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05/20/2007 16:55
jaime1978
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Ok, I am only 28....been sick for 20 years...but mostly the sickest for the past 10.... going to see a LLMD and hopefully get some help.

By trade I am a massage therapist, but haven't been able to work since I got my license...my body just can't do it. So seeing as I really havne't worked much in my life, my husband thinks I am not eligable for disability or SS.

DOes anyone know anything about this? I would think I should be able for something....what about people who are born with illnesses that can never work, they can get money....

THank you

Please do not take anything I say as medical advice. I am not a doctor.

~lyme disease support group leader~
please pm me with any special concerns
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05/20/2007 21:30
erleichda
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OMG, other than the fact that I am 20 years older than you are, we really do have a lot in common! Massage therapy is another one - I also used to be a massage therapist. I am a PC specialist also, but used to do massage therapy in the evenings and on weekends. I got my license in L.A.

Here's a link for the Benefit Eligibility Screening Tool (BEST). It will help you find out if you could be eligible for benefits from any of the programs Social Security administers: https://s044a90.ssa.gov/apps7/best/benefits/

Here's the main SSD page: http://www.ssa.gov/disability/

Hope this helps.

Lori

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05/21/2007 05:05
jaime1978
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God Lori, that's hillarious....we do have so much in common!!!

Isn't it so sad, that here we are...these once naturopaths, believing in alternative healing, etc...and now we are subject to a life of hell.

thanks for the links, I wll check them out.

hugs to you,

j

Please do not take anything I say as medical advice. I am not a doctor.

~lyme disease support group leader~
please pm me with any special concerns
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05/21/2007 06:42
jaime1978
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well, Lori, this is what the test showed me...so I guess I might be eligable ...

Based on the information you gave, you could get the benefits listed below now or later in addition to any benefits you're already getting.

Spouse's Benefits

To be eligible for Social Security spouse’s benefits, you must:

Be married for at least one year to someone who receives Social Security retirement or disability benefits;

Be at least 62 years old or caring for a child (under age 16 or disabled) of the retired or disabled worker; and

Not be getting a higher Social Security retirement benefit based on your own work.

Based on the other information you gave, you could get Social Security spouse’s benefits whenever your spouse begins to receive benefits if you are not getting a higher benefit on your own work record.

Please do not take anything I say as medical advice. I am not a doctor.

~lyme disease support group leader~
please pm me with any special concerns
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05/21/2007 13:05
erleichda
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So, you can't get disability benefits? I really have brain fog so please forgive me. The way it reads - to me - is that you can get SS retirement benefits, but not disability benefits. I'm not certain that this is true. I'd contact someone there and ask. They're very helpful and you can call or email them: http://www.ssa.gov/reach.htm.
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05/21/2007 13:10
erleichda
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I'm sorry - now that I look at it, you're right. I'm sorry, I missed the first part of your note - I don't know where my head is today. I would still call to be sure, before you start filling anything out. You would not believe how long it takes to complete the application - it's HUGE. I recommend doing it online - they really did a good job of making the online application process easy to understand and do. It just takes a long time!
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05/21/2007 13:46
jaime1978
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of course, I don't know if I need a doctor to deem me disabled....but I'm sure once I start working with a LLMD that wouldn't be too hard considering all the pain in my nerves, bones, ligaments, etc, etc. and fatigue...
Please do not take anything I say as medical advice. I am not a doctor.

~lyme disease support group leader~
please pm me with any special concerns
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05/21/2007 15:09
erleichda
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The problem is that Lyme disease isn't in the social security administration's impairment listing manual. You need a doctor who will have the proper documentation in their records. It isn't enough that a physician say that you are disabled...they need to write the medical proof. It's best to have them - with your help - complete a residual functional capacities (RFC) form and submit that with your other documentation to SSD. Here are two sites with excellent information (and sample RFC forms):

http://disabilityblogger.blogspot.com/2006/09/social- security-disability-ssi-and_27.html

http://www.disabilitysecrets.com/social-security-disability- lyme-disease.html

I hear a lot of rumors but some of them include that the SSD denies the first time: everyone under 50, everyone with fibromyalgia or CFS, everyone with Lyme. But if you appeal the decision, you will get it as long as your medical records reflect illness. I think it involves a lot more than that.

I was denied the first time and I am waiting for appeal. At the time of my denial, my treating physician was my pain management physician, and he submitted a letter that stated that I would never be able to work in any gainful capacity - and had the medical records to back it up. I was still denied. But I had fibromyalgia and was under 50, so...I don't know.

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05/21/2007 15:41
jaime1978
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Thanks for the info...I will check that out. I made some phone calls today, and Dr. J in PA takes my insurance!!!! SO I am going to make an appt with him, and make sure I print out all my info and see what happens....

I know I could never be gainfully employed...tire too easily, too much pain, can't lift too much, can't stand too long, can't sit too long...sometimes the government just pisses me off....I know people on disablilty who are just fine....and I know people who really need it who are denied

Please do not take anything I say as medical advice. I am not a doctor.

~lyme disease support group leader~
please pm me with any special concerns
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05/21/2007 21:34
erleichda
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I know, same here. All it takes is the right doc. If you know someone who says the right things, then you're in. I know someone who sees her brother-in-law, they did the right things and she got it the first try - and she has fibro. I shouldn't say that her symptoms are not as severe as mine, but they're not Even she admits it.

Yeah, I'm bitter. Last winter, my doc retired two weeks before I received the paperwork from my work disability (for the 2-year mark). I didn't have another physician who could step in - I had specialists who were treating me, but not a primary physician who had a history with me who could say that I was disabled for these reasons. So, I guess you always have to have a spare or you lose your benefits.

I have severe fibro , small fiber, large fiber and autonomic nervous system neuropathy. I have degenerative disk disease in my spine. I am full of arthritis. My muscles are weak and I have atrophy in my left arm and left leg. The muscles on the inside of my feet have weakened and my big toes are starting to go underneath my other toes (they've moved 1/2 inch in the last 6 months). I've lost 110+ lbs. in the last year for no reason, with 70lbs. lost in 4 months. I have almost no motility in my intestines. I've had seizures and abnormal brain scans. I have Raynaud's, severe full-body pain and fatigue, migraines, TMJ, muscles twitching and shaking, dizziness, nerve pain, a constant vibrating hum that runs through my body like I have a screwdriver in an electrical socket. In two months I lost half my head of hair, lost most of the use of my hands. My eyesight has deteriorated rapidly. I have scars all over my body from multiple rashes. I have pain all over my body like someone is stabbing me. I have large spots of burning in different places all over. My face burns 24/7 like a severe sunburn, and it makes my eyes water all the time. I wear the numbness in my legs like thigh-high stockings. Due to severe muscle weakness, I've lost the ability to laugh and cough and have trouble breathing. ANS neuropathy symptoms are responsible for decay in many root-canaled crowned teeth and I can't afford to get them all fixed (root surgery and replacement of crowns and bridges). Geez, I could go on and on but my point is that we all have so many symptoms and need disability for as long as we need it.

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