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12/01/2008 16:13
newnoggin
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JUST GOT MY MRI REPORT. IS THIS TYPICAL OF REPORTS? QUOTING: "INDICATIONS: LYME DISEASE, DEPRESSION". ISN'T IT STRANGE THAT THE DOCTOR THAT WROTE THE REPORT WOULD EMPHASIZE "LYME DISEASE" WITHOUT KNOWING ANYTHING ELSE ABOUT MY CASE? IS IT BECAUSE THE REQUESTING PHYSICIAN PUT DX LYME DISEASE ON THE REQUEST? I AM IGENEX POSITIVE FOR LYME. I HOPE LYMEMD SEES THIS POST AND COMMENTS. ANY ADVICE APPRECIATED.
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12/01/2008 18:17
dharma79
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I'm not a doctor or even in the medical field but I have been a patient for a pretty long while. I would guess the ordering physician notated it somewhere.

I just had an MRI done recently too and the technician asked me what I was there for. Is that true for you too maybe? Maybe the tech noted it somewhere?

I have never seen an MRI report yet so I'm not sure I would know what was "normal" reporting.

I was told my results were clear? I was actually having a pretty good day that day and was grateful because I had to drive to the appointment myself. What did the report say exactly? Can other people please comment about their MRI results? Is it possible for them to be inaccurate? or be effected on a day to day basis?

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12/01/2008 23:26
fluffyluggage
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It's really hard to comment on the report without knowing what else is in the report. An MRI report typically has more than just the "Indications" on it. There should be a full report, which should give you more info on why the indications would read as they do. A normal report would indicate that nothing was found on the MRI, but an MRI with indications of Lyme, to me, would seem to have found things like white spots on the brain, or something else like that. I'd hate to comment too much without knowing more, but that seems odd to me that there isn't more info you have, unless you have it and haven't revealed it to us.

I've worked in the medical field a long time with animals, and my extended family's full of nurses and other people in different medical fields (chiropractors, massage therapists, etc). I've been taught to learn as much as possible about all sorts of medical things, including whatever affects me. So, I'm somewhat familiar with MRI's. I've never had anything come back on one, and I've had 4 or 5 in my lifetime--don't ask, you don't want to know! LOL

My understanding is that a full report includes reasons that lead to the indications, and your report should state clearly why the indications are "LD/depression." If you don't have the full report, I'd suggest you request it, so you can find out more info. The indications aren't enough info for you to understand what's going on. If the MRI is normal, the indications are simply what the requesting physician has as a tentative diagnosis and the reason why he is indicating he needed to have the MRI performed. Otherwise, they found something, and you need to know what. I'd say you simply either don't have enough info, or haven't given us enough...

Hope that helps. *hugs*

Jen

Just because it's impossible doesn't mean it can't happen.

I'm not a doc, so anything I say is my opinion only. Nothing I say is meant as offense, I offer what I can as help.

I believe in educating myself on all my medical issues and being my own advocate, for no one else with do that on my behalf. I recommend we all do the same!

The definition of insanity is doing the same thing over and over again and expecting different results. Perhaps I truly am insane for expecting these docs to listen to me when I say the same things repeatedly to no avail? LOL. I am tired of seeking out new docs and getting the same result time and again...Forgive me if I seem bitter some days.

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12/02/2008 05:25
cave76

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NN

You asked:

*****IS IT BECAUSE THE REQUESTING PHYSICIAN PUT DX LYME DISEASE ON THE REQUEST?****

I'd say that's a very good guess.

When a doc writes the MRI request---- he has to put the reason or reasons for the request. (IOW---- no 'fishing trips 'just to see what's there'.)

So, if the doc wrote 'suspected' Lyme or ?? kind of reason for the MRI then a radiologist would probably put down "consistent with" Lyme.

White spots are white spots.

MS and Lyme are so similar (by MRI) that it would take a 'trained' radiologist to see the difference---- AND with the 'right' MRI machine/head AND the best software to help.

That's why most MRI's by the best LLMDs are usually sent to just a few places where the best equipment is installed and the radiologist has been 'trained' to look for those subtle differences.

Even then, it's a difficult call.

I'm pretty sure a radiologist can't 'diagnose' just as a lab tech can't diagnose. Just report 'findings' which in most cases are 'guided' by the MDs lab request.

[Guessing here---- but I imagine that if the radiologist saw a big honkin' tumor in there he's report "HOLY MOLY--- Look at the size of that thing!!!! ]

Again, guessing---- if the MD had written down 'suspected MS' that's what the radiologist would have found ---- with no other VERY obvious defects on the MRI.

Rambling on, my MRI reports did not have a lot of verbiage on them---- described what they found --- "areas of opacity consistent with Lyme" for example and in what area of the brain.

I was told once, by a very UN-llmd, that MRI's were only used to 'confirm diagnoses' NOT to diagnose.

At the time, not knowing much about Lyme and how the medical field operates, I thought he was being obstructive since he told me I couldn't have Lyme disease!!!!

But now I know he was right. And even more so for Lyme disease since it's really difficult to see some of the minor changes.

Trivia: Did you know that, in LymeLand, those white spots are called UBOs?

Unidentified Bright Objects.

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12/02/2008 05:35
Ret
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Hi, I had an MRI intially (a year ago) because of headaches. The MRI showed a few white lesions so then I had a CT Scan. I recieved copies of both but neither stated anything about Lyme or made any kind of diagnosis. My physician said that I had a cyst in my nasal cavity and that the spots were probably as a result of my migraine.

However, in hindsight, maybe the reports should be looked at again because 6 months later and a positive Ignenex test for Lyme could mean that the spots are something else....not sure what?

I have been taking Doctor's advice but they are not a LDMD (Lyme Disease Medical Doctor?) I told them (I don't want to use gender in case they read this forum) that I had confidence in thier direction and advice, except I really do not buy into the antibiotic use.

I don;t know if I have co-infections becuase I never really did fully understand the Igenex lab results. (All those "bees"!) and doctor never explained anything excpt give me some vitamin and supplement directions and send me on my way. Only when I demanded some explainations did I get any, but I realize that I have to take this into my own hands, so this is why I am studying everything everyone writes and I hope that you don;t mind all of my questions!

all the best and to our good heath,


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12/02/2008 07:54
newnoggin
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thanks everyone. i understand much better. the report states, in part," numerous foci of subcortical/preventrical white matter high T2 signal without associated diffusion abnormality" "it is compatible with lyme disease. pattern suggests a demyelinating disease such as MS."
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12/02/2008 08:36
cave76

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*****numerous foci of subcortical/preventrical white matter high T2 signal without associated diffusion abnormality" "it is compatible with lyme disease. pattern suggests a demyelinating disease such as MS."****

blah, blah, blah. LOL

So, you basically got a dx that's on the fence---- only more confusing!!!!

"compatible with Lyme, pattern suggests MS"????

Sheesh---- could that be any more ambiguous?

Sounds like CYA-ville.

Where did you get that MRI, if you don't mind me asking?

Just ignore, if you do mind.

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12/02/2008 08:44
newnoggin
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IT WAS DONE AT LAKE IMAGING IN THE VILLAGES, FLORIDA. THANKS FOR YOUR INPUT.
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12/02/2008 08:50
cmany
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Fortunately, my brain scans have always been ok - not my spine tho - have DJD and my schmerls nodes are misshaped...

But yes it is very hard to distinguish between LD and MS - and if you go with the school who has found MS to be linked with a spirochete infection - well - hmmmm...it would only be logical that this difficulty exists...oh but then again, common sense and logic doesnt equate a medically trained professional right... HA I crack myself up sometimes...

Well I guess we can tell i subscribe to the belief that Lyme and MS are the same if not related strains of the same thing...countless people being treated with steroids...

WHOOPS!!!!! Off topic...

Ret...you should still get with an LLMD. If you cant find one close, and your present doc is on board, then maybe you can find an LLMD who will work with your doc. Abx use for Lymies is important. For those who can tolerate it, and it works well for, it can sometimes be the only thing that works. If you are unsure of it...read on. Learn about how for some it is the answer and for some it isnt...but dont fall victem to all the mainstream info. Lyme breaks a lot of rules. Thus far, it doesnt become resistant like many other bacterias. No Lyme has to change its form and hide within the body in order to escape the abx...

For some the best option is to hammer the disease with abx - then slowly switch to a natural protcol...whether you do one or both, you need to get aggressive with treatment - and in that treating your whole body...

Take the reigns and move foreward...

C

I know what I am and I know what I am not

Never put it past this disease to be the culprit - but we also cant brainwash ourselves into believing that it is the only thing

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12/02/2008 22:45
fluffyluggage
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Well, the T2 is your 2nd thoracic vertebra, if you want to know, that's the 2nd into the thorax and just past the neck or cervical... Not that it really much matters, but that's what they are talking about and where, if you are feeling pain, it may be located and/or radiating out from.

In a way, I agree with Cave in that it does seem that the diagnosis is on the fence, and perhaps a CYA type of thing. However, I'm more of the opinion, as is Christine, that MS and LD are pretty much the same disease, or are linked in some way, so with either one you have essentially the same situation. Both improve with antibiotics and with essentially the same treatment, and, therefore, distinguishing one from the other is virtually impossible. Patterns on MRI's are difficult, as Cave pointed out. The makes it difficult to say exactly why one would state the lesions found are indicative of one disease over another without, as both Cave and I stated, your doctor suggesting why he ordered the MRI. Since the doctor has to do so, that puts a suggestion in the reader's mind as to what he may or may not find. Kinda irritating in a way, tho, as the reader is going into the reading with some hypothesis in mind as to what he or she may find...That could in a sense, IMHO at least, taint the results. Say, for instance, your doctor refuses to believe you have LD and says instead it's MS. Then your results may indicate MS instead of LD...You essentially have a misdiagnosis, correct? Anyway...looks like you have a lot more info now than you did before. I'm guessing you're more satisfied with your answers? Let me know if you want more info, and I'll see if I can help you.

Ret, I have to agree with cmany...I also think it wouldn't be a bad idea to have your MRI's pulled and re-examined with your new diagnosis in mind. You have a good idea there. Good luck to you.

Jen

Just because it's impossible doesn't mean it can't happen.

I'm not a doc, so anything I say is my opinion only. Nothing I say is meant as offense, I offer what I can as help.

I believe in educating myself on all my medical issues and being my own advocate, for no one else with do that on my behalf. I recommend we all do the same!

The definition of insanity is doing the same thing over and over again and expecting different results. Perhaps I truly am insane for expecting these docs to listen to me when I say the same things repeatedly to no avail? LOL. I am tired of seeking out new docs and getting the same result time and again...Forgive me if I seem bitter some days.

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