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Lyme Disease ForumsGeneral & Supportbe aware of giving out LLMD's names here
04/25/2011 04:24 AM
ewford
Posts: 28
Member

Just got a private message from someone that just joined, and used a name from my e mail contacts (very unusual name) to request who my LLMD was. be careful people. Get phone numbers and talk privately. not sure if this is phishing or someting more serious.
Reply

04/25/2011 05:22 AM  Top
Julie4848

Ewford:

I agree, a lot going on over the in-net...My I-tunes account just got hacked into, plus other things, not sure how they do it, but they can...

I never give out any information uless I know the person and even then I would rather speak via the phone the email....


04/25/2011 08:58 AM  Top
Bettyg
 
Posts: 26608
VIP Member
I'm an Advocate

checking on LIVE EAGLE CHICKS, and saw this so brief reply now; mayadd more later after i GET UP THIS AFTERNOON.

ford..good observation.

BETTYG'S CRITERIA BEFORE I GIVE OUT ANY LLMD INFO TO ANYONE!

1st, click on the name who sent you this PM; this shows their profile.

now read the profile area to see if they have put anything in there...state, M/F, their health problems, their date of birth,etc.

next go to RIGHT HAND SIDE, and go down; HAVE THEY JOINED LYME BOARD? haven't .... DO NOT SEND ANY LLMD INFO.

do reply that all must JOIN LYME BOARD and post their requests ONLINE to the public in LLMD REQUEST FORUM.

then give them the link to mywelcome letter which has the links and my basic necessity infoto get someone going:

http://www.mdjunction.com/forums/lyme-disease-support- forums/general-support/2356916-bettygs-welcome-letter-wgood- beginner-links-

next, BELOW the area where they join, look in area of POSTS...will show every post they make on PUBLIC BOARD; NOT PMS.

if they show a post, click on it or them, read over the content of what was said. are they specific on things or VERY VAGUE?

these are my BASIC things i do on ALL REQUESTS I GET FROM PRIVATE MESSAGES!!

some pms are very detailed there, but they have NOT JOINED LYME GROUP; HAVE NOT POSTED any requests.

so i just copy/paste the contents of my welcome letter and send to them this way BOLDING the parts at top about needing a llmd, do the following.

then at bottom, i tell them once they have joined andposted in llmd request forum and READ INSTRUCTIONS ON POSTING THERE, i will then send out info.

this FORCES THEM TO DO THE ABOVE, then if request is VERY BRIEF...few words; i want more info to feel them out that they are legitimate!

where i used to post, and sent out llmd info for 3-4 yrs, the board administrator informed us sending out llmd info, DON'T INTEROGATE FOLKS, THEY ARE SICK.

i used to have 4-5 specific questions for them to answer before i sent out info to them to make sure they were NOT PHISHING/TROLLING US! he told me/others to NOT do this anymore ... they are sick; help them out !!

now i'm going to send this link to OWNER, ROY, for HIS input as to what HE WANTS DONE on giving out llmd info since our drs.are being turned into many state health depts. for LONG TERM USE OF ANTIBIOTICS/ALTERNATIVE THERAPIES/SUPPLEMENTS.

we'll then know how the ROY, THE OWNER, wants us who have llmd names to handle from today forward. Wink Cool

i can tell you before i permanently joined this board, drs. names used to be on this board all the time. it was another poster who complained who was a member where i used to post who complained.

then they had a long discussion, and here is discussion of that for all of you to know. i read page 1 only of 6 pages of replies there just now:

http://www.mdjunction.com/forums/lyme-disease-support- forums/general-support/127846-no-posting-of-doctors-names

so we'll wait for more instructions from OWNER ROY on how HE wants to handle things on his board.

if i think of something else later, AFTER I GET MY NEEDED SLEEP, i'll add that then here Smile

hope this helps you all what MY LLMD CRITERIA BEFORE answering ANY PRIVATE MESSAGE TO ME.

thanks for asking; i'll add this to sticky pin above on DO NOT GIVE OUT LLMD NAMES ON PUBLIC BOARD.

BETTYG, IOWA LEADER :|)

Post edited by: Bettyg, at: 04/25/2011 09:02 AM

BettyG, IOWA ACTIVIST
RETIRED llmd coordinator of 6 yrs; group leader

NOTE: I DO "NOT" USE CHAT thanks!
**************************************

NO INFORMATION SHOULD BE CONSIDERED MEDICAL ADVICE.
please see my WELCOME LETTER/BEGINNER'S LINKS with important links/info galore :)

http://www.mdjunction.com/forums/lyme-disease-support-forums/general-support/2356916-bettygs-welcome-letter-wgood-beginner-links-

Any information provided should not be used to take the place of advice from your personal physician or other professional.

Information on those sites is the opinion of those who publish the sites and is NOT necessarily that of BettyG.

43 yrs. chronic lyme; 35 yrs. misdiagnosed by 40-50 drs. unacceptable; see my profile for more.

04/25/2011 09:09 AM  Top
hopesalive
hopesalive
 
Posts: 1129
Senior Member

One way to AVOID someone getting into your EMAIL CONTACTS to send out those phishing scams to everyone on your contact list.

You know those messages everyone gets that YOU did NOT send? Ever wonder how they do that?

We CAN reduce the chances of this happening.

One way they do this has to do with the way we FORWARD our emails.

Are you are person who likes to forward all those cute stories, jokes, photos, etc. to everyone on your contacts list?

That is all good and fine, but doing the following will REDUCE the chances of those hackers sending out those crazy emails to your contact list.

1. When you forward a message, make sure you DELETE all previous names and email addresses that come along with that email from the original person(s).

2. When you forward your message, add your names but then go to the SUBJECT line and delete the word, "Forward" (FwdSmile.

3. Change your password often, and make sure it has at least ONE letter and ONE symbol. However, surprisingly, the first TWO steps are far more important than this step.

It only takes TWO minutes to do all of the above, and it will be well worth it.

Also, be leary of some of the "petitions" that come to you. Many have been rolling around on the internet for years, and they are simply a way for those hackers to get emails lists to send out more of their phishing scams.

Also, if you get an email from someone on your email list who is stuck in another country and needs you to wire money immediately (while they wait to get to the embassy, lol), chances are this is NOT from your friend. haha

www.snopes.com is a wonderful site to check to see if something is legitimate or not.

Hope this is helpful! Smile

enlarged textfor me using quotes.bettyg, iowa leader

Post edited by: Bettyg, at: 04/25/2011 01:59 PM

Best Wishes,

Hope :)

"Hope is a good thing, maybe the best of things, and no good thing ever dies."
~~The Shawshank Redemption~~

Igenex IGG: Negative
**23-25 KDA IND
**31 KSD IND
**41 KDA ++
45 KDA +
58 KDA ++
66 KDA +

Igenex IGM: Positive
18 KDA ++
**31 KDA IND
**34 KDA ++
**39 KDA IND
**41 KDA +++
66 KDA +

04/25/2011 09:12 AM  Top
hopesalive
hopesalive
 
Posts: 1129
Senior Member

P.S. I know the above does not have to do with the LLMD question, but I thought I would still post this for those who do not know about the above information.

I still see MANY forwards come through in my emails that list EVERYONE's email addresses (and often names) that have received the message in the past.

I no longer open FORWARDS if the FWD: has not been deleted, due to all of the above.

Best Wishes,

Hope :)

"Hope is a good thing, maybe the best of things, and no good thing ever dies."
~~The Shawshank Redemption~~

Igenex IGG: Negative
**23-25 KDA IND
**31 KSD IND
**41 KDA ++
45 KDA +
58 KDA ++
66 KDA +

Igenex IGM: Positive
18 KDA ++
**31 KDA IND
**34 KDA ++
**39 KDA IND
**41 KDA +++
66 KDA +

04/25/2011 01:59 PM  Top
ewford
Posts: 28
Member

I have a friend who was in psyops in the Army and he now believes that I have crossed the line in the connection to Lymes/GWI and how the spouses are ill w/ sarco and hysterectomies. he thinks that I might actually be "observed".

You can think what you want, but I have made some damn connections in the GWI and Lymes and how this is all triggered thru the VDR receptor. Lymes and GWI ALL have vitamin D deficiencies and every GWI soldier/spouse and even the soldiers returning home from duty now are ill. and their Labcorp tests are all negative ( as we all know)

Just everyone be careful.


04/25/2011 01:59 PM  Top
Julie4848

Hope: I agree... I was hacked into on my I-tunes account last week, believe me when I say these hackers know everything about someone the minute you post anything.

I have had long conversations with all credit bureurs and the police department (as I had to file a claim)....Also if your computer has it before I log off I "Clear Recent History" and run a scan...

FYI: Don't always trust Snopes, they were on the news a few weeks ago, they are not all what they say...I always used them until a friend of mine sent me something and I showed Jim who in turn asked the police department about it, it was so wrong...So watch when using them.

I no longer do any banking on my computer nor bill paying. My brother in law just lost (but got back) 2,000 when he bought my sister candy over the internet (from a company he has used for years) someone hacked into the Candy computer and got everyones CC info....

I also found out that when you take a photo on your CELL phone and forward it to anyone, within minutes the hacker can find out anything they want about you...Hackers do this for a living, sad, very sad.

Just like I md, I don't like the fact we have to put the year we were born, by doing so is how they can get your SS#....I wish we could remove that and I think I will ask Roy about it..

Not save in this world we live in anymore..

Welcome back Hope!!!

Hugs

Julie


04/25/2011 02:15 PM  Top
Bettyg
 
Posts: 26608
VIP Member
I'm an Advocate

welcome back hope Smile

thanks for the above; good tips galore! i want to expand on what you typed above:

1. use BCC, blind carbon copy, so type your group list name into BCC.

2. you will have to ADD BCC; my yahoo shows "insert addresses .. SHOW BCC".

3. please do NOT just show your GROUP NAMES IN "SEND" list as hope has told you about before! folks, me too, just hate this! it's a SPAMMER'S DELIGHT.

4. MY TRUE STORY HERE! that's how someone got MY EMAIL address and has been sending PORNO to folks!! Devil i didn't know anything until a woman who received an email with MY address on it, wrote me informing me she had turned me into proper people!

i quickly wrote her back thanking her for making me aware of this as i would NOT have known this prior, and assured her it was NOT ME who sent this to her.

a FBI AGENT spoke at a srs. conference last yr., i told her/group about that happening. we had quite a discussion afterwards about that!

5. same thing happened where someone has used myname to SPAM FOLKS WITH "VIAGARA" MAILINGS! Angry

6. hope, i learned last yr. that SNOPES.COM isNOT always 100% correct; THEY ARE MY SOURCE TOO for last 10 yrs.

but at bottom of their info they normally show their sources, so i go to the DIRECT source theygive to see if the company/govt/etc. state this is TRUE OR FALSE.

so always clickon the link snopes shows, and read their FULL EXPLANATION; not just the summary that pops up first. you need to click on that to read the rest of the story as Paul Harvey would say.

i can't scroll up to view hope's post to see if i had any other comments i've had 1st hand dealings with to add to or not. thanks hope for your comments!! Kissing

bettyg, iowa leader

BettyG, IOWA ACTIVIST
RETIRED llmd coordinator of 6 yrs; group leader

NOTE: I DO "NOT" USE CHAT thanks!
**************************************

NO INFORMATION SHOULD BE CONSIDERED MEDICAL ADVICE.
please see my WELCOME LETTER/BEGINNER'S LINKS with important links/info galore :)

http://www.mdjunction.com/forums/lyme-disease-support-forums/general-support/2356916-bettygs-welcome-letter-wgood-beginner-links-

Any information provided should not be used to take the place of advice from your personal physician or other professional.

Information on those sites is the opinion of those who publish the sites and is NOT necessarily that of BettyG.

43 yrs. chronic lyme; 35 yrs. misdiagnosed by 40-50 drs. unacceptable; see my profile for more.

04/25/2011 02:51 PM  Top
Julie4848

We can try to be so careful, but these hackers know what they are doing, so sad....I had 3 passwords on my i-tunes account, still got into it.

Last year I went to get the mail and there was a CC that I do not own, someone got my $$#, and most of the time they go into your mail box and get the CC forms that are sent to you...Because I have indntify theft going on, they can no longer send me any of them and I love it...

My next computer is an APPLE, they really don't have as many problems...Everyone I know is buying an APPLE....


04/25/2011 04:10 PM  Top
sandiegolymer
sandiegolymer
 
Posts: 208
Member

It's so sad that we have to worry about all this stuff - because it really makes it difficult for well meaning people who are truly sick that just want information. I like Betty's system of checking someone out - the suggestions she had were really good!

I get those emails all the time from good friends of mine who I KNOW are not trying to sell me electronics or other weird stuff. I feel bad for THEM because then they have to send an email out to everyone telling them they've been hacked!

So far the only hacking I've been a victim of (I have an Apple BTW!) is my PHONE! I have Sprint, and I've been hacked into a few times now. Ughhhh - drives me crazy.

Anyway, as I ALWAYS say, Betty - keep up the good work! You do SUCH a great job and help so many people! Smile

Sandie

IgM Western Blot
41 +
83-93 IND

IgG Western Blot
31 ++
34 +
41 +
58 +

PCR Serum Test: Positive for B. Burgdorferi

"Most of the important things in the world have been accomplished by people who have kept on trying when there seemed to be no hope at all." -Dale Carnegie
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