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Lyme Disease ForumsGeneral & SupportI need a little support, myself, guys
01/02/2009 03:04 AM
fluffyluggage
fluffyluggage  
Posts: 4723
VIP Member
I'm an Advocate

This is a little hard to write, to be honest. And I probably should write it in one or both of the forums in which I am group leader. But I guess a part of me feels that to show that kind of vulnerability is not the best thing when you are trying to grow a group. How childish is that, huh? I mean, seriously...

Anyway, I think those of you who've gotten to know me pretty well know I'm pretty darn good at dishing out the advice and the support, and I'm one of the first to pop in and say hey, welcome, and have a pretty happy demeanor. And I rarely ask for support or help of any kind. And when I do, I usually do it behind closed doors, in PM's, and away from the forums, cuz it's not positive, it's not the happy-go-lucky me that I'm used to having people see out here in the big, bad world.

But, the last week has been pretty rough. I've not been sleeping well, I've only just now put it all together. At first, I thought it was a fluke that I didn't sleep for over 24 hours. It was Christmas Eve, perhaps it was the excitement, ya know? But, I managed a couple of hours in a nap, and then I slept a good 10-hour nightly sleep. What's strange about that? Well, for starters, I normally sleep 10-13 hours at night. But I've been sleep deprived for weeks on end leading up to Christmas. Course, my Lyme brain hasn't been functioning too well, and it didn't really notice for a while.

Then, next clue, I stayed up all night the night before New Years' Eve, till about 11 am, then slept only about 6 hours... I've been Herxing and in so much pain that I even sorta pushed that out of my mind and figured well, I got too stimulated by this game I was playing. That's really about impossible for me to do, but who's taking notes here?

So, I may have napped just a little while New Years' Eve, but I don't really remember. I did ok, I think, given the circumstances. And I slept about 6 or 7 hours overnight. Then on New Years' came the crash. I knew I didn't feel good when I got up. I ate very little for breakfast and just felt exhausted. I slept almost all day, didn't socialize with my family hardly at all, tho we were there all day, but I had some dinner, tho it wasn't much that I ate. I felt sick, too. And that's the kicker. I get nauseated with a Herx, big-time, but this was different. Stomach cramps, gas, and other symptoms, not anything related to the Herx I normally have, not just the pain, but intense pain, too. Things were very different, and it just didn't feel like a Herx.

So when I discussed it with my family, I hear that other people they know have had viruses. Well, duh! Ok, things make more sense now... I've probably been harboring it for a while, and with the lack of sleep, it just hit me and caught up with me. And now I'm feeling really bad. I feel wiped out and with no reserves whatsoever. I'm just now getting really sleepy to be able to sleep tonight, since I slept all day (and now it's 6 am, of course, but... oh well!), but I feel pretty crummy.

I think I've been able to fight a lot of it off because of the Vit C I've been pumping, but I think the stress of the holidays and everything I've been trying to do just really caught up with me! Urgh.

But, if you could just help me out, send me a bit of support, some good energy, that kind of thing--it would be greatly appreciated. I'm in a SIGNIFICANT amount of pain, about a good 8 on the pain scale right now. I have only 1 vicodin left, and I'm desperately fighting taking it, as it's all I have, and I just might be at a 9 tomorrow, so I hate to take it... You guys have been all I knew here for 3 months, so it seemed most fitting to reach out to you rather than anyone else--I think you know me the best, and I think you understand the Lyme part of me, and that everything else stems out of this, so I think this is where I need to be tonight... This is where this post needs to have its home.

*hugs*

Jen

Just because it's impossible doesn't mean it can't happen.

I'm not a doc, so anything I say is my opinion only. Nothing I say is meant as offense, I offer what I can as help. I believe in educating myself on all my medical issues and being my own advocate, for no one else with do that on my behalf. I recommend we all do the same!

The definition of insanity is doing the same thing over and over again and expecting different results. Perhaps I truly am insane for expecting these docs to listen to me when I say the same things repeatedly to no avail? LOL. I am tired of seeking out new docs and getting the same result time and again...Forgive me if I seem bitter some days.

Something has changed within me/Something is not the same/I'm through with playing by/The rules of someone else's game/Too late for second-guessing/Too late to go back to sleep/It's time to trust my instincts/Close my eyes and leap...I'm through accepting limits/Cuz someone says they're so/Some things I can not change/But till I try I'll never know/Too long I've been afraid of/Losing love I guess I lost/Well if that's love/It comes at much too high a cost/I'd sooner buy Defying Gravity/Kiss me good-bye I'm Defying Gravity/I think I'll try Defying Gravity/And you won't bring me down...
--Defying Gravity (Glee Cast version)
Reply

01/02/2009 04:12 AM  Top
Julie4848

Fluffy:

A big hug to you...You are having a ruff time at the moment, vent away, my god we all need to from time to time...We can't always be positive as hard as we want to, at times we just can't...

When you are in pain, your body gets out of wack, and sleep is problem the best thing for you...Can you call the doctor and get more pain meds, explain to him the pain you are in.

You could have caught that bug I had a few weeks ago, it was awful, and the same thing happend to me, it lasted about 4 days....

I hope today is a better day for you....Rest as much as you can and I hope you are feeling better today.

Hugs

Julie


01/02/2009 05:28 AM  Top
cmany
cmany  
Posts: 6253
Group Leader
I'm an Advocate

Fluffers!!

Why didnt you say anything to me last night??? I know I was wallowing in my own misery...ya even managed me a light 'told ya so'...in your own way...

You now that I am here for you, no matter how I feel. You know if i could i would take your pain from you. Just hang in there babe. You have been through worse...just keep telling yourself that.

Call me when you get up. dont have too much to do today...

luvume Cool

Christine

[b]Group Leader Disclaimer[/b]
First and foremost - I am NOT a doctor, anything I share is based on experience & research. I strongly encourage you to discuss any and all information that I share with a health care provider.
************************
"I'm not afraid to take a stand
Everybody come take my hand
We'll walk this road together, through the storm
Whatever weather, cold or warm
Just let you know that, you're not alone
Holla if you feel that you've been down the same road...
And I just can't keep living this way
So starting today, I'm breaking out of this cage
I'm standing up, Imma face my demons
I'm manning up, Imma hold my ground
I've had enough, now I'm so fed up
Time to put my life back together right now" Eminem Not Afraid

01/02/2009 06:56 AM  Top
zoemajik
zoemajik  
Posts: 666
Member

((hugs)) Hope you got some rest and are feeling better! Smile

Valerie

Valerie, Lymphedema group leader and Lyme patient.

I am not a health-care professional. Information and experiences I share should be regarded as such, and are not intended to take the place of medical advice from your doctor.

01/02/2009 07:04 AM  Top
sciteacher
sciteacher  
Posts: 447
Member

I'm sorry are feeling so bad. Get some rest and try to take it easy. You're in my prayers
I can do all things through Christ who strengthens me. Phillipians 4:13
_________________

Take time each day to laugh, even if its at yourself. :P
_________________

We should seize every opportunity to give encouragement. Encouragement is oxygen for the soul. --George M. Adams
_________________

Life is not a problem to be solved, but a gift to be enjoyed. --Joseph P. Dooley

Previous discussions I participated in:
Mystery Diagnosis
Happy New Years
Twitching

01/02/2009 09:13 AM  Top
smileanyway
smileanyway  
Posts: 637
Member

Hey, Fluffy.

Sorry to hear that your feeling like crap. Have you tried something like melatonin? When I can't sleep I grab my fluffy, fuzzy, blanket, a good book, chamomeal tea, and pop some melatonin. It usauly does the trick. As for the pain, gosh I wish I had the answere to that myself. My neck has been killing me. I'll be paying for you. Love You


01/02/2009 11:19 AM  Top
pammie
 
Posts: 630
Member

Hey Fluff,

We're here for you. I know you must be feeling really bad. Haven't seen you on here in a while. I hope you feel better soon.

There's a tea, sleepytime tea. I'm not sure who it's by. I'm out right now, have to get more. You should be able to find in local grocery. It has really helped me. Sleeping and resting is so important and if you can't, it's frustrating and can make other things pop up and make it worse. And the pain, well, can you get more pain meds from your doc? I hope so especially since you're in that much pain.

If there's anything we can do, let us know. I'm praying for you. Hope you feel better soon.

Lots of hugs,

Pam

Pam

"I am NOT a doctor and only offer advice".

I agree with and live my life by the following quotes:

"Do unto others as you would have them do unto you"

AND

"Love your neighbor as yourself"

01/02/2009 11:29 AM  Top
mict55
mict55  
Posts: 114
Member

Fluffy,

I am so sad that you are feeling like crap.

I am keeping you in my prayers that you get to feeling better and can sleep.

Remember to take care of yourself as well as all the others you help and encourage.

ChrisSmile

Post edited by: mict55, at: 01/02/2009 11:30


Previous discussions I participated in:
Prayer regeust!!!!!
Zithromax?
Twitching

01/02/2009 12:34 PM  Top
Julie4848

Fluffy: How are you today??? I'm thinking about you....

01/02/2009 02:05 PM  Top
fluffyluggage
fluffyluggage  
Posts: 4723
VIP Member
I'm an Advocate

Thank you all so much! I really needed that, big-time! Smile *hugs* to you all, for helping me out. Christine, you needed your own help, I wasn't going to butt in on it and make you feel like you needed to get in on it for me, not then... This is enough for me, and you helped me today! Smile

Today, I am feeling a little better, I slept decent, got at least a good 7 hours, and it was pretty much straight, which is unusual lately, I haven't been getting that much sleep at a time in a while. And it was also good sleep, not restless or rough. I slept really hard on my right arm, and the pain is still very high, probably still a good 7 on the pain scale, but at least not an 8.

I did call the doctor's office today, but they close at noon on Friday's so I'm kinda screwed till the first of next week. That does totally suck for me, but I'll call Monday, and see what I can get. I'm kinda glad I held off on taking the vicodin, cuz I may yet need it over the rest of the weekend.

Anyway, thank you all for the support, I really needed it! Smile

*hugs*

Jen

Just because it's impossible doesn't mean it can't happen.

I'm not a doc, so anything I say is my opinion only. Nothing I say is meant as offense, I offer what I can as help. I believe in educating myself on all my medical issues and being my own advocate, for no one else with do that on my behalf. I recommend we all do the same!

The definition of insanity is doing the same thing over and over again and expecting different results. Perhaps I truly am insane for expecting these docs to listen to me when I say the same things repeatedly to no avail? LOL. I am tired of seeking out new docs and getting the same result time and again...Forgive me if I seem bitter some days.

Something has changed within me/Something is not the same/I'm through with playing by/The rules of someone else's game/Too late for second-guessing/Too late to go back to sleep/It's time to trust my instincts/Close my eyes and leap...I'm through accepting limits/Cuz someone says they're so/Some things I can not change/But till I try I'll never know/Too long I've been afraid of/Losing love I guess I lost/Well if that's love/It comes at much too high a cost/I'd sooner buy Defying Gravity/Kiss me good-bye I'm Defying Gravity/I think I'll try Defying Gravity/And you won't bring me down...
--Defying Gravity (Glee Cast version)
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