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  "I have Lyme" (LUCA)

MDJunction to me

jpcrps"When I found MD Junction, I was in the beginning stages of RSD/CRPS. I was scared, lacked knowledge about the condition, and felt very alone.

MD Junction changed all of that for me. I found friendship and terrific information from people who had first-hand knowledge of this syndrome. It was and still is a big part of my life.

MDJ was my first step on the journey of grief; from denial to acceptance. I am now inspired to help others by sharing this amazing site and sharing my own experiences. I am very impressed that one forum site can provide hope and inspiration to people suffering from so many different conditions. I am proud to be a part of this community.
~ Jenny
" (jpcrps)

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Lyme Disease ForumsGeneral & SupportWow soo many Members-- old member
03/26/2011 08:38 PM
mem6757

When i first joined there were 265 members now there are tons.

i put myself into dormancy or cured who knows but once in a while i check in to see whats going on

looks like Lyme is a pain for a lot of people and ruining a lot of lives.

I am saying i think i am lyme free but now have diabetes with no family history and weird joint stuff (not arthritis)

there are many members that i miss that have left because they voiced opinions that were justified.

I have a life..very normal with no antibiotics all natural..remember no antibiotic has ever cured a chronic lymie..

i can give advice but gheeze so many green sufferers..i miss my old friends on this site.

Ron Smile

broke up solid paragraph; emphasized things. bettyg, iowa leader

Post edited by: Bettyg, at: 03/26/2011 11:47 PM

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03/26/2011 10:58 PM  Top
ten1988
ten1988  
Posts: 519
Member

Nice to see you back, Im getting close to putting lyme in dormancy I have few symptoms anymore. I am on 3 different antibiotics and am doing naturals myself. Feeling lots better than I did 10 months ago Wink.

I cant seem to figure out how to hit the cyst forms and L forms of lyme I dont want to use flagyl. Im using Grapefruit Seed extract + Serrapeptase. Also doing houyttounia for bartonella combined with rifampin.

I know Samento can hit the cyst forms, but I can take large doses of this stuff and it gets expensive, but it does work!

Lyme Igenex Test Results:

Western Blot IgM; Positive; Bands 31 (+), 41 (+),45 (IND), 66 (+)

Western Blot IgG; Positive; Bands 31 (IND), 34 (+), 41 (++), 83 (+)

**I am not a doctor and my advice is purely my own opinion which shall be regarded as such!**

03/26/2011 11:49 PM  Top
Bettyg
 
Posts: 27275
VIP Member
I'm an Advocate

welcome back ron :|)

please stop back as often as you would like to; we'd be glad to have you and your experience.

diabetes2; me too; 6 mo.prior to mycorrect chronic lyme dx 7 yrs. ago.

did you put on extra weight causing it to come on? 1 med put 25 lbs. on me in 1 year.

glad you are feeling well otherwise.

i broke up your solid text for neuros like me to be able to read/comprehend.

bettyg, iowa leader

Post edited by: Bettyg, at: 03/26/2011 11:50 PM

BettyG, IOWA ACTIVIST
RETIRED llmd coordinator of 6 yrs; group leader

NOTE: I DO "NOT" USE CHAT thanks!
**************************************

NO INFORMATION SHOULD BE CONSIDERED MEDICAL ADVICE.
please see my WELCOME LETTER/BEGINNER'S LINKS with important links/info galore :)

http://www.mdjunction.com/forums/lyme-disease-support-forums/general-support/2356916-bettygs-welcome-letter-wgood-beginner-links-

Any information provided should not be used to take the place of advice from your personal physician or other professional.

Information on those sites is the opinion of those who publish the sites and is NOT necessarily that of BettyG.

43 yrs. chronic lyme; 35 yrs. misdiagnosed by 40-50 drs. unacceptable; see my profile for more.

03/27/2011 01:52 AM  Top
fabajenna

Hey ron-

I admire that you've done this all naturally. Smile

I am a natural believer as well, and am very close to remission myself.

Keep on posting and help me educate the others on how well and effective naturals are and can be.

Welcome back!

peace


03/27/2011 04:08 AM  Top
shorelinelyme
shorelinelymePosts: 1252
Senior Member

Ron,

It's great to see you posting...I always learned a lot from your earlier posts about natural therapies- and had good success with them. I will be forever grateful to you for recommending biomats- this has been a wonderful adjunct therapy- especially thru our cold New England winter!

As far as conventional abx and lyme & co...There have been people who have gotten well on conventional abx as well- one on my Bart forum who is now off of abx and still doing well...

I think the key...is addressing the inflammation that Lyme & co. has caused, correcting the immune disfunction- that allowed us to get sick to begin with, addressing the hyper-coagulated blood- which protects the bacteria from abx, detoxing the heavy metals & toxins...fixing the adrenals, thyroid etc..and correcting any mineral/vitamin deficiencies...

Everyone is different...so yes, I agree that just taking abx won't likely do it...We all come into this with different issues that need to be addressed with the Lyme treatment to regain our health.

Just my opinion...and keep posting!

JackieSmile

Post edited by: shorelinelyme, at: 03/27/2011 05:20 AM

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