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Lyme Disease ForumsGeneral & SupportNewly diagnosed with chronic lyme Disease
06/12/2011 10:37 AM
lostlifelyme
 
Posts: 2
New Member

Hi, my name is jenn im 36 years old, have 2 children and newly DX with lyme disease, i have researched so much, but still have questions, i am not trusting some of the answers ive found, i have a gut feeling that this disease maybe contagious from person to person, im afraid to kiss my children good night, my worst fear is that my kids will get this, im scared, lonley, and desperate for support from someone who has Lyme disease. None of my friends understand how sick i really am, please blog back any questions, comments, or thoughts, anything, even if you need someone to talk to, im here......thanks jennSad
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06/12/2011 01:30 PM  Top
waxby
waxbyPosts: 4128
VIP Member

~~~Hello Jenn, our new friend,

~~~Welcome to the fold!

~~~There is controversey over whether Lyme is contagious or not. I certainly would not worry about kissing your children. Congenitally it is more widely accepted as contagious.

~~~Many will chime in, meanwhile,

~~~Here is some info to get you started ...

~~~Hello Newbies ...

~~~Lyme cannot be treated as a lone entity.

~~~Lyme Disease is a complex disease, and so, Lyme Complex Disease, or LCD, most often with any number of co-infections that must be treated before Bb, Borrelia burgdorferi, or Lyme, one by one, or simultaneously.

~~~LCD knocks your whole body/mind/spirit out of sight. You need to reballance, and rehabilitate your whole being!

~~~It IS important to realize that each of our needs, and symptoms, are unique and require our careful and discerning, educated, well read, attention.

~~~And there is no magic cure or magic DR. or magic clinic. And there are a lot of "snake oils" and "snake oil salesmen" out there; so be cautious!

~~~Some find relief or remission from conventional & pharmeceuticals alone or naturals &alternatives such as herbs etc alone or a combination of any.

~~~We each have our own combination lock, code, puzzle, conundrum, or mystery to figure out.

~~~Here is another of the main issues with Lyme Dis-ease...

~~~If you do not see a Lyme Literate Dr (LLDr), and your tests APPEAR negative,( or positive); they may treat you for whatever symptoms that your symptomology SEEMS to fit.

~~~And in most cases, if you are or are not being treated for the actual culprit, Lyme Disease,the phantom treatments for mocking symptoms will do almost nothing or nothing at all or even cause more problems.

~~~It can even damage, such as being treated for MS, which Lyme mocks, with steroids etc that will only intensify the Lyme invasion and wreak additional havoc inside of you and on your life.

~~~Some have even been prescribed surgery, by a non-LLDr for a Lyme mocking "phantom" problem and the surgery, in most cases, failed.

~~~Lyme dis-ease can mock 300 dis-eases and exhibit hundreds of symptoms!

~~~However it remains important to carefully rule out other possible problems.

~~~But, let a LLDr do this to save you many middle steps.

~~~If you are working with, WORKING WITH (as in not blindly following) a Dr, hopefully a LLDr, Lyme Literate Dr, OR only with yourself as your healer; if you so choose for your own reasons, pay careful attention to your reactions to each potential remedy.

~~~If the reactions are too intense, and you are monitoring and comparing them to possible alergic response and...

~~~having carefully ruled out adverse alergic response, as many reactions are the "herx", try trimming down,ramping down, dosages to 1/2 or 1/4, even as much as 1/8 the dosage in some cases, to find your personal, more tollerable, not overly agressive, therapeutic dosage, and then "ramp-up" slowly and carefully.

~~~And always take probiotics between doses of antibiotics. 2 hours before and after dosing are a good rule-of-thumb.

`````````````````````````````````````````

~~~There is a general consensus to get a superior diet in order.

~~~That is, no junk. Every one with any sense whatsoever knows what that is.

~~~This means no sugary sodas or even diet ones or any carbonated dead beverages. Pure junk!

~~~No processed sugar either. No empty calories!

~~~Only nutritiously dense foods in a wide variety of the rainbow such as fresh sprouts, purple and green cabbage and mixed greens salads, mixed berries,etc.

~~~Mostly if not all vegetarian.

~~~Mostly if not all raw-fresh unheated fruits and vegetables are raw.

~~~Little to no dairy.

~~~Cut out gluten , WHEAT, RYE, OATS, BRAN, if you happen to be gluten intolerant as many Lyme Patients are.

~~~Eat whole grains and brown and wild rice blends, quinoa, amaranth, buckwheat, etc.

~~~Raw nuts and seeds (raw, so as not to destroy living enzymes and essential fatty acids) such as walnuts, almonds, pumpkin and sunflower seeds. Beans.

~~~Cooled down to warm (under 110 degrees) with some almond milk and a couple of ice cubes etc (not hot,so as not to destroy living enzymes in raw honey and raw choc if added.) You should be able to hold your finger in it and just feel the warmth, not hot...

~~~Green tea, red (rooibos) tea etc, almond milk, etc, raw honey, raw cocoa powder. Yum!

~~~You could vigorously stir into the warm mix a Tablespoonful or two of some organic chia seed(from healthf and drink it through a straw, unless you want a chia pet mustache!

~~~You could also vigorously stir in some brown rice protein powder (from "NutriBiotic") and brewers yeast(from "Lewis Labs"-no this is not the yeast that contributes to yeast-growth problems, and is very nutricious and a tasty brand.) And also some raw maca powder.

~~~I make a mixture in equal amounts of brown rice protein powder, raw maca powder, and brewers yeast and use a couple of tablespoons of this mixture in my breakfast tea.

~~~Plenty of water, between meals, some with fresh lemon, for detoxifying, one simple, of many methods critical for consistently, persistently, clearing toxic load from our bodies. A good rule of thumb for quantity of water to drink is to divide your body weight number in pounds in half, and use that number for number of ounces of water to drink each day.

~~~Go to a healthfood store and get a sprouting kit (or google Now Foods, they have sprouting jar and seeds) and make your own mixed sprouts at home in your kitchen.

~~~Try 2 Tablspoons brocolli, 2T funugreek 10T(5oz) mung sprouting seeds in a half gallon sprouting jar.

~~~In three to five days, depending on the temperature, Winter or Summer, and poof, nutriciously dense food.

~~~They'll keep for a week in the fridge in airtight container. Leave uncovered overnight in fridge the first night to chill and breath out initial condensate and then cover and leave covered. Don't rinse on last day to keep on dry side to keep longer in fridge.

~~~Start a new batch some days before they run out to keep a constant supply for sandwiches, salads, etc. Add it to a big mixed greens salad.

~~~Omega 3 fatty acids and fiber rich seeds such as chia (whole or ground) and freshly ground flax-freshly ground flax as the omegas become unstable after some time after being ground, and flax is undigestable whole. Unheated so as not to destroy vital omega fatty acids and living enzymes.

~~~I use 2 tablespoonsful of whole organic flax seed and grind it fresh in a coffee grinder each time I use it. I stir this vigorously into 16 ounces, or more,of tepid water 30 minutes before some meals and before bed.

~~~I continue to drink more water in between meals away from food for better digestion and elimination.

~~~Drinking liquids with meals only dilutes your food not allowing it to digest more properly.

~~~Drinking this flax/water mixture gives it a jump ahead of meals in order to capture more bile and transport it out of the body, so the bile is not recycled back into your body, as is what happens to the bile, thus ushering the bile's excess cholesterol and toxic load out of the body. Your body will readily produce more fresh unpolluted bile.

~~~Flax (as well as chia) also contains essential omega 3s and 6s in a healthy proportion of 3 times more 3s than 6s. Most diets contain way too many 6s than 3s.

~~~Corn oil has 46 x more 6s than 3s, very bad. Olive oil has a ratio of 3-6s to 13-3s, very good. We tend to get way more 6s than 3s, not good.

~~~Your body will convert these essential fatty acids into necessary DHA and EPA.(See Wikepedia omega 3 fatty acid.)

~~~Organic every thing as much as possible.

~~~No harmful habbits such as smoking etc, or alcohol,which is very bad for many Lyme patients.

~~~Just as an example, out of hundreds of potential remedies, presently I'm doing MMS, for eleven months now, and in alternating days, frequencies, amounts, and combinations,

~~~teasel, samento, venus fly trap, banderol,

~~~smilax, japanese knotweed/resveratrol, andrographis, "Buhner's Herbs from his book "Healing Lyme"

~~~Dandelion and parsley extracts, mangosteen extract, olive leaf extract, grapefruit seed extract, bromelain, systemic enzymes, nattokinase, Graviola, Sangre de Drago, Jatoba (these three are South American rainforest herbs)

~~~vits, mins, supps, baking soda, superior diet.

~~~And for about a year now 100mg a day or every 2nd, 3rd, or 4th day, week, or month of minocycline.

~~~However, for now, I am only doing the MMS and at one to three drops one to three times a day, even skipping a day or more as I am very ill and for many years, and I think I am doing too much too soon for my level of infection.

~~~And now doing HBOT, Hyperbaric Oxygen Treatment, IM Rocephin, Myers' Cocktail IV, Medical/pharmeceutical grade supps, vits. nono/coloidal silver.

~~~However,(update) now,including MMS at five drops properly prepared several times a day and also ten drops properly prepared and administered through my skin and directly into my bloodstream with DMSO,google it, I am doing Minocycline,Azithromycin,Rocephin IM,Rifampin,Armour Thyroid,HBOT(hyperbaric oxygen treatments),Myers Coctail IV plus glutathione (vits,mins +glutathione) twice a week,Byron White's A-Bart and A-L, medical and pharmeceutical grade foods vitamins and supplements,coloidal silver,meditation,prayer post thread,yada yada...

~~~Your symptoms will change, come and go, se-saw, roller coaster, scare you, tickle you, nauseate you, turn you shapes, colors, and sizes, make you laugh, make you cry.

~~~Hold tight! This is some Amusement Park!

~~~This forum is your refuge. We "get" you. USE IT!

~~~And remember, "this is a marathon and not a sprint." Be the turtle, not the hare. Moving too quickly could be potentially harmful.

~~~Chronic, persistent Lyme Dis-ease can take a very long time to diminish towards remission. It must be approached carefully, systematically, persistently, patiently...

~~~And...Never give up!

`````````````````````````````````

~~~On ramping and pulsing...

~~~When a remedy dose hits too unbearably hard, your dose may be too high, and that is after making certain this is not an alergic reaction.

~~~Take a day or two or three off if you must, until the "Herx" calms down to a reasonably, tollerable manageable, level, and begin again, every other day, or more, if you must, thus pulsing...

~~~Begin at a lower more tollerable dose such as 1/2, 1/4,or 1/8 the dose thus ramping down.

~~~If one more dose hits too hard again, take every other or third day off, pulsing, until you arrive at a more tolerable Herx event level and tollerable therapeutic dosing level.

~~~As your Herx effect lessens over time, begin turning up the volume by adding back some dosage level, ramping up, and then closing the pulsing gaps.

~~~And always take probiotics between doses of antibiotics. 2 hours before and after dosing are a good rule-of-thumb.

~~~Unfortunately, feeling worse before feeling better is par for the course, but is a useful guage for pulsing and ramping and consistently, presistingly, keeping fire under the critters butts.

```````~~~from my straight jacket~~~out on a limb~~~lookin like a cocoon~~~hangin by a thread~~~waitin for a butterfly~~~under the moon~~~Lovey-Dovey, Mitchell~~~

Post edited by: waxby, at: 06/12/2011 06:24 PM

~~ "The way to 'Heaven' is to bring it with you ..." -Mitchell
~~ "Sometimes, we gotta go through hell to get to 'Heaven'" -Mitchell
~~ "The way out is in" -Mitchell
~~ "A miracle speaks ...'I don't believe in Miracles.' " -Mitchell
~~ "Life is good, even when it isn't." -Mitchell
~~ "Sometimes you gotta lose to win." -Mitchell
~~ "It's easy when it's easy! Find reason, purpose and meaning when it's hard!" -Mitchell
~~ "If you're gonna think, think again!" -Mitchell
~~ "Make it so!" ...
~~ “When life do what it do, as it do-do, simply say ‘Of Course!’ (to soften life’s ‘blows’)” - Mitchell
~~ A master once said, "When embarking on the spiritual path, 'Oh Dear! There's no turning back! You've really done it now!' "
~~ “Not thoughts be your guide, rather, guide your thoughts.” -Mitchell
~~ "That which is within, and that energy entering this body/mind/spirit, causing harm and ill health, must and will be transformed into love healing energy and sent out in every direction" -Mitchell
~~ One morning ten years ago I awoke from a dream chanting over again and again, and writing this down so as not to forget ... "It doesn't matter who did what, there's nowhere else to go but up ..." -Mitchell
~~ "This life, our life, and what we do with it on this planet is “simply” a display, a reflection, of what is going on in our consciousness. The proof is in the puddin’. Look at our planet, what humans are doing to it, and with it, and to one another, and ask yourself ... ~ 'How’s this working for us/me?' ” -Mitchell
~~ "Step away from monkey mind, not tangle ... Observe ... Inhabit your higher self ..." -Mitchell
~~ "Anything is possible, but manythings you think are true, are not ... " -Mitchell
~~ "Grow where you are planted ..." -Mitchell
~~ "Change your future now ..." -Mitchell
~~ “Write your equation … 4 u r the sum of u … “ -Mitchell
~~ “We are largely a product of our environments … how’s your inner environment doing? …” -Mitchell

06/12/2011 01:30 PM  Top
goobered
goobered
 
Posts: 216
Member

Hi Jenn,

You ask a good question. It seems no one agrees, does't it?!

What I have taken away from it is that it can be congenitally transfered (which is how they think I got it and I am 46 and I in turn passed it to my daughter) and through breast milk. Sexual contact, but not a kiss or drinking after each other.

But then biting insects - ticks, of course, fleas, mosquitos, etc

Blood transfusion, etc. There are others who know WAY more than I do on this forum.

I use the book: "The Lyme Disease Solution" by Dr. Kenneth Singleton as my main reference.

I am pretty new here too and already feel like a broken record on this piece of advice: Have your friends and Family watch the documentary "Under Our Skin" It made a HUGE difference for me. Family gets it and try to keep me from over-doing.Smile Fair-weathered friends are long gone! Sad

I am sure others will have input. I'm here if you have more questions or just need a shoulder. You are NOT alone Tongue

I hope you are going to a good Lyme Literate doctor. How long have you had Lyme? When were you diagnosed?

I'm glad you are listening to your gut.

Hang in there!

Goob

"I will not die, but LIVE,
and tell of the works of the Lord!"
Psalm 118:17

Previous discussions I participated in:
New Lyme Bill in Texas
Help...a long shot
Greetings

06/12/2011 05:47 PM  Top
singfreebird

There is definitely controversy surrounding how transferable Lyme is. Goobered pretty much summed up what I believe, but I do have one thing to add:

From what I've read, it is much easier for the recipient partner (ie; the person who is penetrated during sex) to get infected with ANYTHING, not just Lyme. So I actually wouldn't be too worried about passing it on sexually since you're a woman. Not saying it isn't possible, but it seems more difficult.

I understand why you're so freaked out, lostlifelyme. With so much misinformation, it's hard to gauge what's going on.

And you may be right. I've also read some interesting theories about that... who knows? (If that is the case though, I wonder if it's only contagious during certain parts of the spirochetes life-cycle? That would reconcile a few things... but I digress.)


06/12/2011 06:47 PM  Top
i70pb
i70pb
 
Posts: 208
Member

Hello, glad you found this site as it has helped me a lot. Tons of info & help here...

Stay strong & nice to meet you! i70

I am getting BETTER everyday ! Here's How http://www.mdjunction.com/diary/lyme-warriors-unite

23-25 IND, 39 IND, 41 +, and 83-93 +.IgM showed 34 +++, 41 + and 83-93 IND. CD57 is 215

06/12/2011 07:22 PM  Top
Jan1960
Jan1960
 
Posts: 313
Member

Hi Jenn...So sorry for your diagnosis but you've come to a great place!

Jan

IgG -- 30+
58+
31 IND
39 IND
41 IND

IgM -- 41++
58+
83-93+
39 IND

"When I die, I'm leaving my body to science fiction."
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