Lyme Disease Support Group

Also, I went to a Mommy and Me group last wrk and when I talked about Lyme you could have heard crickets. Just the 'deer in the headlights' look.

These things are hurtful and I feel so dirty and gross sometimes. I didn't chose for the damn tick, or whatever the he'll it was, to bite me. We really need to educate, fellow Lyme sufferer's.

Anyone else have any similar situations?? Somehow I'm sure I'm not the only one.

This pandemic of Lyme only seems to be growing. As awareness increases I think a general panic of some proportion will eventually happen.

My feeling is that Lyme is likely more contagious than the CDC and mainstream doctors believe. I don't want to panic people or be treated like a leper, so I feel it's best not to disclose my condition to most people.

I also try very hard to protect others by making sure they don't come into contact with my tears, saliva, blood, etc. I don't share drinks with people, and I'm really meticulous about hygiene when I cook for others. My life partner is almost certainly infected also, but we have both had symptoms since before we met, so I don't think she got it from me nor I from her. I've asked her to get tested, but she refuses. Still, I try to protect her as best I can from my bodily fluids.

I'm sorry you were treated in a way that made you feel dirty and gross.

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I agree with this... while I wont avoid anyone... you'd better bet I soak myself in insect spray to try to prevent any biting things from biting me and getting someone else with this crap. I wont drink after anyone else either.

Im insanely hesitant about the idea of kissing someone... even rather scared. Id feel so horrible to give this to anyone, let alone someone I cared about. Im not taking my cat with me from home when I move either... He's staying with my parents where he's been for a year now anyway. I dont want my roomie getting bitten by infected fleas and Im cautious of even living with her if mosquitoes bite me in my sleep and find her next!

UGH, its terrifying.

Lyme acts and behaves like syphillus (not saying we have that or any other STD). Syphillus and Lyme both have spirochete shape and drill into muscles, joints, and other tissue. A spirochete looks like a watch spring stretched out. Both diseases can hide and morph their DNA in order to look like some else to avoid the antibiotics.

They morph because the antibiotic looks for certain RNA (newly produced DNA cells looking for another to connect with). DNA looks like a bike chain but have to connect up with certain proteins each time. RNA is only one side of that bike chain. Meds look for newly produced cells because they are easy to hit! Thus we switch meds a lot and use cyst busters to take apart groups of cells and make them smaller.

It is considerably harder for meds to try to replace certain proteins in an already connected whole chain. There are some meds that are able to separate the two sides of the chain not sure which ones those are for Lyme though.

So in conclusion only a few hundred diseases can rewrite their own DNA with new parts! All create new cells by copying the original cells, not all can rewrite the chain with new parts. So this allows STDs to move from body to body because they can rewrite their chain to fit the new body.

Your post just connected all of this for me. I had not put two and two together yet - brain fog preventing me from connecting new material to prior knowledge. Sorry if this is too technical. Others would say I simplify it too much and marred the process. Oh well this site is meant for the lay person!

I haven't had any problems with ppl treating me like that, but I do know they are sick of hearing about it!

My grandmother had Lupus and died at 46, my mother has issues that lead me to believe she may have Lyme & my Aunt & I both have it.

My mom gets angry with me if I try to tell her anything about her... but I never thought about avoiding certain situations in as much detail, but I will now!

It makes sense that it could/is spread this easy. I wouldn't want to be looked at like I have the plague but I also understand if ppl get worried, look at the HELL we live with!

I hate to admit it but I would be like that if I knew someone had hiv/aids NOT because I want to hurt anyone but because it scares me! And right fully so with the Lyme too, this crap is scary stuff!

I am sorry too because it must hurt to be treated like that & I am sure at some time we will mostly all go through it to some extent, Glad I foend this place to have ppl who understand!

My daughter is a nurse, and she was taught that it can be passed by bodily fluids.

I have read here about people having it in their mouths.

My LLMD says that once abx is started it is UNLIKELY to find it in your bodily fluids.

I have had that deer in the headlight look from people too.

It may be that because 3 in your family have it, he thought it was extremely contagious??

Thank you all for the comments!

Hugs...ur, air hugs!

Post edited by: PosionIvy, at: 08/13/2011 08:28 PM

Post edited by: rowergirl2010, at: 08/13/2011 08:21 PM

If someone brings it up or if someone I know has symptoms & the Drs. can't figure anything out, then I'll give them info. After that, I've learned to drop it. Sometime people don't want to know the truth.