fluffyluggage
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OMG! Gantt, I'm so sorry to hear about that. First, please let me tell you that you should NEVER ever allow him to be given steroids EVER again!! That's a major no-no with Lyme disease. It will severely disable him and will keep him suffering longer and longer and will also most likely keep his symptoms returning again and again. It will prolong any treatment he eventually receives. Whatever possessed them to give him steroids at the same time as iv ab's is beyond me, especially when the second hospital found a positive lyme test! Crazy people. Second, I will also tell you that everywhere you go, unless you see an LLMD (lyme-literate medical doctor), you will be told that "ain't no lyme in (insert region/state/city, etc)." That's a load of bull! If you do the research yourself, you'll find that ticks and lyme exist in all states in the US, with the exception of perhaps Alaska and Hawaii...Doctors don't want to see it cuz they don't want to treat it cuz they simply don't want to use their heads for anything more than a silly ol' hatrack. They'd rather make their bucks in a different way. Why? IDK...cuz a Lyme patient is gonna rake in some big bucks for their practice, but they won't do it. I personally think it just takes them too much time to learn and deal with us. But that's JMO... Third, I have a collection of websites if you are interested in learning more about this diseases and its complexities. If you want to PM me, I'll be glad to send them to you. Just let me know you are interested in them, and I'll get them to you. I think it's super-important to educate yourself on what's going on, and to be your husband's advocate is wonderful, cuz so many of us don't have someone to be our advocates, we have to be our own. So, thanks for supporting him and loving him in that way! Fourth, I highly recommend you click on the "group leaders" tab at the top of the page and click on Jaime, Connie, or Clayton, and get a list of LLMD's from them. As far as I know they have the most current lists, and actually Jaime may be the only one who has the most current list, IDK...I know for sure she has a current list, the other 2 may. Tom may have one as well, I don't talk to him much, so I'm not sure! LOL...  Just send a PM to whomever, tell them where you live, give them a little background, and ask for a list of LLMD's in your area. I know they will give you as much help as they can! Ok, hope that some of that will help you. If you want to talk at all or need any more info, I'll be glad to do whatever I possibly can to help you. I'm so sorry you are having to deal with this, but don't feel alone, cuz you aren't! I'm here, if you need to talk or want to vent, or whatever! *hugs* Jen  Just because it's impossible doesn't mean it can't happen.
I'm not a doc, so anything I say is my opinion only. Nothing I say is meant as offense, I offer what I can as help.
I believe in educating myself on all my medical issues and being my own advocate, for no one else with do that on my behalf. I recommend we all do the same!
The definition of insanity is doing the same thing over and over again and expecting different results. Perhaps I truly am insane for expecting these docs to listen to me when I say the same things repeatedly to no avail? LOL. I am tired of seeking out new docs and getting the same result time and again...Forgive me if I seem bitter some days. |
"My mother was not treated immediately with antibiotics when she got Lyme disease..." (rainbowsurfer)
"MD Junction is my second home, Where my friends are always ready with advise , compassion and a kind word or two. Where I can always be myself never having to put on a brave face or smile if I don't feel like it.
