Neuropathy and coinfections

I have three types of neuropathy. Does borrelia burgdorferi (Lyme) cause neuropathy, or is it a coinfection? Both?

In an earlier post, I referred to the neuropathy as "neurological problems." I don't know if it makes a difference.

Does anyone else out there have neuropathy? It's a horrible thing and from what I understand, this will never improve - it will only get worse because once the nerves die, they stay dead.

I did hear taking magnesium helps...I think it does...a little.

and someone told me about neurotonin (sp) med for nerve pain...she said it helps

I've now had a headache for 2 months. Every single day!! It's really starting to get to me....like chinese water torchure, you know....it's never been too bad, like a migrane,....but always just there....well, last night....didn't sleep at all, went migrane I think...felt like I was going to be sick. Of course I was just at the docs yesterday....he gave me medrin or something like that....it's one of those....take 2 pills at onset, then 1 pill every hour until it goes away (basically they are telling you, "this doesn't work") lol. My hubby has to go see him today, so I am going to send a note with him telling him I will try that imitrex again (didn't like it before, but I can't do another night like last night) and hopefully he'll send home samples with hubby.... I know back in the day a doctor could be a doctor and do something like that...but these days the dea has their noses in everything, so who knows....probably have to go pay another copay and waste another hour of my time...

I had 14 tubes of blood drawn yesterday for my LLMD....so we are underway!

With headaches, I take Aleve with some Tums, and if that doesn't handle it, I take the Zomig.

Hope you are feeling good....or as good as we can.

gentle hugs,

jaime

Headaches and air hunger are classic signs of babesia, a tick-borne co-infection. It's very common and also very debilitating. LLMD's normally treat it with Zithromax and mepron. Normal abx doesn't really hit it but they give it along with mepron to avoid the babesia building tolerance to the mepron. Mepron is expensive and looks and tastes like yellow paint but is very effective. Some folks don't tolerate mepron well so they may use malarone, plaquenil, flagyl and other meds.

You cannot get over lyme until the co-infections are eradicated first. There's many supplements that LLMD's have found helpful for babs. The most common is artemisinin which is used worldwide for malaria which is protozoan in nature like babs. LLMD's recommend that ART be used in combination with abx as well. Neem oil seems to have anti-protozoal qualities. Allicin based garlic supplements like Allimax or Allicidin have been found very benfeficial for babs, lyme, bartonella, erlichia and a whole host of viruses, yeasts and bacterial infections.

Expect some major herxing when starting babs treatment and probably through the entire course. I nearly eliminated my son's babesia with artemisinin and a prescribed abx from our LLMD. We've introduced plaquenil to knock it out completely. It's been my experience that babs symptoms are generally worse than lyme and people feel much better once it's eradicated.

I would contact your LLMD immediately as you do not want babs to spiral as it is extremely painful and debilitating. Clear it with your LLMD but you may want to order your artemisinin sooner, rather than later. We use www.allergyresearchgroup.com brand.

I'm sure my bab's/lyme, and everything else is already "out of control".... I have had this for 20 years! Have dx of fibro and MCTD.... never believed in it, always felt there was something more going on...

Came across some lyme info, and I had never thought about it, but 20 years ago I had 2 ticks embedded in my back.... so I wasted no time, got a LLMD, and go at the end of the month. (I have all but a few of the symptoms on the checklist)

Unfortunatly, before we got this figured out, I had 12 facet injections, for pain.... yes, steroids.... little did I know, that in my act of desperation, (I rushed to get it done, we were driving 20 hours to florida for vacation, and I knew there would be no way I could handle that....my pain levels are steady at a 6 or 7....ON MEDS! yeah, not a happy camper), at that time, I didn't know that was the last thing I wanted to do to my body.... since then, things have gone down quickly. I'm scared.

I do have some plaquinil, it was prescribed to me for docs thinking I have lupus.... I never took it faithfully because I always knew in my heart it wasn't lupus....and that med scared me. SO maybe I will start taking it again, and it might help to kill the babs.

THank you again, I do appreciate it. This has been so overwhelming.

You said, your son had babs? How old is he? That is my biggest fear right now , is that I probably passed this on to my kids....ages 5 and 4. I wouldn't wish how I feel on my worst enemy, certainly not my own kids.

Like I said, I believe I have had this for 20 years, so pretty much every part of my body has been affected. So hopefully if we catch it in time for the kids, they will be alright.