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  "I've had Lyme Disease for about 10 years and it has progressed to my brain, but ..." (glohnn124)

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mabri"When I was diagnosed about 18 months ago with fibromyalgia, I didn't know where to turn. I got on my computer and looked for a support group where I could talk to other people with the same disease and get some help...Information, suggestions, mostly just what I can do now that I have this.....disorder/disease/syndrome...I didn't even know what to call it. I found MDJ, and yes, there was a support group for fibro. I started a post, and figured I would never get an answer. However, very quickly I was welcomed in, and became really involved in the group. I received help, support, friendship and the feeling of being truly cared about by these strangers who had become like family to me. Now, I have been here for about a year and a half...I have become a group leader, and love every minute of it. It is so wonderful to be able to help others. I still receive help and answers from the members in this group. The fibromyalgia is where I go to help, support, listen, care and even laugh. I don't know what I would do without this group." (mabri)

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Lyme Disease ForumsGeneral & SupportLyme Disease and symptoms
06/07/2007 11:13 AM
bottledsensations
bottledsensations  
Posts: 7
New Member

Hi Everyone. I have been sick for years, but just diagnoised with Lyme 3 months ago. Tomorrow I am going to the new Lyme Disease Specialty clinic at Stanford University Hospital to see a specialist and start getting treatment. I temporarly feel better with antibiotics, but not for long, and it hasn't knocked Lyme out of me yet. Apparently, I am in Stage 3 of the disease. I hope to find out more tomorrow. Wonderful news is that Stanford accepts insurance! Most LLMD's that I have found do not take insurance. Hopefully Stanford will be able to get Lyme's Disease on the map and those of us suffering from it won't have to feel so neglected. There are days that I am so tired I can't get out of bed, and this is apparently for no reason. My body hurts, and some days even just doing some small household chores makes me hurt like I have been run over by a truck. It always feels like I have a sinus infection. Most days I feel like I am looking out a window and watching the world go by. I use to be so active. Now, the thought of being active makes me tired. I get so frustrated with my body and myself. Fighting off the depression is a constant battle, not to mention not stressing out on trying not to stress, which activates my symptoms. My memory is left to be desired. Sometimes I can remember things so clearly, other times, I can't remember what I did 5 minutes ago. Is anyone else going through something like this??
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06/20/2007 12:27 PM  Top
csa
Posts: 1
New Member

I was diagnosed a week ago. I've been sick for ten years and I feel like I just looked in a mirror when I read yor post. I know exactly how you feel cause I feel exactly the same way. I'm extremely frustrated...I have so much ambition, but my body won't cooperate. I end up doing things anyway, but it can be very difficult at times. One of the hardest things for me is trying to explain how you feel to someone when your not having a good day and then they end up looking at you like your crazy! I have felt very alone in my problems until I found this forum. I wish you the best in your recovery!

06/20/2007 01:18 PM  Top
bottledsensations
bottledsensations  
Posts: 7
New Member

Hi! I understand completely. Today in fact is a hard day, physically and emotionally. You will have those days too I am sure. Some days it takes all my strength to fight off the depression. Today is one of those days. Working has been so difficult, and I lost my last job because I called in sick so often. Now the financial pressures are mounting....I feel ya. At least now you have a name to what you have been going through. That is where I find relief, knowing that I am not the only one. Keep smiling, and know that you are not alone!Tongue

06/30/2007 08:27 PM  Top
HerbalDoc
Posts: 13
New Member

You might want to check this out:

http://www.germslayer.net/


08/30/2007 09:42 PM  Top
speedybak
speedybak  
Posts: 9
Member

Welcome to the world of Lyme Disease. I just got the official results back and not only have Lyme Disease, but I also have Babesia Co-infection. I know exactly what you are going through. I first came down with Meningitis, and then was admitted to the hospital 3x after that for uncontrolled fever, nausea, vomiting, and fatigue. While watching "Mystery Diagnosis" on Discovery Health channel, a young man was profiled on the show and he was diagnosed with Lyme Disease. He described all of the symptoms I was experiencing, and I began to research Lyme Disease on the net. Despite my primary doc testing the antibody for Lyme Disease and was negative on that test, I sought a LLMD and had the Western Blot, Babesia FISH, and the CD-57 tests done; all of them tested positive for Lyme Disease and Babesia Co-infection. I don't actually recall seeing the typical rash nor did I ever see the tick itself, but my problems started about a week after my husband & I went camping in Roan Mountain State Park, TN. I was very active in the Reserve Unit of the local Sheriff's Dept as a reserve officer, worked FT, and was both a student and a assistant instructor in Taekwondo. Since coming down with the symptoms of Lyme Disease, I get fatigued just taking the dog for a walk around a short block, just taking a shower will fatigue me, I can't work a full 8 hour day, even though my job is a desk job, I get severe pain in various joints, I also get killer headaches that feel like someone just whacked me in the back of the head with a brick, along with transient fevers, nausea, vomiting. I've had to take medical leave from the reserves as well as Taekwondo. I live in NW FL and I travel 7 hours to see a LLMD in LA. Hopefully now that we have been properly diagnosed, we have accomplished the first step to recovery. I'm here if you need a sounding board. I wish you the best and keep me in informed of your progress.

Post edited by: speedybak, at: 09/11/2007 02:32


Previous discussions I participated in:
Losing another pain doc...(vent)
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