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"I suffer from late diagnoises lyme and am currentlyunable to get treatment becau..." (ceri0466)

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Lyme Disease ForumsGeneral & SupportI think I need a new LLMD...
06/15/2011 06:25 PM
MBC25
MBC25
 
Posts: 129
Member

I haven't been on here in quite some time. I've been REALLY sick, but also am going through a split with my fiancee.

This now means I had to get another part time job, so now I will be working about 26-28 hours/week instead of 6-8 that I have been doing with my own business...

I'm so scared that I won't be able to do it.

It will be mostly behind a desk (I'm a dog behavior specialist, but the new job is an adoption counselor and program manager at the local Humane Society) so it should be physically easy and I will be in the cold air conditioning (the southern heat makes me get fevers and really bad flare ups!)

To add fuel to the fire, I'm now looking into moving and everything is a mess.

I live in GA and my doctor is Dr. S in California. I have been in treatment for 10 months and am still getting WORSE and developing new symptoms and having symptoms worsen.

I'm on the waitlist for Dr. J in D.C. but it won't be until August/September until I get in...

My doctor in CA is saying it is really difficult to treat me because of all my "unusual complications" but I can't move across the country again...moving within the town and the stress of breaking up with my fiancee of 4 years is stressful enough....

Does anyone have any suggestions? I'm losing hope and it's a slippery slope.

I have tried some herbal stuff and acupuncture along with the meds from my LLMD and just nothing works. I also have hyperactive pain receptors, so pain medications pretty much don't work on me.

It's just getting so hard....

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06/15/2011 08:18 PM  Top
beensLYMEd
beensLYMEd
 
Posts: 235
Member

Don't we all... I think that all the time... I think its because we just don't get well and life keeps demanding things of us and we can't physically or mentally handle it. My husband freaks out every month like clock work about how the house is or what I didn't get done that I used to be able to do. And then we settle down and remind ourselves that we don't have the control to help what is going thru my body. I don't understand if you live in GA how your DR is in CA. I lvie in VA. and know of a couple of DR's in northern VA. about 45 minutes west of DC. I am mad at my dr right now also. She was so cavalier about all the pain I was going thru told me to contact my primary care physcian or a pain clinic. UMMMM hello So ready to find someone else but will give it a few more months. how long have you been in treatment. ?

06/15/2011 08:24 PM  Top
toothfairy55
toothfairy55
 
Posts: 3856
Senior Member

MBC

Have you been tested for co-infections? often Babs will keep you from getting better. The testing for co-infections is often as inaccurate as the testing for Lyme.

Carol

I am NOT a doctor, anything I share is based on my experience & research. I encourage you to discuss any and all information that I share with a health care provider.

06/16/2011 05:35 AM  Top
MBC25
MBC25
 
Posts: 129
Member

Yes, I have two strains of Ehrlichia and Babesia...

My doctor is in CA because that is where I'm from, but I moved to GA for my fiancee, soon to be ex fiancee...


06/17/2011 01:04 PM  Top
singfreebird

I don't have any suggestions for you, MBC25. I just wanted to say sorry that you are going through a hard time in your life. Break-ups suck. Sad

06/17/2011 01:40 PM  Top
happymom3
 
Posts: 425
Member

My thoughts and prayers are with you! These tbds are so hard to handle. I feel awful all of the time and it is hard to do what needs to be done. My heart goes out to you .hang in there!

06/17/2011 02:38 PM  Top
steph12
 
Posts: 3
New Member

I am so sorry that you are going through this, I too had a messy break up with my ex. It was so stressful and when you are sick it just makes it almost unbearable. My thoughts and prayers are with you. I know of a Dr. L in Maryland that my sister goes to. We both have Lyme and co-infections however I live on Long Island and she lives in North Carolina. Try to take one day at a time, I know when I think of all of the things I should be doing and how I WANT to feel it can make me more sad. California is so far... my sister loves her Dr. so please let me know if you need some more info on that Dr. Hang in there!!! Ask for all the help you can get from friends, etc. I have just started to delegate chores to others because I couldn't handle it anymore. I just try to do a little everyday. I wish you better days in the future.

Previous discussions I participated in:
It's a lonely disease

06/17/2011 05:03 PM  Top
waxby
waxbyPosts: 4121
VIP Member

~~~Hello MBC,

~~~I have been following your excruciatingly diffcult story since you began here.

~~~How much can one human endure?

~~~I feel you.

~~~And I have been insanely ill for twelve years so far and have come and gone through a hundred stupid, idiotic symptoms. I am dangerously close to paralysis and typing this is all but impossible. I am divorced after 12 years of marriage and two adopted children, and split apart from a 9 year relationship. And for over a year now I can no longer run my buisiness which I love.

~~~How much can another human endure?

~~~Feel me?

~~~Miraculously, I have not lost hope. The entire Universe is one massive miracle. There's plenty enough for you. Hop on, won't you? Please don't lose hope.

~~~Feel that?

~~~So, now, have you tried Byron White's Formulas and (broken record here) MMS?

~~~from my straight jacket~~~out on a limb~~~lookin like a cocoon~~~hangin by a thread ~~~waitin for a butterfly~~~under the moon~~~Lovey-Dovey~~~Mitchell

~~ "The way to 'Heaven' is to bring it with you ..." -Mitchell
~~ "Sometimes, we gotta go through hell to get to 'Heaven'" -Mitchell
~~ "The way out is in" -Mitchell
~~ "A miracle speaks ...'I don't believe in Miracles.' " -Mitchell
~~ "Life is good, even when it isn't." -Mitchell
~~ "Sometimes you gotta lose to win." -Mitchell
~~ "It's easy when it's easy! Find reason, purpose and meaning when it's hard!" -Mitchell
~~ "If you're gonna think, think again!" -Mitchell
~~ "Make it so!" ...
~~ “When life do what it do, as it do-do, simply say ‘Of Course!’ (to soften life’s ‘blows’)” - Mitchell
~~ A master once said, "When embarking on the spiritual path, 'Oh Dear! There's no turning back! You've really done it now!' "
~~ “Not thoughts be your guide, rather, guide your thoughts.” -Mitchell
~~ "That which is within, and that energy entering this body/mind/spirit, causing harm and ill health, must and will be transformed into love healing energy and sent out in every direction" -Mitchell
~~ One morning ten years ago I awoke from a dream chanting over again and again, and writing this down so as not to forget ... "It doesn't matter who did what, there's nowhere else to go but up ..." -Mitchell
~~ "This life, our life, and what we do with it on this planet is “simply” a display, a reflection, of what is going on in our consciousness. The proof is in the puddin’. Look at our planet, what humans are doing to it, and with it, and to one another, and ask yourself ... ~ 'How’s this working for us/me?' ” -Mitchell
~~ "Step away from monkey mind, not tangle ... Observe ... Inhabit your higher self ..." -Mitchell
~~ "Anything is possible, but manythings you think are true, are not ... " -Mitchell
~~ "Grow where you are planted ..." -Mitchell
~~ "Change your future now ..." -Mitchell
~~ “Write your equation … 4 u r the sum of u … “ -Mitchell
~~ “We are largely a product of our environments … how’s your inner environment doing? …” -Mitchell

Previous discussions I participated in:
Depression
Happy Birthday to me :(
Update

06/19/2011 07:15 PM  Top
MBC25
MBC25
 
Posts: 129
Member

Thank you all so much for the support. I love you and appreciate it so much!

I see my LLMD in California Tuesday, so I will post how it goes.

I am going to talk to him...

If he can't handle my complexities and the fact that I need to call in with questions in between appointments, I need a new LLMD...


06/20/2011 12:24 AM  Top
Bettyg
 
Posts: 26546
VIP Member
I'm an Advocate

mbc, huge soft hugs to you my friend.

so sorry to read of your breakup after all this time; sucks is right.

mitchell, your latest story breaks my heart too my friend. yet, you give the BEST ADVISE coming from the heart with what you have/ARE going thru.

mitchell, thank you waking many of us up when we feel sorry for ourselves.

i feel for you mbc, mitchell, and the multitude of others here.

hugs/prayers to you both; I LOVE YOU Kissing Kissing

bettyg, iowa friend/leader

BettyG, IOWA ACTIVIST
RETIRED llmd coordinator of 6 yrs; group leader

NOTE: I DO "NOT" USE CHAT thanks!
**************************************

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Information on those sites is the opinion of those who publish the sites and is NOT necessarily that of BettyG.

43 yrs. chronic lyme; 35 yrs. misdiagnosed by 40-50 drs. unacceptable; see my profile for more.
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