, and when my migraines started.

Any other women with Lyme who have had ovarian cysts/tumors around the time they started showing symptoms?

I really think that period of time and collection of symptoms mark the beginning of chronic lyme disease symptoms for me.

Thanks for the igenex suggestion, I will call them and see what they think. I will update what I hear from them and also what my doc/hospital says.

I don't see a price list on their website so I don't know how much the test costs but I don't know if it's really necessary at this point.

I'd just really like to have as much info as possible and it seems like a waste to not test it for everything possible.

Post edited by: Bettyg, at: 08/23/2011 10:07 PM

you are right it might be detected in cyst

how did it turn out?

That said, when they did the surgery, they found out it was not on the ovary but attached to the pelvic wall. They had no idea what it was. Regular biopsy showed it was benign but they still don't know what it was.

I will always wonder if it was something to do with lyme but I think getting the biopsy would have only told me whether or not I have lyme, not what the cyst was.

The surgery recovery was harder than I expected but it's been a month now and I'm in really good shape.