fluffyluggage
Posts: 1274
Senior Member
Send a PM
Give a Hug
|
I agree with debra! It really does sound like Lyme, and the big thing I'd say in the ND's defense is that Lyme is actually a clinical diagnosis. So, you really don't need the bloodwork to "prove" it, regardless of what many docs would tell you. It's great if you can get a positive on a blood test, but many docs will say it's a false positive, which is crap, too! If ever DO get a positive, you can BET it's the truth! Anyway, don't get me started there! Given your history, the fact you had a rash, the tick bite, AND all your symptoms, it certainly sounds like the doctor was accurate. I'm responding after I got your PM and shot one back to your already, so take a look at the sites I sent you, and see what they all have to say. You may be shocked and in info overload by then, but feel free to PM me over and over with any questions you may have after you read them. I'm usually here at least once a day, if not more. I'm always glad to help out wherever I can. I can tell you that there's a lot of "controversy" and crap spread about lyme. Too many people can't figure out the truth. But that's their problem, and it doesn't need to be made into ours. Get you a good doc, and get some care. Now, rather than later!  Please don't wait, because I've waited 14 years to figure it all out, not on purpose, just cuz my doc didn't know what was wrong when I had a horrible flu 14 years ago, and I've spent all this time since sick off and on...My body fought as long as it could, and now I'm really sick. I'm finally doing a natural protocol, which I started only because I STILL can't get a doctor to listen to me about what's going on in my body (Hello? I live here every day!), and after 8 weeks, I'm really feeling better. Many of my symptoms are starting to fade. I'm not great, but I can finally start to feel like I see a light at the end of the tunnel. I'm sure there's still a long road ahead, but I know I'm not dying now, like I was 8 weeks ago! *hugs* Jen Just because it's impossible doesn't mean it can't happen.
I'm not a doc, so anything I say is my opinion only. Nothing I say is meant as offense, I offer what I can as help.
I believe in educating myself on all my medical issues and being my own advocate, for no one else with do that on my behalf. I recommend we all do the same!
The definition of insanity is doing the same thing over and over again and expecting different results. Perhaps I truly am insane for expecting these docs to listen to me when I say the same things repeatedly to no avail? LOL. I am tired of seeking out new docs and getting the same result time and again...Forgive me if I seem bitter some days. |
"MD Junction is my second home, Where my friends are always ready with advise , compassion and a kind word or two. Where I can always be myself never having to put on a brave face or smile if I don't feel like it.
I need some insight please. Just a little confused. My symptoms started in June or July of 06. I went to Houston, Texas. Got bit by misquitos and who know's what else. I love being outside. Then I came back and with in a couple of days I felt like I had the flue. Then 3 weeks later" just guesing here" I noticed a rash on my back with a clear center. I would get burning in my shoulders and arms and numb spots on my face. I blew it off cause other wise I felt fine. Then my neck really started to ache. I had bone pain in my neck. Then I developed anxiety. I went to physical thereapy for my neck. Then I went numb. This is a year after Texas. Arm's, legs, face, neck, and back went numb. Then they went weak. I got headaches and muslce spasms, upper back and neck stiffenes, fatigue, hard time falling and staying asleep, burning sensation in skin. I was told by an MD that I had an automune disorder or an neurological degenerative disease. But he couldn't diagnose me.
How nice of him. Then I was diagnosed by an alternative MD. He told me that I had lyme. But he passed away. Soooo come to find out he diagnosed a lot of people with that? Some of my symptoms have gone away and improved. I still have muscle weakness in lower arms and upper back. I have a loss of sensation in these areas to. I don't feel pain or touch like I should. I get tired and dizzy sometime and just can't think striaght and pain in my shoulder blades. I still have stiffness in my neck and shoulders as well as pain. Knees hurt sometimes too. I'm almost certain I have lyme. But what if the MD is right and I have something else? Has anyone had this symptoms and did you get better? 
