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11/21/2008 18:02
que1215
Posts: 1
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I have been feeling extremely tired. My hands tremor and are visably shaking. I feel like my insides are jello. I sometimes can not think or use ordinary words. I have almost no recall or memory. I must really think and concentrate to remenber something. Sometimes its days before i can recall something and then it is so vague Im not sure if it really happened.

My ELISA came back positive with 220. My West Block was only Reactive on one count and based on that they say Negitive.

My B12 is extremely low and my Copper level is very high.

Doctor said doesnot think its lyme!! What is going on can anyone help Feel like I am crazy half the time.

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11/21/2008 20:58
jennyC
Posts: 37
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you have definately joined the right forum!!

I am not a Dr. but you surely sound like Lyme!!

I have those same symptoms along with a multitude more!!

The memory thing (brain fog)is horrible!!

And also the tremors!

Keep searching and don't just take every thing the Dr. says as truth!

Get a second or third or forth opinion! Don't give up! There is a light at the end - i have heard from many here! You have come to a great place for information and encouragment!

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11/22/2008 09:53
cmany
Lime Green Ribbon
Posts: 561
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Que...

You need to find an LLMD. Contact Jamie here with you location and she may be able to point you to one.

There are many ways that they try to negate this disease when it comes to testing. False Negatives are a reality. You have to educate yourself and push through the crap.

It is long road to getting a diagnosis and getting a doc with the right mentality to treat it. You have come to a great place - great people and great info...use it.

Christine

I know what I am and I know what I am not

Never put it past this disease to be the culprit - but we also cant brainwash ourselves into believing that it is the only thing

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11/22/2008 10:05
jaime1978
Lime Green Ribbon
Posts: 1094
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Que,

I don't have time to get into all the details here, but please send me a pm (under my name you'll see in blue "send a pm", that will take you to the page to do so. Let me know what state you're in, and nearby states you can travel to and I'll help you find a lyme literate doctor.

the problems you describe sound lyme like to me, the sooner we find help, the better.

also, if you want to get a head start, you could start on some natural things such as lauracidin, olive leaf extract, lots of vitamin C, and garlic supplements, oh yeah, and cats claw (samento...it DOES NOT matter if it's TOA free or not), most things you can buy at healthfood store, the lauracidin, I found info on www.truthaboutlymedisease.com in the forum section, third one down is "everyting you need to know about tick born diseases", there's a whle section in there about lauracidin, and where to get it.

Most regular docs aren't educated about this disease, and the western blot you had is VERY unreliable. a lyme doc will test you thru igenix or another tick born specialty lab. and although those aren't 100% either, they are better. Lyme is mainly a clinical diagnosis, meaning it's treated based on symptoms.

please pm me and we'll find you help.

warmest regards,

jaime

Please do not take anything I say as medical advice. I am not a doctor.

~lyme disease support group leader~
please pm me with any special concerns
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