Well, I went to see the pediatrician today and it was a very frustrating visit. As soon as I started expressing my concerns she had a dismissive answer for each of them.

"Kids get rashes. A lyme rash always looks like a bull’s eye. Any other rash is probably just Eczema"

"Remember, we decided that the neurological ticks/spasms were just benign developmental events."

"All toddles have sensitive emotional states and get upset easily."

I said, "Of course you are right. I know these things are usually nothing. BUT! I am a mother with chronic lyme and am very attuned to the symptoms of lyme no matter how mild or seemingly harmless they appear. Besides, I've already ordered the lyme kit from Igenex so all you have to do is put through the lab request."

I just took it right out of her hands and basically said my son will have this test whether you think it is necessary or not. She insisted that I visit the resident dermatologist anyway. What a colossal waste of time and money. She was less educated on lyme than the pediatrician. I just hate the way they make a parent feel like they are being ridiculous. I was downright angry when I left the doctor’s office.

I told the pediatrician that I would be back as soon as the lab kit arrived from Igenex so that I could get a diagnosis one way or the other.

Do what you have to do to get the answers you need. I am so thankful for my LLMD who gave me the guidance on what to ask for and how to order the lab kit. He would see my son himself, but he is not licensed to treat children.

I'm glad that you are taking control and having your child tested.

If it were just eczema, then it's from an imbalance in the body - but - they won't treat that, they'll just give a cream that will suppress it instead of heal it from it's origin. Drives me nuts!

I hope things work out for you! You sound like you have a great LLMD who gets it!

Post edited by: Clayton72, at: 12/02/2008 15:12

NO bulls eye at all!!!!!

I have had different types of rashes my whole life - just made a post today - regarding them, Lyme and Mold...I had rashes that looked like psorisis & eczema...and they werent...some responded to anti-fungal treatment - some did not. Maybe I will take a pic of the ones behind my ears...

But GOOD FOR YOU! Dont take any crap! You are in charge of your health and his - and that is all there is too it...YEA!!!!

As far as the Autisim Lyme Immunization connection - my brother and sisters were immunized and they all have learning disabilities to some extent. Brother is high functioning - PDD/NOS with some Autisitic traits...yea yea...all that lingo. The older sis of the 3 has Communications Deficite, and the youngest had problems with concepts...NOW she has mass confusion...

Now we have evidence that it was probably mercury poisoning that was the leading culprit - add the Lyme - as it was most likely passed at least to Avery & Ashley...Amber we suspect was bit - as she develped a sleeping sickness - and her symptoms just seem to follow a different path...but def lyme.

I personally think that it was a mix of everything that caused the autisim - and that maybe our genetic line may be predisposed - we have many family memebers that fit into the Lyme category - on several levels...

Hubby and I chose not to have our 4 girls immunized. I have a book - somewhere - as does my mom - will get the name of it and post it...but it helped us to understand what the natural process of deveolpment is - and what issues early immunization can cause - digestive issues...on and on. So we have only had them get the DTap - and that was because where we moved, they were digging up TONS of metal objects, nails screws and and what not...even here where we are now - we started the DTaP on our youngest - 20 months, because this house is FULL of random screws - i am constantly cutting myself...

Opinions are going to differ...bottom line - These kids have autisim - and there are prominent docs that are connecting Lyme with Autisim too...as a responsible parent You are not going to dismiss that info and possibility...the ped may not like it - BUT hey - she is just a ped & if a specialist is leaning in this direction then You will too - and maybe she just might learn something....

Sorry - have to run - dinner, kids and homework - headache and MOLD to treat...

I am SO proud of you for sticking to your guns -

Talk to ya soon

Christine

tell them to take that "RASH" BS and stick it - it is a cop-out thing to fall back on - and it makes them sound uneducated and shows that they just lack plain old common sense...

I have an old post somewhere - where I said the following:

"I am willing to pay for you to treat me, BUT I am NOT willing to pay for YOUR ignorance!"

OK - running off now

Christine

Christine - I'm really sorry to hear about all of the sickness in your family. There is a tiny bright side though. They all seem to be open to understanding their own health and getting proper diagnoses. My sister was sick like me for years. She stumbled upon a doctor who told her that she had Lupus (with very little evidence to substanciate the claim) and my sister stopped looking for answers. I watched her get sicker and sicker while she was treated with steroids for "Lupus". Meanwhile, I got healthier and healthier by undergoing Lyme treatment. When I tried (on several occassions) to talk to my sister about Lyme, I was shut down. Her doctor said she didn't have Lyme so that was that. Even when her daughter was born with rashes (which don't occur with Lupus), she didn't want to hear it.

Does anyone else have this problem with their family members? I know it's ridiculous and I can't beleive it myself. If has been a source of frustration for many years now. It's gotten to the point where I don't even mention the word Lyme in the presence of my family. They think I'm coo coo and think everyone under the sun has Lyme. But I don't, just my familiy members who display Lyme symptoms. Why? Because families are exposed to the same environments.

I've chosen not to tell them about what's going on with my son right now because I don't want to hear what ridiculous things might come out of their mouths. They will probably accuse me of putting my son through unnecessary testing to further my own agenda. AHHHHH!!!!

I'm so thankful that I found this support site. For the most part "support" is the one thing I have not had through all of my dealings with Lyme.

As I read your post, I find myself totally relating to what you are going through....I have been just recently diagnosed with Chronic Lyme. I was intructed to go a month on this "pretreatment" and just started on Antibotics on December 1st....My son is 10 and tested positive as well, so had to been with this disease for over 10 years. My son has High functioning Autism as well.. I don't know if it's my own paranoid feelings, but I sometimes feel I need to keep my opinions to myself...I guess it's a bitter sweet moment knowing my son is positive for Lyme's if that makes sense. I have so many mixed emotions right now....I just feel I want to help anyone with sicknesses left undiagnosed and say, YOU HAVE LYME! If my family looks at me funny, surely the rest of the world will have me committed ;0)

Hang in there!

Thanks for the support. I completely understand the bitter sweet part of diagnosis. I'm not crazy, YEA! I have Lyme, BOO! It is very emotionally confusing.

I'm really happy that you got a diagnosis and can now start on the path to better health. It's a long an winedy road with some set backs and detoures, but stick with it because the good times and good health are worth all the pain of the illness and the inconvenience of the treatment. It's too bad that more people don't want to take the journey with us.

-ACB