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Lyme Disease ForumsGeneral & SupportDementia with Lyme
02/16/2011 12:14 PM
mack265546
 
Posts: 12
New Member

I was diagnosed with dementia this week.

Has anyone else had this diagnosis? I'm so scared for my family as I've NOT responded to any of the antibiotic protocols or homeopathic remedies.

I've been dealing with this illness for over a year and seem to be getting worse instead of better.

Post edited by: mack265546, at: 02/16/2011 12:31 PM

Reply

02/16/2011 03:52 PM  Top
toothfairy55
toothfairy55  
Posts: 3856
Senior Member

Hi Mack

Have you been tested for co-infections? Some will prevent you from getting better until they have been treated.

Carol

I am NOT a doctor, anything I share is based on my experience & research. I encourage you to discuss any and all information that I share with a health care provider.

02/17/2011 01:44 AM  Top
Bettyg
 
Posts: 27304
VIP Member
I'm an Advocate

mack; what horrible news to get!

carol is right, have you tested for co-infections? or print off the co-infections SYMTPOMS LIST from my welcome letter found at top of SUPPORT STICKY. if you have many of these NOW/RECENTLY, you've got a good chance of having them.

dementia ...they weren't specific as there are 10-25+ different types!

Alzheimer's is just 1 type of them.

what tests or equipment used to determine this diagnosis?

prayers headed your way. how long have you been sick before diagnosis/treatment?

betty....hugs to you

BettyG, IOWA ACTIVIST
RETIRED llmd coordinator of 6 yrs; group leader

NOTE: I DO "NOT" USE CHAT thanks!
**************************************

NO INFORMATION SHOULD BE CONSIDERED MEDICAL ADVICE.
please see my WELCOME LETTER/BEGINNER'S LINKS with important links/info galore :)

http://www.mdjunction.com/forums/lyme-disease-support-forums/general-support/2356916-bettygs-welcome-letter-wgood-beginner-links-

Any information provided should not be used to take the place of advice from your personal physician or other professional.

Information on those sites is the opinion of those who publish the sites and is NOT necessarily that of BettyG.

43 yrs. chronic lyme; 35 yrs. misdiagnosed by 40-50 drs. unacceptable; see my profile for more.

02/17/2011 02:24 AM  Top
goodbylyme

Mack did you test positive for lyme?

02/17/2011 05:45 AM  Top
shorelinelyme
shorelinelymePosts: 1252
Senior Member

Mack,

What tests were run- to come to the diagnosis of Dementia?

The reason I am asking- is a girl from this site who lives in my state- had a SPEC scan done- and the radiologist told her that the scan showed that she either had dementia (and she was too young for this) or Lyme disease.

It seems that on these scans- Lyme LOOKS like dementia.

The last time this girl was on- she was MUCH better...so it seems that this can be treated and reversible with the correct treatment. I will PM you later with her name- she did have a post where she listed the abx that the doctor used- which seemed to help. I will send you a copy of this post as well.

I hope you start feeling better soon- and I will keep you in my prayers.Smile

Jackie

Post edited by: shorelinelyme, at: 02/17/2011 06:00 AM


02/17/2011 06:27 AM  Top
VicMac
VicMac  
Posts: 1653
Senior Member

Mack, I hear your fear. You will be in my prayers.

I sometimes wonder about myself with this. Which ever infection I have has definately invaded my head and seems in some ways to only get slightly worse as time goes on.

But as Toothfairy mentioned, this kind of head symptom is most often due to the coinfections of Lyme. And once those can be addressed, there is definately hope for a turn around.

I am embracing this hope myself as I am adjusting my natural therapies.

Dont lose hope Mack!, I believe you can turn around no matter what the cause is!

Hang in there and God bless!

Post edited by: VicMac, at: 02/17/2011 06:28 AM

I wish I had solutions for everybody here who is suffering, but I am still hunting for them myself and seem to be more of a student on this board than a teacher. All I have to offer is my experience, support, and prayers based on what I have learned in my recovery. I am not a physician.

02/17/2011 12:15 PM  Top
mack265546
 
Posts: 12
New Member

Yes, I've been tested for co-infections and am positive for booth Babesia and Bartonella.

I've had several scans of my brain. One when I was initially diagnosed came back normal. We did additional tests this past December and there were 4 spots on my brain (2 on the left, 2 on the right).

The doctor's I've seen (LLMD, Neurologist, and Neuropsychiatric) all believe the dementia is lyme related. Our issue is that I have had countless allergic reactions to antibiotics. I've had 2 anaphalatic (sp?)shock episodes and others that we caught in time to know not to take them anymore (rashes and whatnot).


02/22/2011 08:34 PM  Top
toothfairy55
toothfairy55  
Posts: 3856
Senior Member

Hi Mack,

There are a few on the board with allergies to antibiotics. Julie is one. PM her and Im sure she will run down how they delt with this.

I have a few allergies to ABX but my biggest class of drugs that I have terrible reactions to is the anti depressants.

There is always the herbal route. S. Buhners is the one I am on in addittion to 2 different ABX that I have had no problems with.

They can test you to see which abx you can tolerate. Its good info to know incase you get really ill

Carol

I am NOT a doctor, anything I share is based on my experience & research. I encourage you to discuss any and all information that I share with a health care provider.

02/22/2011 09:27 PM  Top
Bettyg
 
Posts: 27304
VIP Member
I'm an Advocate

mack, in my welcome letter is this link; did you see it too?

American Museum of Natural History 2 SLIDE SHOWS

http://www.amnh.org/sciencebulletins/index.php? sid=h.s.lyme_brain.20100125

when you get to the site go to upper right hand corner and type in LYME DISEASE hit enter and it brings you to this very well-done slide show on LYME disease! it shows ”brain lesions” too. 1st one is DATED JAN. 25, 2010.

BettyG, IOWA ACTIVIST
RETIRED llmd coordinator of 6 yrs; group leader

NOTE: I DO "NOT" USE CHAT thanks!
**************************************

NO INFORMATION SHOULD BE CONSIDERED MEDICAL ADVICE.
please see my WELCOME LETTER/BEGINNER'S LINKS with important links/info galore :)

http://www.mdjunction.com/forums/lyme-disease-support-forums/general-support/2356916-bettygs-welcome-letter-wgood-beginner-links-

Any information provided should not be used to take the place of advice from your personal physician or other professional.

Information on those sites is the opinion of those who publish the sites and is NOT necessarily that of BettyG.

43 yrs. chronic lyme; 35 yrs. misdiagnosed by 40-50 drs. unacceptable; see my profile for more.

02/23/2011 12:03 AM  Top
inkyblck
inkyblckPosts: 446
Member

Mack, please hang in there ~ keep positive, and remember, this is to be taken in stages ...

Let me ask: do you have any mercury ( amalgam ) fillings in your teeth ???

Mercury and lyme will cause havoc, esp neurological ...

Lyme might actually be a seconday problem in people with mercury issues ...

http://www.hbci.com/~wenonah/new/9steps.htm

The same goes for mold toxins ...

http://www.royalrife.com/mold_toxins.pdf

If treatment for lyme is just making things worse, I would highly recommend addressing either of these two things, esp the mercury / dental aspect ...

Post edited by: inkyblck, at: 02/23/2011 12:10 AM

I am NOT a "lymie" ~ I loathe that term ... I will not be defined by the vile bacteria that will very soon be out of my system ~ If you consider yourself a "lymie" right now, what will you have left when you rid yourself of the bacteria ~ nothing ??? ... Don't be a "lymie", be YOURSELF and fight it ...

...

And by the torrent on the banks thereof on both sides shall grow all trees that bear fruit: their leaf shall not fall off, and their fruit shall not fail: every month shall they bring forth firstfruits, because the waters thereof shall issue out of the sanctuary:and the fruits thereof shall be for food, and the leaves thereof for medicine. ~ Ezekiel 47:12
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