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"In the 3 months I have been with MDJunction I have developed a sense of calmness. I now friends who do not judge me because I have been a mental mess at times. It is such a good feeling to have friends I can tell my deepest thoughts and always get back to me with their support. I have never seen a therapist for long periods of time. Right or wrong, this is the best therapy possible for me. Thanks Roy for getting this up and running and making such a difference in my life. Sara" (saralaurie)
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11/23/2008 11:06
kittiekat
Posts: 41
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 thanks, i am nearly 7 years with violent CNS so i think i am facing some serious anti bx therapy once i get to LLMD in NY...one day at a time i guess

xoxo

kittie
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11/23/2008 11:06
kittiekat
Posts: 41
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 oh yeah, on doxy now but LLMD in NY apparently does combo therapy..Iv etc..
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11/23/2008 12:18
Zennia
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Posts: 60
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 Great for you. IV is best for CNS Lyme.

Maybe you should check into Dr. Fallon. He's at Columbia and while he doesn't seem to be researching any alternatives per se, is considered the tops in the ever emerging growing changing world of LYME DISEASE, which as everyone can attest to SUCKS
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11/23/2008 12:20
Zennia
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 What if you love the doctor, but find the staff strange and annoying and making decisions that the doctor must make.
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11/23/2008 12:32
kittiekat
Posts: 41
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 hey, u mention fallan,...isnt he the guy doing the clinical trials in lyme and CNS?
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11/23/2008 15:01
Julie4848
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 I would be up front with him/her and talk about how you feel..Always be honest with your doctor...I write down all my wants and needs before I go and we go over my list...
Lyme will not win, we will and we WILL…

Popular posts by Julie4848
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11/23/2008 17:56
CaseyLei13
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Posts: 13
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 Great idea, I wrote down my concerns and tried to be straight-forward and left a message because the last time I called he was very pressed for time. Just keep my fingers crossed I guess, I just want some temporary relief, it seems like I'm slowly getting better.
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