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Lyme Disease ForumsGeneral & Supportbetty's venting; SHAPE UP EVERYONE; trojan post!
05/22/2011 09:46 PM

Bettyg
 
Posts: 26610
VIP Member
I'm an Advocate

thank you missy.

i started hubby back on the amantidine today; hope he improves for the parkinson's LESS freezing up, sweating, temper wise, and may regain some memory back.

he forgets to take his pills; i've putthem in boxes, and we go thru this every day how many he should

begetting and he's still so confused.

i may have to get him to get xrays for the fall he had last weekend when i was mowing yard; hard to get him in bed in comfy position; he hurts so bad in rib area right side.

thanks for your thoughts and prayers for both of us. it is draining.

bettyg

Post edited by: Bettyg, at: 05/22/2011 10:33 PM

BettyG, IOWA ACTIVIST
RETIRED llmd coordinator of 6 yrs; group leader

NOTE: I DO "NOT" USE CHAT thanks!
**************************************

NO INFORMATION SHOULD BE CONSIDERED MEDICAL ADVICE.
please see my WELCOME LETTER/BEGINNER'S LINKS with important links/info galore :)

http://www.mdjunction.com/forums/lyme-disease-support-forums/general-support/2356916-bettygs-welcome-letter-wgood-beginner-links-

Any information provided should not be used to take the place of advice from your personal physician or other professional.

Information on those sites is the opinion of those who publish the sites and is NOT necessarily that of BettyG.

43 yrs. chronic lyme; 35 yrs. misdiagnosed by 40-50 drs. unacceptable; see my profile for more.
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05/23/2011 05:58 AM  Top

Tennesseemom7
Tennesseemom7
 
Posts: 1050
Member

Betty So sorry about your husband. Hopefully you can figure out his pain so he can sleep better.

Since you are reconsidering Julie and Fabajena I also beleive the group leaders as a group should also reconsider wifeneedshelp. His name says it all and he needs support just like anyone else..

We are all here to love and support each other and we are just trying to find a stable ground while going through TBD nightmare...

I am not sure that any of them would come back to the board, but it's worth a shot.

It is all a little disheartening in many aspects.

Post edited by: Tennesseemom7, at: 05/23/2011 07:31 AM

******Group Leader Disclaimer******
******Lyme and Fibro group leader******
I am not a doctor, just trying to get through this crazy Lyme mess together.
Brenda
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05/23/2011 06:20 AM  Top

missy33
 
Posts: 752
Member

I didnt know Faba was banned Sad
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05/23/2011 08:14 AM  Top

espltd
 
Posts: 173
Member

yea I must say realizing that my friend Faba was banned has made me consider going elsewhere. Things seem to be getting pretty heated around here....
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05/23/2011 08:48 AM  Top

toadlily
Posts: 41
Member

~HUGS BETTY FOR A SOLID MINUTE!~

Betty, Like Goobered, when joining this forum, I was AMAZED at how much you were involved. Shocked

Every post I have created, you have answered so fast.

I hope I will remember to double space between sentences.

I get what it is like to be a leader and driver of a forum. It's a tremendous amount of effort, even when not ill.

Thank you for being here. Thank you for responding so fast. Thank you for helping me.

If I can ever help in any way, Please let me know.

Just put me to work,

smalltoad

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05/24/2011 02:36 AM  Top

Bettyg
 
Posts: 26610
VIP Member
I'm an Advocate

toad,

i love your symbol

Fully

Relie

On

God .. that's what i am doing presently Smile

thank you for all your support; it's an extremely difficult position to be in right now with the way things have happened.

i pmed brenda about her request about the man who comes on here just to attack me and tellingLIES; nope; he won't be allowed back but with his threats to me ... he'll return again and again just to attackme! BIG TIME TROLL WITH A GRUDGE!

it's OWNER roy, who makes the decisions about JULIE & KIM!! i've made my wishes known to roy on both women.

my internet, phone, and cable service went out around bedtime so just was able to get on for a little while now! so i'm far behind; end of this subject.

bettyg, iowa leader

BettyG, IOWA ACTIVIST
RETIRED llmd coordinator of 6 yrs; group leader

NOTE: I DO "NOT" USE CHAT thanks!
**************************************

NO INFORMATION SHOULD BE CONSIDERED MEDICAL ADVICE.
please see my WELCOME LETTER/BEGINNER'S LINKS with important links/info galore :)

http://www.mdjunction.com/forums/lyme-disease-support-forums/general-support/2356916-bettygs-welcome-letter-wgood-beginner-links-

Any information provided should not be used to take the place of advice from your personal physician or other professional.

Information on those sites is the opinion of those who publish the sites and is NOT necessarily that of BettyG.

43 yrs. chronic lyme; 35 yrs. misdiagnosed by 40-50 drs. unacceptable; see my profile for more.
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05/24/2011 07:49 AM  Top

FLMOMOF1
FLMOMOF1
 
Posts: 71
Member

Dear Betty,

THANK YOU! THANK YOU! THANK YOU! For all of your information and support! I hope I can continue to get and receive the same for others as well!

Being new to LYME DISEASE, THIS BOARD, EVERYTHING is so overwhelming and without your help from day one (almost minute one) I don't know where I would be!!

I can't tell you how much I appreciate it and I look forward to working with you as this adventure goes forth!

XOXO

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05/24/2011 08:12 PM  Top

toothfairy55
toothfairy55
 
Posts: 3856
Senior Member

I came on this board because of my daughter. At that time there was less than 600 people in this forum. We have grown by leaps and bounds and as our previous group leaders come and go I have learned to appreciate all the time and effort each has put into it.

We (group Leaders) not only try to keep up with all the requests but our family life as well. As some of us have come to realize there sometimes has to be a very careful balance.

I hope ALL of our members can appreciate the time and effort that Bettyg, myself and Tara have put into it.

What I have realized is that none of us have the ultimate answers. If we did we wouldnt need this forum .

It doesnt matter how much you have read, or how one LLMD treats as opposed to another.

This disease is NOT a clear cut set of symptoms and as a result everyone is going to have a different treatment.

What we can do in this forum is exchange ideas (not to belittle them) What works for me might not work for others. That does not give me or anyone else the right to invalidate another persons experiences or opinions.

I missed all the drama, but when I found out about it, it made me very sad. I have known Julie to be nothing but compassionate and helpful.

Even after reaching remission,her personal tragedy and her other medical problems, she gave us her time

Not only was I saddened but disappointed by the infighting here. We are all suppose to be working toward a common goal, to beat Lyme and get our life back.

This incident has me seriously reconsidering whether or not I will remain.

All I can say is I am very disappointed.

Carol

I am NOT a doctor, anything I share is based on my experience & research. I encourage you to discuss any and all information that I share with a health care provider.
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05/24/2011 08:40 PM  Top

steelers
Posts: 885
Member

Carol,

long time no see. I would not leave for anyone, regardless of what they say. This group has grown quickly. So how is your daughter doing? I have not seen her here in a very long time. Keep in touch.

Steelers

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05/24/2011 08:41 PM  Top

inkyblck
inkyblckPosts: 446
Member

I want EVERYONE to know that I am here to stay ...

I SINCERELY care and want to help, that is why I finally joined after over a year of "lurking"

I thought I finally had something to offer ...

I cannot bear the idea of others suffering with this ...

Disagreement amongst some of the participants here will NOT discourage me, or lessen my desire to offer information and support ...

Doctors will fail you

Antibiotics will fail you

But as long as I am here, MD Junction will NOT fail you ...

And I will not bail on you, as some other "leaders" have threatened ...

I did what was right ~ If anyone else had the information I did, they would have done the same ...

End of story

Now let's get back to GETTING WELL

Post edited by: inkyblck, at: 05/24/2011 08:43 PM

I am NOT a "lymie" ~ I loathe that term ... I will not be defined by the vile bacteria that will very soon be out of my system ~ If you consider yourself a "lymie" right now, what will you have left when you rid yourself of the bacteria ~ nothing ??? ... Don't be a "lymie", be YOURSELF and fight it ...

...

And by the torrent on the banks thereof on both sides shall grow all trees that bear fruit: their leaf shall not fall off, and their fruit shall not fail: every month shall they bring forth firstfruits, because the waters thereof shall issue out of the sanctuary:and the fruits thereof shall be for food, and the leaves thereof for medicine. ~ Ezekiel 47:12
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