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11/26/2008 10:51
Sonya
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I have a question for you (or someone using alternative meds).... I have had the Herpes Virus come up several times since my immune system is so down. It is not visible, but manifests in my nerves, mainly my heart and causes me to not be able to breathe very well a lot of the time. My doctor put me on Andrographis (an antiviral and microbial) which helps sometims, but it is so hard to find the right dosage because if I take too many drops, it kills more bacteria making my body bring up the virus again. Have you had to deal with this at all? Any ideas? Thanks so much for your time...

Sonya

Just diagnosed 4 months ago with Late Stage Lyme Disease. I am 34 years old and have suffered from Lyme symptoms since I can remember - 4 or 5 years old. Have "chronic fatique" and severe depression symptoms... although after 4 months of treatment the depression has disappeared!!! YIPPEE!! In bed all the time though, can only stand up for about 10 minutes until my body goes into a physical panic. If anyone can relate, please send me an email and we can share stories.

I am doing a "naturopathic" protocol with my doctor. It consists of antimicrobial herbs, Ondamed biofeedback (similar to Rife), Glutathione I.V.'s, nutritional I.V.'s, Digestive supplements and enzymes, probiotics, etc....
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11/26/2008 11:38
fluffyluggage
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I'm not familiar with Andrographis, but if it's anything like Samento, my guess is that you should probably decrease a bit until you can increase it safely. With Samento, it causes a Herx reaction, the die-off of toxins that make you feel like crap. It makes your symptoms flare-up and causes you to feel really icky, and some of us, it makes us want to just die. Sounds kinda like what you're describing. The recommendation is that you back off a bit on the dosage and then increase more slowly, so that it's more tolerable on the body. For instance, if you are increasing at a rate of a drop a day, perhaps you should increase at a drop every few days instead... I'm not sure if that is what you are asking, but it sounded like it, so that is my only suggestion. Sorry if it doesn't help or apply! Hope it will help a bit! *hugs*

Jen

Just because it's impossible doesn't mean it can't happen.

I'm not a doc, so anything I say is my opinion only. Nothing I say is meant as offense, I offer what I can as help.

I believe in educating myself on all my medical issues and being my own advocate, for no one else with do that on my behalf. I recommend we all do the same!

The definition of insanity is doing the same thing over and over again and expecting different results. Perhaps I truly am insane for expecting these docs to listen to me when I say the same things repeatedly to no avail? LOL. I am tired of seeking out new docs and getting the same result time and again...Forgive me if I seem bitter some days.

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11/26/2008 13:15
Sonya
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Jen, sorry about these two emails. I meant for them to go to another person. I don't know what the heck happened.
Just diagnosed 4 months ago with Late Stage Lyme Disease. I am 34 years old and have suffered from Lyme symptoms since I can remember - 4 or 5 years old. Have "chronic fatique" and severe depression symptoms... although after 4 months of treatment the depression has disappeared!!! YIPPEE!! In bed all the time though, can only stand up for about 10 minutes until my body goes into a physical panic. If anyone can relate, please send me an email and we can share stories.

I am doing a "naturopathic" protocol with my doctor. It consists of antimicrobial herbs, Ondamed biofeedback (similar to Rife), Glutathione I.V.'s, nutritional I.V.'s, Digestive supplements and enzymes, probiotics, etc....
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11/26/2008 14:13
jaime1978
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I believe there are several herpes strains, hsv1, hsv2, hhv6 , etc. MANY lymies have underlying viral issues as well. unfortunatly, when I begged a pain managment doc to give me a nerve block in my spine because I was in so much pain, he gave me 12 facet injections. later I find out, you should 1, never have steroids as a lymie, and 2 never have steroids into your spine as that's where viruses lay dormant, and it activated them. although not showing outward symptoms, they are eating my body alive from the inside, one of the most painful things. valtrex is a drug of choice it seems.

also, check into lauracidin, olive leaf extract, and garlic supplements, they have some amazing benefits for pretty much all the issues us lymies have to deal with. even healthy people should be all over these things.

Please do not take anything I say as medical advice. I am not a doctor.

~lyme disease support group leader~
please pm me with any special concerns
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11/26/2008 16:20
Jenn56
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Hey i have always had herpes of the mouth since i was a kid,,But ever since i got lyme it is out of control,i just got off of valtrex a few days ago,had an outbreak on my mouth so bad its still kinda there,,Almost 2 wks already,,And my lil man Aiden gets it as well,the doc had to put him on zovirax,,

Post edited by: Jenn56, at: 11/26/2008 16:20


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11/26/2008 17:00
KStuff
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I used to have chronic canker sores. Sometimes I'd have 10 or 15 inside my mouth at once. Sorry, maybe that's TMI. Anyway, a benefit of having lyme disease is that I no longer have canker sores. Weird.
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