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Lyme Community Lyme Disease Support Forums General & Support Seizures and Frustration
 

Seizures and Frustration


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12/20/2007 14:37
KendraM
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 So I am pretty frustrated today with this disease. I have had small seizures every so often for about a year and a half. My doc and I think is brought on by stress thanks to the lymes, well yesterday I had another one. This is the first one I have had in almost 4 months.

Just when I think I am doing better this disease bites me in the tush!

Im feeling very defeated.

Im just wondering if anyone else has seizures and if they have tried anything to help.

Thanks

Kendra M
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12/20/2007 16:24
aprilhllnd
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 I've never had seizures. Sorry I dont have any answers for you. Are they putting you on any meds for the seizures?? That would be so scary. I hope you find the answers you are looking for. Hang in there.
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12/20/2007 16:35
KendraM
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 They are not Grandmal Seizures, more just like staring off and seizing up. They are scary and not much fun. I guess the good thing is I can feel them coming on so they arent a surprise. They tried me on Topamax but I had a reaction... Thank you for your concern though

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12/20/2007 17:21
aprilhllnd
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 Ive been on Tompamax for my headaches were caused by a stroke. But later I found out I was not having strokes just lyme symptoms. Did you get the feeling of your bugs crawling up your legs and that you couldnt keep your leg from wanting to move? (like restless leg syndrom)
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12/21/2007 07:26
KendraM
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 No, oh gosh that would not be fun.You felt the lyme bugs crawling around?

I just got VERY emotional with the Topamax, but to the point I couldnt control it. I mean ALL kinds of emotions...so angry i thought fire would come out of my fingers...or so upset you would have thought something tragic happened. My heart also felt like it would come out of my chest.

So not fun ... I mean it helped the seizures, but the effects werent worth it.

What were your strokes like? if you dont mind me asking
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12/21/2007 09:19
aprilhllnd
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 I actually felt my right side from head all the way down to my toes feel very heavy and I couldnt keep my head up. My right side of my face would even droop and I would slur when I would talk. It only happened twice but it was enough for me. It is scary. My heart would race too. That is so uncomfortable! I dont blame you for not wanting to take it anymore. Either way it is hard to function in normal activities with just having the lyme symptoms!
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12/21/2007 12:23
cooley420
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 I also recently found out i've been having small seizures for yrs now, starring off in space, seizing, then last week i had a grand maul seizure, very scary! I've started antibiotics, so hopefully that is what is making my Lyme worse, Herxing! Hang in there!


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