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Lyme Disease ForumsGeneral & Supportroaring in my head!
11/25/2008 06:33 AM
jennyC
jennyC
 
Posts: 93
Member

I constantly hear a roaring sound in my head - also a ringing in my ears! (sound sensitive - any loud noises startle)

My head feels like it is vibrating - and this is all of the time!!

my other symptoms come and go but this one is there all the time!!

When i lie down - i feel a misty feeling around my head and almost like being dizzy without moving!

Can anyone shed some light??

Has anyone experienced the same?????

any feed back i will appreciate ~ seems to stun the docs when i mention the roaring in my head........but i would think that my central nervous system is very inflamed - maybe??

Thanks!

Reply

11/25/2008 07:55 AM  Top
mem6757

Me too not roaring ..very loud hissssing...hated it, i did not have the dizzy issues like you... this is my opinion,, after i started taking P73 Oil of Oregano...it went away in roughly a month.I would cycle days 1 day Samento.. one day P73 OO. It seemed to really work well for me Smile Hope that helps Smile

11/25/2008 11:35 AM  Top
cmany
cmany
 
Posts: 6197
Group Leader
I'm an Advocate

Oh Jenny - i am so sorry that you have to go through this.

I know that some hissing in the ears can be nerve damage. And I know that you have a long complicated case. And I wish that I could shed some light, on the roaring.

But I have had the misty feeling that you described. For me tho it was something that happened to taper off during treatment. I remember having it around the time i was in my late teens/early 20's...and I had some real issues with chemical imbalances.

But that is about as much as I can recall...wish I could be of more help..

I am here if you need an ear...always

Cool

Christine

[b]Group Leader Disclaimer[/b]
First and foremost - I am NOT a doctor, anything I share is based on experience & research. I strongly encourage you to discuss any and all information that I share with a health care provider.
************************
"I'm not afraid to take a stand
Everybody come take my hand
We'll walk this road together, through the storm
Whatever weather, cold or warm
Just let you know that, you're not alone
Holla if you feel that you've been down the same road...
And I just can't keep living this way
So starting today, I'm breaking out of this cage
I'm standing up, Imma face my demons
I'm manning up, Imma hold my ground
I've had enough, now I'm so fed up
Time to put my life back together right now" Eminem Not Afraid

11/25/2008 02:41 PM  Top
fluffyluggage
fluffyluggage
 
Posts: 4723
VIP Member
I'm an Advocate

Hey Jenny,

I wonder if you are having trouble with the crystals in your ear? I did when I was having such severe episodes of vertigo a while back. What happens is there are calcium crystals in your ear that basically help with your balance. You don't necessarily feel off balance, but what happens when they get knocked out of place, and really any little thing can set them out of place, is that you get episodes of vertigo, and if you move the wrong way, you can fall. You also may have some of the feelings you are describing, but the typical presentation is more of a feeling of tinnitis, which is usually described as a ringing in the ears. Some people feel a fullness in the ear or a pressure. But you can also get symptoms like what you are describing, too. So, if you wake up with weird bruises all over your body, mainly on your arms and/or legs, without having a clue as to how you got them, you may be experiencing vertigo and have this condition. You may wish to ask for a referral to an ENT. There, they can assess your balance, your hearing, and can run a series of tests to determine if you should (and it sounds like you probably should) be referred to a PT to have them re-set the crystals in your ear. For me, I think it took maybe 6 to 8 sessions of therapy. I was worse on one side than the other, I think it was the right, but I could be wrong. You will know when they get you tested! I had a very violent reaction to one of the tests. You can also request an MRI to be certain that nothing else is going on, as some brain tumors (not to alarm you) can present in the way you describe. But likely, it is related to the crystals in your ear having gotten shifted out of place. This is fairly common, far more common than people realize! Smile Hope this will help, hun!

Good luck, and lots of hugs going your way. PM me if you want more info, k?

Something you can do in the meantime to help with your balance and to prevent problems with getting bruises at night is to put nightlights in every room so that when you get up to move around the house, you can see where you are going. Be certain there is a clear path to where you are going as well--clear a path to any rooms you may go to during the night. If you can't sleep with a nightlight, then have a flash light near the bed within reach to light your way to nearest nightlight, or just have it and forego the nightlights. Also, put in stabilizing bars in tubs and showers, as well as around the toilets. You can find the pretty easily in medical supply places, or in online catalogues. You can also get a portable toilet if you prefer (sounds crazy, but well, it does work!). Put non-slip pads in the tub and/or shower. They are sold in virtually every store you shop in. Be sure when you get in and out of the shower that everything you need is within reach. Don't reach too far, or you may slip. Put rugs down in slippery surfaces. Those are just some of the things you can do to help. I'm sure there are others, and you may be able to think of more, having read that list.

Jen

Just because it's impossible doesn't mean it can't happen.

I'm not a doc, so anything I say is my opinion only. Nothing I say is meant as offense, I offer what I can as help. I believe in educating myself on all my medical issues and being my own advocate, for no one else with do that on my behalf. I recommend we all do the same!

The definition of insanity is doing the same thing over and over again and expecting different results. Perhaps I truly am insane for expecting these docs to listen to me when I say the same things repeatedly to no avail? LOL. I am tired of seeking out new docs and getting the same result time and again...Forgive me if I seem bitter some days.

Something has changed within me/Something is not the same/I'm through with playing by/The rules of someone else's game/Too late for second-guessing/Too late to go back to sleep/It's time to trust my instincts/Close my eyes and leap...I'm through accepting limits/Cuz someone says they're so/Some things I can not change/But till I try I'll never know/Too long I've been afraid of/Losing love I guess I lost/Well if that's love/It comes at much too high a cost/I'd sooner buy Defying Gravity/Kiss me good-bye I'm Defying Gravity/I think I'll try Defying Gravity/And you won't bring me down...
--Defying Gravity (Glee Cast version)

Previous discussions I participated in:
Looks like the family has Lyme
Brain Fog
Roy & Alon

11/26/2008 09:45 AM  Top
Bonski
Bonski
 
Posts: 176
Member

I've had the ringing and roaring for years. It went away for a while when I first started Samento but is back now. It's not as loud though.
Reply

Health Topics: Ringing In The Ears
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