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Lyme Disease Support Group
A community of patients, family members and friends dedicated to dealing with lyme disease, together.
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11/25/2008 15:12
jaime1978
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Hey my friends. I had posted this under a disclaimer thread, but want to make sure it's seen.

I first want to thank everyone for their recent cooperation, it seems as though things have calmed down. But I do want to make sure that us veterans and newbies alike see this. We have lost some wonderful members because of conflicting attitudes.

golden rule of a forum, ANY forum "take what you need and leave the rest"

this isn't a debate on whose right or wrong regarding treatments, there is no one way to treat lyme disease...otherwise, we'd all be on the same treatment and "cured". The treatment of lyme disease is a work in progress, and we have the chance to help people that are lost, confused, scared, etc. Sharing information is great, we are all entitled to our opinions, without fear of a personal attack. We can offer our opinions, our experiences, etc, it is up to the person to ask their doctors, or do thier research and make the personal decision as to what they FEEL will work for them.

Things can come across wrong enough thru emails and message boards, it can be hard to grasp the tone. So, lets try to help that out by not making any personal attacks.

Splitting the group or adding rooms making them natural or conventional has crossed our minds, but after thinking about it and discussing it, we'd like to NOT have to do that. It would be a shame if someone missed out on something that could help them, just because they "thought" they were drawn to one way or another.

If anyone has any further problems, please feel free to pm me and we can discuss it and try to find a solution.

warmest regards,

jaime

Please do not take anything I say as medical advice. I am not a doctor.

~lyme disease support group leader~
please pm me with any special concerns
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11/25/2008 15:43
Julie4848
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Posts: 1367
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Well said...
Lyme will not win, we will and we WILL…

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11/25/2008 18:37
AnnF
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Thanks Jaime, like to see the forum back on track!

Thanks for your leadership! We're all sick and looking for help, don't need the extra upset when things go south here.

Happy Thanksgiving everyone!

Ann

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11/26/2008 05:34
jaime1978
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Thanks Ann I agree, life with lyme is hard enough as it is.

I do understand that many people don't have good 3D support, I know I didn't in the begining, I have some hellish stories of family and friends, and even still some of them are just ridiculous. (ie, I'm the "sick" mom, and yet at least once a week I'm getting phone calls from another mom saying "can you pick up so and so from school for me, I'm tired and want to take a nap" ARE U KIDDING ME? yeah, a nap would be nice!

I also understand a lot of us have lyme rage. When I first started on support groups, I started at a different one where attitudes just flew all over the place. At first it was almost nice to take your aggressions out on complete strangers, because sometimes we have nowhere else to do that, but then after a short time, it just became so stressful with all the anger. SO I moved on to here. This site was new and small, and since I had been researching and learning, I realized that I did have lyme rage, and made a consious decision to not let it get the best of me , to the best of my abilities. and it felt so much better to reach out and help others, rather then be mean.

yes, I still get bouts of rage, and we're all entitled to be angry about this disease, and we're all entitled to vent about it. And I'm glad we have a safe place to do so. But venting about this, is different than making personal attacks.

So again, I'd like to thank everyone for their cooperation.

Please do not take anything I say as medical advice. I am not a doctor.

~lyme disease support group leader~
please pm me with any special concerns
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