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Lyme Disease Forums › General & Support › XMRV treatment
02/06/2011 07:49 PM
larae
larae
 
Posts: 141
Member
Redudant topic but I thought

i would ask..

1.) have any of you been tested? I will be tomorrow

($375.00)

2.) if so and have tested +, what are u taking for it?

My LLND says it's not worth the trouble because they don't really know how. But, what is science? Discovery!!! right? It may be though, just another virus like HHV-6 or EBV that comes w/ CFIDS or Lyme because our immune systemts are compromised.

What is treatment?

thank you,

barb
Reply

02/07/2011 12:07 AM  Top
Bettyg
 
Posts: 26564
VIP Member
I'm an Advocate
barb, i posted today .. i didn't know if it was verbl or written.

it's WRITTEN; walktheline read it after i posted; worthwhile.

later as time permits, i'll copy it here & break it up.

betty

http://www.mdjunction.com/forums/lyme-disease-support- forums/general-support/1173640-122-2-pm-pst-mikovits-xmrv- presentation-online#2400336

BettyG, IOWA ACTIVIST
RETIRED llmd coordinator of 6 yrs; group leader

NOTE: I DO "NOT" USE CHAT thanks!
**************************************

NO INFORMATION SHOULD BE CONSIDERED MEDICAL ADVICE.
please see my WELCOME LETTER/BEGINNER'S LINKS with important links/info galore :)

http://www.mdjunction.com/forums/lyme-disease-support-forums/general-support/2356916-bettygs-welcome-letter-wgood-beginner-links-

Any information provided should not be used to take the place of advice from your personal physician or other professional.

Information on those sites is the opinion of those who publish the sites and is NOT necessarily that of BettyG.

43 yrs. chronic lyme; 35 yrs. misdiagnosed by 40-50 drs. unacceptable; see my profile for more.

05/15/2011 10:36 AM  Top
callctr2000
 
Posts: 23
New Member
Hi Barb,

I am curious if you got your test results back for XMRV & what they were? Which lab did you use?

I am still waiting for my results from VIP dx.

Cheers.

Happy Days! I'm in the process of killing these critters!

06/13/2012 09:47 PM  Top
Not2bforgot10
Not2bforgot10
 
Posts: 16
Member
Please check out my blog: http://not2bforgot10.wordpress.com especially my earlier entries. I have "chronic lyme disease" and have been keeping up to date with the latest research. I believe I have XMRV as well, but cannot afford the $600 private test. I did, however, test through IGENIX for lyme twice, both positive results. I have a video series on youtube: search "Not2bforgot10." I am willing to talk with anyone else who has XMRV, fibromyalgia, lyme, or CFS (Chronic Fatigue Syndrome). I know exactly how I got this beast, and it is often CONFUSED with HIV and a lieu of other illnesses. My email is: Not2bforgot10@yahoo.com That's not 2 b forgot 10 at yahoo dot com

Thanks!

Synthroid 50mg
Omega-3 Fatty Acid Capsules :)
New Chapter Every Woman's Vitamin
Flaxseed oil
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