Lyme Disease Support Group

Little background:

I have been sick since June 2010 when I got bit. I have done IV, IM, and oral abx. I found the IM Bicillin the most helpful. I stopped treatment around June 24th. 11 months straight of abx.

My main symptoms now are fatigue. I just do a lot less. I work, cook etc but I am more tired than I used to be, I need to rest and sit more. I still get a strange feeling in my toes and fingers and waves of exhaustion, and a "lyme headache" every two weeks, instead of everyday.

So my question is: what would you do? I am curious about other people's opinions. My LLMD is okay with a break for now. My Neuro & GP think my disease is done and what is left is an autoimmune response. I have come a long long way. I was living with intense horrible 24/7 pain and could not even get out of bed many days. I am in little pain now, but very tired.

I think something is stll wrong, with me. Maybe the Bart is not treated yet.

Any thoughts and opinions would be great.

Post edited by: lband31, at: 07/28/2011 02:18 PM

Our whole family had lyme, and many other co infections. We had been using these products and helping others with it but in February a new product came out that helps heal the mitochondria.

http://brainfoodscience.blogspot.com/

I put this on a blog so as to help others understand how this can help you.

I recently worked with a family of five with chronic lyme, on IV's for years and when they started this they felt great. They are off their IV's. Their doctors are now looking into this. Just the beginning will share more as things happen with this.

Would share more specifics if anyone wants to learn. Let me know if I can answer and questions. Hope this helps.

God Bless,

Stephanie

I was infected last August.

So far my fatigue is 99% gone, I only have a rare wave of exhaustion, I have some stabbing pain in one of my joints, and I did not have my two week flare this week.

I personally can understand a medicine break.

Personally, I think you have the potential for more recovery once you are ready to continue treatment.

How long did you go without any antibiotics from the time of your infection to before you got proper treatment?

Have you had a saliva test done? Lyme is known for messing with the adrenals. For me, I would HAVE to sit down or it felt like I would just fall over. I cannot even stand and cut up veggies anymore. Need to sit at the table and do it.

I believe babesia can cause excessive fatigue.

Bart is very difficult to get rid off from what I hear. I'm struggling with it right now and it is my main problem. I do notice that my bart symptoms seem to flare on 7 and 14 day cycles.

Those were some of the last things to go for me too...

I started out with an adrenal support product - helped a lot...

But when I got on Maca - which is a wholefood supplement - I proceeded to enter remission for the first time in 30 years...Maca nurishes the ENTIRE endocrine system - but really helps the pituitary, thyroid and adrenals...

PM me and I can give you the run down on what I take to maintain my health...

And yes - residual effects from Lyme...much can be reversed...but it seems I now have permanent IBS. My nerve issues have nearly fully recovered...was heading down the road of Neuropathy...no more now...

Christine

I have had a whole spectrum of tests recently from SPECT, CT, MRI of the brain to endoscopy, colonospcy, and all tests point to remission or no problems...I know something is lingering.

I have heard the IBS like issues can take a year after abx stop.

~~~Re your "My Neuro & GP think my disease is done and what is left is an autoimmune response."

~~~Please pardon my blunt instrument here, but, when it comes to Lyme Complex Disease, Ignore your Neuro and GP, they cannot possibly know that.

~~~from my straight jacket~~~out on a limb~~~lookin like a cocoon~~~hangin by a thread ~~~waitin for a butterfly~~~under the moon~~~Lovey-Dovey~~~Mitchell