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11/28/2008 18:33
missy1
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Ok I just put this in my diary but now I can't get it onto the forum page. How sad is that? Anyway I'll make this as short as I can. I was diagnosed with acute Lyme Disease about 6 weeks ago. I was probably infected in the summer. I gradually had symptoms coming on but I did not know it was Lyme. I got extremely sick in early Oct. Vertigo so bad I couldn't even walk. My ENT figured out it was Lyme. I'm on my 2nd round of meds. My ID Doc only put me on my 1st med for 10 days. He feels it's Acute and will go away. I got a 2nd opinion behind his back and she put me on something for another month. Some days I feel better and I start getting my hopes up and then I have an awful day. Don't get me wrong I am better than I was. My question is do you think I can ever recover fully from this? Is there any such thing? My 2nd doc seems to think so. I was so active before. I even taught fitness classes 6 days a week. i'm starting to work out again--but it ain;t pretty!!LOL Anyway does anyone know if you can ever fully recover??

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11/28/2008 23:25
amccaffrey
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I wish I had an answer for you, but I'm still searching for that and lots of other answers, too! I was just diagnosed 3 days ago. Anyway.....

I really hope your treatment starts to help you soon. Maybe you are going through herxing?

Good luck to you!!

*Allison

"It puts the lotion on or else it gets the hose again."
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11/29/2008 06:55
fluffyluggage
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Hi Missy,

We've had this discussion before, and honestly, it kinda turned into a debate. I will tell you that my honest opinion is that yes, you can recover. Whether or not this disease is curable, I don't know, and I honestly do not believe that it will ever completely go away. I pray that one day, we will find a cure, but there is just too little known and too few docs out there who really give a crap about it or us. I just can't bring myself to believe that I, personally, (only for me, not for anyone else--just me!) will ever completely be cured. I think that there's a chance for a relapse no matter what we do. I think that it's a really difficult thing for us to expect that it can ever go away completely. But, having said that, I find that there's no reason not to hope!

I do think that we can recover and live normal lives. We may have more infections, as we already do, and be more prone to pain and other issues than others, as we already are, but I think that in general, once we are recovered, we can live relatively normal lives. I think that the risk for relapse will probably always be there. However, I also know that Connie, Julie, Ann, Denise, and Clayton, and perhaps others here that I don't know about are in remission. They are doing EXTREMELY well, and I couldn't be happier about that. It gives me hope that perhaps they are cured, and they could be for good. We shall see, and only time will tell...

There's just a part of me that can't believe it's forever. Forever's a long time! LOL But I do think you have to have hope, and you have to have a positive attitude, and know that you can get better, you can heal. I know that I AM getting better. I'm better than I was when I started this natural protocol about 8 weeks ago (and before that, too!). And I can tell you that I felt a whole heck of a lot worse when I first started it. The first 6 weeks were hell!! I'm just now starting to feel some improvement. And it's not that much, but I now have some hope that I'm gonna get better. And I'm just now starting to be able to function, and to have a brain that is starting to work! Yippee!!!

*hugs*

Jen

Just because it's impossible doesn't mean it can't happen.

I'm not a doc, so anything I say is my opinion only. Nothing I say is meant as offense, I offer what I can as help.

I believe in educating myself on all my medical issues and being my own advocate, for no one else with do that on my behalf. I recommend we all do the same!

The definition of insanity is doing the same thing over and over again and expecting different results. Perhaps I truly am insane for expecting these docs to listen to me when I say the same things repeatedly to no avail? LOL. I am tired of seeking out new docs and getting the same result time and again...Forgive me if I seem bitter some days.

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11/29/2008 10:04
Julie4848
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Hi:

I recovered, my doctor and myself believe its in "Remission"...He did however tell me it can show its ugly face at any give time...I try very hard to keep my system up and running, eating well, detox baths, vitiams, etc, etc....I do know when I'm run down my neck/knee will start to hurt and I know its time to, relax if at all possible...

Cure, I don't know, I don't think anyone can really answer that question....Hopefully one day we can....

Lyme will not win, we will and we WILL…

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11/29/2008 12:54
missy1
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Thanks for your input Jen! I only know one person that has it and she's been sick for about two years, however my husband who's a "suck it up" your fine kinda guy swears that two guys he works with had it and were perfectly fine after a month of meds. They did both find out they had it in early stage though. The person who I know found out after many years. I found out after a few months! Who knows, right?

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    no joint pain?????
    Sjogren's Syndrome
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11/29/2008 12:57
missy1
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Julie thanks so much for your positive story. I know I'm a thousand times better than I was in the beginning so I really hope I can get this Lyme thing under wraps! Wishing you continued good health!

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    no joint pain?????
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11/29/2008 13:13
Julie4848
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Missy:

You will, it takes time and sometimes lots of it. I was planning my wedding when I was bitten by my "Love bug"...Pretty much ruined everything...I was really sick from Aug until March, then little by little I stared to feel "Normal" again...

Hang in there, your time will come hopefully soon.

Julie

Lyme will not win, we will and we WILL…

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11/29/2008 18:10
fluffyluggage
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Hey Missy,

My sister was kinda the same way your husband's co-workers were. She was caught early, and she says she is fine now, and she only had about 3 weeks of treatment. I worry about her all the time, but at this point, I don't have the energy to do more for her. I try to educate her, because she has a lot of aches and pains that I feel are related to Lyme, and she also has rage issues that I think could be attributed to a co-infection that was never treated. However, it's her life. My opinion on some of the early stage lyme is that they are likely to have it rear its ugly head later in the game. But I think there's too much we still don't know. And by that I mean "we" in the general Lyme community. I suspect doctors have a pretty good idea and they just aren't saying! Which sucks for us. But we'll find out one day, right?

Good luck in your healing process. I do have faith both of us will get there. You don't know my story, but I've been sick for 14 years from this, and only just now figured it all out and put it all together. It's been a long haul, but after 8 weeks of natural treatment, I really AM starting to get it together and feel better...So, that's a really, really good thing. The fact that I can put this many coherent sentences together is AMAZING! LOL *hugs*

Just because it's impossible doesn't mean it can't happen.

I'm not a doc, so anything I say is my opinion only. Nothing I say is meant as offense, I offer what I can as help.

I believe in educating myself on all my medical issues and being my own advocate, for no one else with do that on my behalf. I recommend we all do the same!

The definition of insanity is doing the same thing over and over again and expecting different results. Perhaps I truly am insane for expecting these docs to listen to me when I say the same things repeatedly to no avail? LOL. I am tired of seeking out new docs and getting the same result time and again...Forgive me if I seem bitter some days.

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    feeling alone
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11/30/2008 06:27
missy1
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When you say natural treatment do you mean vitamins or something prescribed by a doctor?

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    no joint pain?????
    Sjogren's Syndrome
    Lyme
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11/30/2008 10:34
fluffyluggage
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Well, I don't mean vitamins only, but that is part of the protocol. But I also don't mean something prescribed by a doctor, either, at least not in my case. I can't even get a doctor to believe that this isn't all in my head. I've been officially diagnosed with FMS and CFS, but I've figured out that both are caused by Lyme, with a lot of thanks to the help I've received from some close friends and people in this community.

What I mean by a natural protocol is things like herbs and vitamins and that sort of thing. If you're interested in knowing what I take, send me a PM, and I'll be glad to give you the rundown of everything. There's one more herb that I'm going to be adding, but I'm still doing the research on it at the moment, so I'm not quite ready to add it till I know a little bit more. But what I'm doing so far seems to be working and is helping me quite a bit. Since I can't get "conventional" treatments, I'm not willing to sit back and die, as the docs would have me do! LOL

Just because it's impossible doesn't mean it can't happen.

I'm not a doc, so anything I say is my opinion only. Nothing I say is meant as offense, I offer what I can as help.

I believe in educating myself on all my medical issues and being my own advocate, for no one else with do that on my behalf. I recommend we all do the same!

The definition of insanity is doing the same thing over and over again and expecting different results. Perhaps I truly am insane for expecting these docs to listen to me when I say the same things repeatedly to no avail? LOL. I am tired of seeking out new docs and getting the same result time and again...Forgive me if I seem bitter some days.

Popular posts by fluffyluggage
    feeling alone
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