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07/09/2011 07:47 AM
summ11
 
Posts: 4
New Member

Are any of you feeling the dull ache in your heart that I do with Lyme. There are days where I question if I should go to the ER or not. That air hunger comes and goes but when the ache arrives, I get nervous....what is that and what are you all doing?

Post edited by: summ11, at: 07/09/2011 10:07 AM

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07/09/2011 11:02 AM  Top
singfreebird

I don't know what it is. It seems to resolve itself with treatment though, at least in my case.

The only thing I could do was stay calm and wait for it to pass. Sorry you have to deal with this Summ, it's scary.

Post edited by: singfreebird, at: 07/09/2011 11:02 AM


07/09/2011 12:07 PM  Top
summ11
 
Posts: 4
New Member

It's comforting to hear from someone who has been there! Thank you for responding. How long have you had Lyme? I was just diagnosed this week but have been feeling symptoms for over 6 months. Any advice?

Previous discussions I participated in:
Lyme LLMD for 36 male N.J.

07/09/2011 02:12 PM  Top
JJ351
JJ351  
Posts: 762
Senior Member

Hi Summ11,

I've experienced this from time to time as well. I've kept track of it in my diary and share with my LLMD/NP at appointments.

Seems to happen to me more at night and typically I am feeling pretty weak at the time...but it passes for me. Like singfreebird, I stay calm - anxiety will make

it worse...

JJ

- "Life isn't about waiting for the storm to pass.
It's about learning to DANCE in the rain!"

- "Sometimes the smallest step in the right direction ends up being the biggest step of your life. Tip toe if you must, but take the step."


I am not a doctor - my advice is purely my opinion which should be regarded as such.

07/09/2011 02:27 PM  Top
TammyK
TammyK  
Posts: 76
Member

Yeah, I think we've all had this. My heart gets very erratic and if I didn't feel it I wouldn't mind it. But I had a three day stretch where it was very irregular and very rapid. Dr finally increased my propanolol and that helped. But still have it on/off even with treatment.

I'm a nurse so I don't get to excited about much. Know that whatever symptom is flaring its ugly head will calm down within hours to a day or so.

Hang in there it does get better.


07/09/2011 05:52 PM  Top
summ11
 
Posts: 4
New Member

Thank you for your supportive words, I'm grateful for everything that doesn't hurt right now.

Previous discussions I participated in:
Lyme LLMD for 36 male N.J.

07/09/2011 07:58 PM  Top
RavenLunatic
RavenLunatic  
Posts: 2602
Group Leader

My LLMD told me this is caused by the bacteria thickening our blood & it is putting

pressure on our organs, esp. our heart. She told me to take the supplement, Hawthorn

root/berry. It thins your blood out & relieves the heart pressure/pain. I have been in

so much pain from this, it has brought me to tears. Every time I take the Hawthorn,

within an hr., the pain just disappears.

"My Disabling, Chronic Illness Is More Real Than Your Imaginary, Medical Expertise!!!"

07/10/2011 12:06 AM  Top
Bettyg
 
Posts: 27235
VIP Member
I'm an Advocate

welcome summ Wink

yes, we all tend to have some symptoms.

air hunger; have you been tested for sleep apnea? that's where you struggling to breath; a bad snorer;

youdo NOT get restorative sleep where you body can heal from injuries and you wake upfeeling like taking on the world?

many of us go thru that too. i would have never done this; but i have that too, but being overweight hasn't helped it either!!

didyou print off yet the 2 articles i suggested you do promptly from my welcomeletter?

dr. corson's 2 under lyme facts:

kids evaluations & headaches; BOTH DESCRIBING THE ENTIRE BODY and how each part is affected by which diseases.

hugs/prayers for better days ahead.

lucky you; only 6 months; so youare chronic by now. wished it would have been in the 1st month or s so your chances of being CURED would have been better.

bettyg, iowa leader/llmd coordinator/activist

BettyG, IOWA ACTIVIST
RETIRED llmd coordinator of 6 yrs; group leader

NOTE: I DO "NOT" USE CHAT thanks!
**************************************

NO INFORMATION SHOULD BE CONSIDERED MEDICAL ADVICE.
please see my WELCOME LETTER/BEGINNER'S LINKS with important links/info galore :)

http://www.mdjunction.com/forums/lyme-disease-support-forums/general-support/2356916-bettygs-welcome-letter-wgood-beginner-links-

Any information provided should not be used to take the place of advice from your personal physician or other professional.

Information on those sites is the opinion of those who publish the sites and is NOT necessarily that of BettyG.

43 yrs. chronic lyme; 35 yrs. misdiagnosed by 40-50 drs. unacceptable; see my profile for more.
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