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Lyme Disease ForumsGeneral & SupportHome from SF, saw the LLMD
07/21/2011 11:32 AM
Brandiann78
 
Posts: 92
Member

Just a quick update, things have been crazy and I haven't been on in a while.

So, we made it home last night... or should I saw early this morning, from our rapid turn around trip to see the LLMD.

I went fully prepared with all of my medical records in a binder and tabbed by test and date. I also had a typed time line and list of symptoms etc.

He loved it! Smile Said I was making his job easy. After talking for about 20 minutes or so, he said that he did not need test results, he's sure that I have Lyme.

He ordered a Lyme panel and full co-infection panel and we've scheduled a phone consult for three weeks out.

He gave me a Rx for Doxy and told me to order Samento and Banderol. Gave me some good probiotics and an order to get fish oil and vit D.

I'm relieved to have answers and begin a treatment regimen. I'm nervous, apprehensive, but relived.

I am so thankful for all of the help I have received from everyone here. Your information and support has helped get me on the right path!

All of the many, many, many hours of researching, questioning, and praying are paying off.

Post edited by: Brandiann78, at: 07/22/2011 06:11 PM

Reply

07/25/2011 02:34 AM  Top
Bettyg
 
Posts: 27280
VIP Member
I'm an Advocate

A+ for brandi Wink

this got buried; well done to our no. 1 student who prepared a binder and was already foryour 1st llmd visit!! kudos to you.

so glad your visit went well and thanks forthe update brandi Wink

keep up the good work. hugs/prayers

bettyg, iowa lyme leader/llmd coordinator/activist

BettyG, IOWA ACTIVIST
RETIRED llmd coordinator of 6 yrs; group leader

NOTE: I DO "NOT" USE CHAT thanks!
**************************************

NO INFORMATION SHOULD BE CONSIDERED MEDICAL ADVICE.
please see my WELCOME LETTER/BEGINNER'S LINKS with important links/info galore :)

http://www.mdjunction.com/forums/lyme-disease-support-forums/general-support/2356916-bettygs-welcome-letter-wgood-beginner-links-

Any information provided should not be used to take the place of advice from your personal physician or other professional.

Information on those sites is the opinion of those who publish the sites and is NOT necessarily that of BettyG.

43 yrs. chronic lyme; 35 yrs. misdiagnosed by 40-50 drs. unacceptable; see my profile for more.

07/25/2011 07:00 AM  Top
waxby
waxbyPosts: 4266
VIP Member

~~~Good news Brandi,

~~~Hopefully you have enough Doxy to appropriately ramp up to at least 200mg twice a day until you see him again.

~~~from my straight jacket~~~out on a limb~~~lookin like a cocoon~~~hangin by a thread~~~waitin for a butterfly~~~under the moon~~~Lovey-Dovey~~~Mitchell

Post edited by: waxby, at: 07/25/2011 07:08 AM

~~ "The way to 'Heaven' is to bring it with you ..." -Mitchell
~~ "Sometimes, we gotta go through hell to get to 'Heaven'" -Mitchell
~~ "The way out is in" -Mitchell
~~ "A miracle speaks ...'I don't believe in Miracles.' " -Mitchell
~~ "Life is good, even when it isn't." -Mitchell
~~ "Sometimes you gotta lose to win." -Mitchell
~~ "It's easy when it's easy! Find reason, purpose and meaning when it's hard!" -Mitchell
~~ "If you're gonna think, think again!" -Mitchell
~~ "Make it so!" ...
~~ “When life do what it do, as it do-do, simply say ‘Of Course!’ (to soften life’s ‘blows’)” - Mitchell
~~ A master once said, "When embarking on the spiritual path, 'Oh Dear! There's no turning back! You've really done it now!' "
~~ “Not thoughts be your guide, rather, guide your thoughts.” -Mitchell
~~ "That which is within, and that energy entering this body/mind/spirit, causing harm and ill health, must and will be transformed into love healing energy and sent out in every direction" -Mitchell
~~ One morning ten years ago I awoke from a dream chanting over again and again, and writing this down so as not to forget ... "It doesn't matter who did what, there's nowhere else to go but up ..." -Mitchell
~~ "This life, our life, and what we do with it on this planet is “simply” a display, a reflection, of what is going on in our consciousness. The proof is in the puddin’. Look at our planet, what humans are doing to it, and with it, and to one another, and ask yourself ... ~ 'How’s this working for us/me?' ” -Mitchell
~~ "Step away from monkey mind, not tangle ... Observe ... Inhabit your higher self ..." -Mitchell
~~ "Anything is possible, but manythings you think are true, are not ... " -Mitchell
~~ "Grow where you are planted ..." -Mitchell
~~ "Change your future now ..." -Mitchell
~~ “Write your equation … 4 u r the sum of u … “ -Mitchell
~~ “We are largely a product of our environments … how’s your inner environment doing? …” -Mitchell
~~ “We reveal ourselves to ourselves in everything we do … life is our mirror … howdoyoudo? …” –Mitchell

07/25/2011 09:08 AM  Top
Brandiann78
 
Posts: 92
Member

Thank you both. And yes I have a month of doxy, 400 mg a day. Thought it was funny that the pharmacist told my husband it was a 2 month supply! She didn't read the directions Smile

Hoping Samento and Banderol arrive soon. Can I put them both on the same 4 oz of water? Or do I need to do that separately? Also he said to begin with 2 drops each twice per day... How should I increase that, double it each day, or more slowly?

Thank you so much for the input and support!


07/25/2011 01:17 PM  Top
equestrian06
 
Posts: 381
Member

Most people use a single drop twice a day to start. And many have BAD reactions to that!

I would definitely try a single drop of one (day 1), then both the next day (day 2). And add another single drop of each the fourth day. And keep on.


07/26/2011 10:26 AM  Top
Brandiann78
 
Posts: 92
Member

I started the tinctures last night. So far, so good... I did get a little "loopy" last night and felt like I had a whole body sunburn for a little while.

But those didn't last too long, and weren't too bad. I took them again this morning, and it went ok.

I'm guessing if it's not causing me any major problems I can build up a little more quickly? IDK, this whole thing can get frustrating.

Tomorrow I go to Dallas with my mother for appt with the neurosurgeon, it will be my luck that I will have a bad reaction tomorrow... here's to hoping!


07/26/2011 10:37 AM  Top
kmk2010
kmk2010  
Posts: 16
New Member

Good luck!
I have tested positive for Lyme, babesiosis, and bartonella.

07/26/2011 11:13 AM  Top
Brandiann78
 
Posts: 92
Member

Thanks!
Reply

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