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 "Gastroparesis" (Renee1964)

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Lyme Disease Support Group

Lyme Disease Support Group

A community of patients, family members and friends dedicated to dealing with lyme disease, together.
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Lyme Disease Forums › General & Support › Need Direction
06/23/2011 07:57 AM
summertime1
 
Posts: 21
New Member
I suspect I have Lyme Disease. My doctor did a blood test and called to tell me it was negative. I have been taking 500mg of amoxicillin for an unexplained tooth flareup for a couple weeks before the blood test and today my upper back feels like a knife is in there. There is so much information and I am so confused. I can't find a Lyme Disease doctor in my area.

What additional test should I ask my PCP to run?

I pulled something out of my foot last October/November that I think now was a tick and my PCP said if it was that long ago and I had Lyme Disease it would show up in the blood test. Is this correct??

Thank you in advance for all your help!
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06/23/2011 09:12 AM  Top
jaime1978
jaime1978
 
Posts: 2399
VIP Member
I'm an Advocate
Hi there and thank you for posting! Well, the first and foremost thing about lyme , is that the tests are useless! Most primary docs are totally clueless about it, although some can be willing to work with you if you are educated, but then you're pretty much in charge of your own treatment.

If you pm me and let me know where you are located, and where you can travel to, I can get a list together for you.

In the fact section, there should still be stickied a lyme and co infection symptoms list, print that out and mark the ones you have or have had, you might be surprised, things you never thought of! That will be good to take to a llmd.

Warmest regards,

jaime

Please do not take anything I say as medical advice. I am not a doctor.

~lyme disease support group leader~
please pm me with any special concerns

06/24/2011 12:26 AM  Top
Bettyg
 
Posts: 26669
VIP Member
I'm an Advocate
summertime,

i sent you all of penn llmds 5-24; did you check your private messages left side forthem?

Dr. Bransfield' s Reason's for Seronegativity ( the reasons why you can test negative and still have Lyme disease

http://www.mentalhealthandillness.com/ seronegativelymedisease.html

bettyg, iowa leader

BettyG, IOWA ACTIVIST
RETIRED llmd coordinator of 6 yrs; group leader

NOTE: I DO "NOT" USE CHAT thanks!
**************************************

NO INFORMATION SHOULD BE CONSIDERED MEDICAL ADVICE.
please see my WELCOME LETTER/BEGINNER'S LINKS with important links/info galore :)

http://www.mdjunction.com/forums/lyme-disease-support-forums/general-support/2356916-bettygs-welcome-letter-wgood-beginner-links-

Any information provided should not be used to take the place of advice from your personal physician or other professional.

Information on those sites is the opinion of those who publish the sites and is NOT necessarily that of BettyG.

43 yrs. chronic lyme; 35 yrs. misdiagnosed by 40-50 drs. unacceptable; see my profile for more.

12/07/2011 07:02 PM  Top
kas021560
kas021560
 
Posts: 95
Member
This is a way late response to that post, but my fibromyalgia doc ran a CD57 and it costed a lot up front and was sent to igenix lab. Mine was 32 don't remember what the norms should be, but mine was low. They then did a DNA type test, the Western Blot, I think. It came back positive. With antibiotics over 2 weeks, you would feel feverish probably, run down like the flu. I had pretty bad joint pain, especially in my elbows.kas
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