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12/21/2007 05:45
s66a
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 Has anyone seenone? I have an Appt. next week. I wonder what she can do for me. Any experiences. Also don't try the Epidural steroid injections, It did nothing for me.

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12/21/2007 09:15
aprilhllnd
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 I have seem two neurologist and they both told me they couldnt help me since they dont beleave in lyme disease. Ive also been to an infectious disease doctor and an oncologist and they tell me the same thing. Are you looking for someone to diagnose lyme or have you already been diagnosed with it?
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12/21/2007 10:15
Julie4848
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 MY ID doctor is the one that ordered the test from Igenex (western blot).

My family doctor and ID doctor are both working with me and are wonderful

J

Lyme will not win, we will and we WILL…

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12/21/2007 11:08
s66a
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 My Infectious disease doc. is the one who has recommended me to a Neuro. for that aspect of the diseae. Yes I have Chronic Lymes. Western Blot was positve under CDC gudelines ( 5 or More pos. bands). Look at this rash. The Neuro works closely with My Doc. and she is very open minded to Lymes. Has seen many of my Docs. patients. I'm assuming Meds, but then again I have never seen one B4.

Post edited by: sal66, at: 12/21/2007 13:09


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12/23/2007 07:39
KendraM
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 My LLMD told me when i wanted to see a neuro, to just be careful and to realize that the neuro has to be able to think " outside the box" with lyme. If they dont they wont give you the answers you are looking for. So just research and if they dont believe in lymes then find another one. good luck! I hope the neuro can help
I am not a doctor. I can only give my opinion.

"Never give up. Never, never give up!. We shall go on to the end." Winston Churchill
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12/26/2007 04:58
s66a
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 Thanks for the advice. The Neuro that i'm going to see works closely with my Lymes Doc. and is supposedly very open-minded to Lymes. Don't know what she will do, but i guess i'll see. What can they do for lymes patients?

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12/26/2007 06:06
jaime1978
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 Have not seen a neuro. But I do need to say that NO STEROID injections what so ever are a good idea for those with lyme. In Bruscanno's guidlines, he says that they supress the immune system, and the lyme then runs rampit .... I made the mistake of having 12 shots into my spine before I knew I had lyme.... it has made things a million times worse, it's in my brain and nervous system!
Please do not take anything I say as medical advice. I am not a doctor.

~lyme disease support group leader~
please pm me with any special concerns
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12/26/2007 06:33
Fletch2ya
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 Hi...I agree...... as far as I am concerned, steriods are out.. they had me on oral and injection steroids and all it did was make thing like you said a million times worse..... Plus all the problems they cause with your body... they are great for some things... but need to used very guardedly...if that is word... this is just my feeling on this subject also......

Craig
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12/26/2007 11:10
s66a
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 Yeah thats what my LLMD says about steroid injections. I'm not sure what a Neuro. will do for me. Maybe pain meds. Some testing. I was having these strange "electrical shocks in my head and arms" for about 3 weeks. Scary and annoying. They are almost gone now though. Maybe some nerve pain meds. I tried Lyrica and it didn't do anything and Nuerontin gave me tremors. Any Ideas?

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12/28/2007 07:07
jaime1978
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 those are the only two I know of for nerve pain. what dose of lyrica where you on? I was on neurontin and did nothing, so my LLMD just switched me to lyrica yesterday. I have high hopes, he said it's a much "cleaner" drug.

When you say electrical pulses, do you mean twitching? or just a feeling?

Please do not take anything I say as medical advice. I am not a doctor.

~lyme disease support group leader~
please pm me with any special concerns
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