Lyme Disease Support Group

You have to remember that this just may be your "normal". I know that you keep questioning whether or not this is really Lyme - but let me tell you based on your posts - you are just one of those cases that proves to be more on the difficult side.

Take a look at Jenn56 - she has been fighting and fighting - and just cant get enough ahead...a complex case - that is all there is to it. Luckily she has the test results - but not all of us do...

You are going to have to play with treatments and figure out what works best. I honestly think that you need to find someone who can do computerized bioenergetic feedback on you. A test that can find out all the things going on and help determine what will work best with you and your body. If you want, PM me and I will see what i can do to help you find a reputible place that does it...

hang in there - this is not unusual...just frustrating...you will get there

Christine

The tough part is, that there are so many variations of this type of thing. Some have machines that will actually send signals back to the body - the theory there being that bacterias, viruses, and parasites will be effected by the negative frequency - IDK know if that aspect works - but as in everything else, some say it does.

For me, i had the basic type of test, and it was amazing what we learned. My CNS is riddled with lyme, and babs and bart are both present. There were some other issues that were brought to light too.

When I asked the woman who tested me how she got into it, she explained that she was taught by a retired cancer specialist. He had been using this machine for years, treating his patients with an incredibly high success rate. He would treat them of anything else that was effecting them, and when they were healthy beside the cancer, he would then remove it...his success rate was like 95% or better - and what happened...the medical community came after him so he retired...

Honestly I had been skeptical when I had gone in for the test, but what I learned...made me a believer. It is painless, and can help in so many ways...

Christine

whether you look into alt clinics, or just google what the machine is...but your best bet is to go through an alt clinic - that incorporates these types of tests into their practice. And ask what the proceedures are...

i actually had it done twice...the 2nd time, I swear the guy and my step-mom where in league with eachother in order to convince me that I dont have Lyme. But, he just picked lyme from the list, touched my finger and NOPE you dont have Lyme...what a load! I believe that the machine needs to do a more in depth search - as there are differnt strains, and the disease changes forms and such.

IF ya want, PM me with your location, and I will see what I can help you find in your area.

Christine

allow me to add - that she knew that I believed in that testing process...and i know she talked to him at length about me before my appt...she even told my hubby that it was going to be a life changing appt...too suspicious for me...

Post edited by: cmany, at: 12/10/2008 23:09

Are you taking any magnesium? You might want to look into that. Lyme bacteria uses up magnesium. There's lots of info online, here's one link...

http://www.lymeinfo.net/magnesium.html

Hope you feel better again soon!

Hang in there

Julie

Its interesting, IF it were the mag helping the twitches its obvious something was eating up the mag and I was deficient...so that brings me back to feeling "btr" that I do have lyme vs wondering if I "really" do.

It sounds like you were really low and once you build up your reserves you shouldn't have to keep taking it in those amounts. I'm no expert on it though.

I can't tell you for sure if you have lyme disease or not. You can make a pretty good educated guess if you're in the ballpark for it by looking at all the symptoms. It's a long list and you need to have a high number of them. If you can get a LLMD to look at all your symptoms you would have a better idea.

The twitches and 'shocks' are a nightmare. I hope this helps you.

Bonita