Lyme Disease Support Group

Private messages deleted in 30 days! ARCHIVE, upper right corner in private messages!

PLEASE DO NOT POST YOUR GIVEN FULL NAME! be safe!

http://www.mdjunction.com/index.php?option=com_joomlaboard&Itemid=217&func=view&catid=3260&id=1345278

The following are some links that may be helpful to you:

Seeking a lyme literate md; start YOUR OWN POST on this new forum; do NOT just add it to the introduction post only.

http://www.mdjunction.com/forums/lyme-disease-support- forums/llmd-info/1181374-lyme-literate-md-requests#1181957

(applies ONLY to those who posted elsewhere already ok)

NEW FORUM, SEEKING LLMDS, the last forum

start a NEW DISCUSSION by clicking on that at bottom of the page, copy your text to the body of message as you posted above read my detailed instructions in christine's 1st post explaining how to use this new forum; big thanks! Hugs; example below

subject: 4 yr. old needs KIDS LLMD IN MD, VA, DC area

http://www.mdjunction.com/forums/lyme-disease-support- forums/llmd-info

go to bottom left hand corner here to START A NEW DISCUSSION!

Lyme Disease and Co-Infection Symptoms

http://www.mdjunction.com/forums/lyme-disease-support- forums/studies-research/318635-lyme-and-co-infections- symptoms

http://flash.lymenet.org/ubb/ultimatebb.php/topic/1/81386

Dr. Burrascano's most recent "Diagnostic Hints and 2008 Treatment Guidelines for Lyme and Other Tick Borne Illnesses"

http://www.ilads.org/lyme_disease/treatment_guidelines.html

Pages 17-19 discuss Adult and Kids Treatments

http://www.mdjunction.com/forums/lyme-disease-support- forums/studies-research/1173561-08-kids-lyme-guidelines-of- dr-burrascano

*****************

http://www.mdjunction.com/forums/lyme-disease-support- forums/medicine-treatments/3766691-change-of-meds

doglick posted--DANGER! WELDING UNPROTECTED WHILE TAKING DOXY!

Not only did doxy burn, but I made the mistake of doing some welding unprotected. Every bit of skin blasted with massive UV swelled up with pink blisters that hurt and itched insanely.

It took two months to heal! Arms, legs and chest.

10 times worse than poison ivy.

*******************************************

Dr. B's Supplement List

http://www.lymepa.org/Nutritional_Supplements.pdf

ANTIBIOICS BASIC CHART BY PATIENT MATTHEW GOSS; OUTSTANDING!

http://www.anapsid.org/lyme/matthewgoss/drugs.html

DR. CORSON'S EVALUATION OF KIDS/TICKBORN DISEASES

http://www.mdjunction.com/forums/lyme-disease-support- forums/studies-research/2444918-dr-corsons-evalmgmt-kids- tickborne-diseases

DR. CORSON'S WERE IS THE HEADACHE LOCATED

http://www.mdjunction.com/forums/lyme-disease-support- forums/studies-research/2013437-where-is-the-headache- located-by-dr-ann-corson

both LENGTHY, DETAILED by same llmd...

dr. BRANSFIELD'S NEURO PSYCHIATRIC LYME ASSESSMENT

http://www.mdjunction.com/forums/lyme-disease-support- forums/studies-research/3002414-neuropsychiatriclyme- assessment-by-dr-bransfield

this is LENGTHY, 78 screens, but VERY DETAILED of things you would NOT have thought about! MUST READ!

TOM GRIER'S, MAY 2010, TRUTH OR CONSEQUENCES for newcomers; his GLOSSARY at end of PART 1; more to come!

http://www.mdjunction.com/index.php?option=com_joomlaboard&Itemid=217&func=view&catid=3165&id=2718098

Making the most of your LLMD visit

http://tinyurl.com/4mwtq6d

what's a LLMD, LYME LITERATE MD?

http://www.lymediseaseblog.com/whats-an-llmd/? utm_source=feedburner&utm_medium=email&utm_campaign=Feed%3A+LymeDiseaseBlog+%28Lyme+Disease+Blog%29&utm_content=Yahoo%21+Mail

Herxheimer “herx” side effects to antibiotics & supplements; Symptoms, treatments

http://betterhealthguy.com/joomla/blog/216-ilads-2010- conference-takeaways

http://www.mdjunction.com/forums/lyme-disease-support- forums/studies-research/1186591-jarischherxheimer-reaction- symptomstreatment

Herxing Reactions:

http://www.mdjunction.com/forums/lyme-disease-support- forums/studies-research/1186591-jarischherxheimer-reaction- symptomstreatment#3880460

http://www.mdjunction.com/forums/lyme-disease-support- forums/studies-research/1186591-jarischherxheimer-reaction- symptomstreatment

http://flash.lymenet.org/ubb/ultimatebb.php/topic/1/89322

http://flash.lymenet.org/ubb/ultimatebb.php?ubb=get_topic; f=1;t=041517

DETOX BATH TIPS, ETC.

http://www.mdjunction.com/forums/lyme-disease-support- forums/general-support/2929620-detoxification-is-vital-with- lyme-disease/limitstart/10

CHECK OUT THE “LYME FACTS” forum; lots of good, accurate info there for your lyme journey.

http://www.mdjunction.com/forums/lyme-disease-support- forums/studies-research

print off BUT YOU LOOK GOOD article for family/friends to understandbetter, on page 2 of this post where I broke it up for others to read easier; we neuro lymies!

http://tinyurl.com/4hcfboh

FINANCIAL BURDENS; 25-30 PAGES PLUS!

Suggestions for When You Need Treatment and Funds Are Low plus Financial Burdens post towards bottom; extremely detailed by Melanie Reber

http://tinyurl.com/4es7942

WHAT IS LYME DISEASE? as quoted by Dr. Burrascano

http://tinyurl.com/4lp899o

Link to Turn the Corner Foundation: Good info and contacts for finding a good LLMD.

http://turnthecorner.org/lyme-disease-quick-facts.htm

LYME YAHOO GROUP BOARD FOR EACH STATE FOUND HERE!

People seeking doctors might be able to get help from their state online information and support group.

The groups are moderated and you have to apply. set up for 50 states by PHYLLIS MERVINE, LYMEDISEASE.ORG, formerly CALDA, is OWNER of these boards! 5.30.12

Most don't allow doctor names or CITY NAMES, but once on the group, you can ask for doctors in a certain area and ask people to email you privately.

To find your state group, go to

http://health.groups.yahoo.com/group/statenamelyme

example: http://health.groups.yahoo.com/group/newyorklyme

South Carolina is the only state that needs a hyphen between the statename and lyme, e.g. http://health.groups.yahoo.com/group/southcarolina-lyme

http://www.lymenet.org/SupportGroups/

This explains the MEDICAL “POLITICS” AROUND LYME and why you need an ILADS-educated or ILADS-member LLMD (and there are also some ILADS-member LL NDs, naturopathic doctors:

www.clinicaladvisor.com/Controversy-continues-to-fuel-the- Lyme-War/article/117160/

You should also be evaluated for co-infections. Not all tests are great in that regard, either, but a good LLMD can evaluate you and then guide you in testing.

www.igenex.com;

http://www.frylabs.com;

http://www.clongen.com;

http://focusdx.com

For the Igenex Western blot IgM and IgG blood test drawn on M, T, or Wed am. Check current$ 3 wks. for results!

Call 1-800.832.3200 for current prices.

http://flash.lymenet.org/scripts/ultimatebb.cgi/topic/1/ 78648?#000003

They will also send you a free “test kit” with their required form, all the test vials, & box to ship it in with return postage!

Be sure to download Igenex’s required form IF you haven’t called for Igenex to send you THEIR test kids!

MD, DO, ND, AC, DC are all fine** must sign, date, and show diagnosis code on there why he’s ordering the test.

Optional tests include: co-infection panel for your area of country and PCR whole blood

Igenex is pre-pay/out of network for most insurances. If you are on medicare, Igenex will file the paperwork & it's free to you.

Get copies of all of your special bloodwork.

Overseas instructions for sending to Igenex/Fry Labs 2-23-08

http://flash.lymenet.org/ubb/ultimatebb.php?ubb=get_topic; f=1;t=063751

2.8.12 MEDICARE; GO TO LAST REPLY POSTED; INFO GALORE FOR MEDICARE PAYMENT FOLKS!!

[b]effective june 1, 2011 .... NEW INFO on western blot igm/igg ... FEWER positivies requried; read about it here![/b]

http://www.mdjunction.com/forums/lyme-disease-support- forums/studies-research/2889551-dr-holtorf-on-ld- diagnosistreatment-culmination/Itemid=217/func=post/ do=subscribe/id=2889551/sb_thread=2889551

BLOOD LAB TESTINGS

http://www.mdjunction.com/forums/lyme-disease-support- forums/tips/3006624-blood-testingsmisc-galore-here-

Dr. Bransfield' s Reason's for Seronegativity, the reasons why you can test negative and still have Lyme disease

http://www.mentalhealthandillness.com/ seronegativelymedisease.html

Dr C’s Western Blot explanation is discussed here:

http://www.mdjunction.com/forums/lyme-disease-support- forums/tips/1092391-missouri-drcs-western-blot-explanations- of-nos#1093495

http://www.mdjunction.com/forums/lyme-disease-support- forums/tips/3683-igenex-calif-western-blot-igmigg-testing-

ADRENAL FAILURE

http://www.mdjunction.com/forums/lyme-disease-support- forums/medicine-treatments/2997768-stage-3-adrenal- fatigueadrenal-exhaustion

ILADS - The International Lyme and Associated Diseases Society (ILADS) provides a forum for health science professionals to share their wealth of knowledge regarding the management of Lyme and associated diseases.

www.ilads.org

Call ILADS they are happy to refer to LLMd's around the country. Here is the contact link, scroll down beyond the email form for their phone number:

http://www.ilads.org/contact/contact_ilads.html

Under Our Skin Lyme Disease documentary

www.lymediseasefilm.com

American Museum of Natural History 2 SLIDE SHOWS

http://www.amnh.org/sciencebulletins/index.php? sid=h.s.lyme_brain.20100125

when you get to the site go to upper right hand corner and [b]type in LYME DISEASE hit enter and it brings you to this very well-done slide show on LYME disease! it shows ”brain lesions” too. 1st one is DATED JAN. 25, 2010.

MRIS OF BRAIN FOR MS/LYME/OTHERS

very detailed info here!!

http://www.radiologyassistant.nl/en/4556dea65db62

Betty, Minoucat, & Connie Mc’s SSDI, SSI, & LTD DISABILITY RECOURCES FOR Disability, Insurance, Dealing with HMOs

http://tinyurl.com/4ltv9jj

UK/ENGLAND -- Resources for People Needing Disability Assistance in the UK

Here is a website about grants, discounts, aid, legal info, and other resources for the disabled and those who care for them. (Thanks to a mention on the Hunter Hopkins Center Facebook site!) The site is

www.Disability-Grants.org

Success Stories -

http://tinyurl.com/4cklqyg

Distinct Pattern of Cognitive Impairment Noted in Study of Lyme Patients …..MUST READ!! EXPLAINS EVERYTHING !!

written by Marian Rissenberg PhD & Susan Chambers MD,

UPDATED JA. 13, 2013

The Lyme Times, Vol. 20, Jan-Mar 1998

http://www.anapsid.org/cnd/diffdx/rissenberg.html

NEURO-COGNITIVE LYME DISEASE links from cheryl’s site 1.10 -

http://www.lymeinfo.net/neuropsych.html

EARS RINGING …TINNITUS! Good Links galore by Keebler 3-08

http://flash.lymenet.org/ubb/ultimatebb.php?ubb=get_topic; f=1;t=064047

TINNITUS: Ringing Between The Ears; Vestibular, Balance, Hearing with compiled links by Daise and Keebler, 4-27-08

http://flash.lymenet.org/ubb/ultimatebb.php?ubb=get_topic; f=1;t=065801

Porphyria (including KPU)

http://flash.lymenet.org/scripts/ultimatebb.cgi/topic/1/ 87840?

cardiac symptoms please read!

http://flash.lymenet.org/ubb/ultimatebb.php/topic/1/77325

SUICIDE HOTLINE PHONE NO. & PREVENTION TIPS

http://tinyurl.com/4entqzz

DIZZINESS - many details at this thread

http://tinyurl.com/4d5ypmu

http://flash.lymenet.org/scripts/ultimatebb.cgi/topic/1/ 65801?

MOST COMPREHENSIVE WEB SITE COVERING EVERYTHING; I MEAN EVERYTHING; WELL ORGANIZED; A GOLD MINE OF INFO!! many links there are what i refer folks to! BOOKMARK THIS LINK; you won't regreat it!

http://www.webshopemporium.com/lymeandco- infectionAlternativeTreatments.htm

WHERE TO START LOOKING; LYME INFO FOR "NEWCOMERS" just diagnosed

http://www.mdjunction.com/forums/lyme-disease-support- forums/medicine-treatments/3875910-where-to-start-looking- lyme-info-for-newcomers#3875910

MOVIE CLIPS SHOWN ON OUR FRONT LYME PAGE ARE NOT RECOMMENDED! MDJ OWNER, ROY, ADDED THEM WITHOUT OUR INPUT; THEY ARE IDSA, infectious disease drs. talking;

NOT OUR GOODLLMDS, ilads intl lyme associated disesae, LYME LITERATE MDS!

http://www.mdjunction.com/forums/lyme-disease-support- forums/general-support/3557884-movies-at-bottom-of- page#3563549

3-17-12 ... these are the most ACCURATE links from 2011 TORONTO CANADA ANNUAL ILADS LYME/VECTOR-BORNE CONFERENCE

TO WATCH THE LIVE STREAMING OF REAIRING, CLICK ON THIS LINK!!

http://tinyurl.com/7bk2udv

Conference videos by clicking here.

http://tinyurl.com/7mbedon

GOOD VIDEO LYME/CO-INFECTION MOVIES ARE SHOWN IN MY LYME COLLECTION VIDEO ONGOING LINK HERE;

http://www.mdjunction.com/forums/lyme-disease-support- forums/general-support/1169397-lyme-video-collection-add- yours-here-

DANGER welding UNPROTECTED while taking doxy!

NEED A LAUGH, READ HERE & ADD YOUR OWN

http://www.mdjunction.com/forums/lyme-disease-support- forums/lounge/1041725-looking-for-my-need-a-laugh-post- bettyg-started

you tubes, post your FUNNY or INSPIRATIONAL ones here

http://www.mdjunction.com/forums/lyme-disease-support- forums/lounge/1114416-you-tubes-post-your- funnyinspirational-ones-here

Betty’s suggested posting guidelines:

Many of members have neuro lyme, and it is hard to read long solid block text and be able to comprehend; example, me, 40 yrs. neuro chronic lyme, so we are able to comprehend and read. Then we can assist and guide you ok.

please post in short paragraphs like you see below or look at a few other posts, but we neuro folks need them short.

1-2 sentences MAX and hit ENTER TWICE to doublespace between each paragraph. DO NOT BREAK UP THE SENTENCE THOUGH…we neuros lose our train of thought if it is broken up in the middle unless it goes on FOREVER!

DO NOT USE ALL CAPS FOR ENTIRE POSTS; see what i've done here; that is acceptable.

For easier reading, please edit your post. You can break up your longer paragraphs into smaller paragraphs. Please hit “enter” key twice after each paragraph, also.

Go to left hand corner; click edit send. Then go to bottom and click SUBSCRIBE TO THIS DISCUSSION.

Thank you for posting in a manner that makes it easier for all to read and help others. Thanks for helping us help YOU

fyi, I'll no longer be sending this for each new member; I'll just refer folks here taking up less space on newcomer's 1st posts

bettyg, iowa ACTIVIST .. hugs/kisses

Post edited by: Bettyg, at: 07/02/2012 03:15 PM

marian rissenburg's cognitive link updated 1-13-13 by her!! bettyg

Post edited by: Bettyg, at: 01/17/2013 01:46 PM

2-27..just added these 2 links to above:

both LENGTHY, DETAILED by same llmd...

http://www.mdjunction.com/forums/lyme-disease-support- forums/studies-research/2444918-dr-corsons-evalmgmt-kids- tickborne-diseases

http://www.mdjunction.com/forums/lyme-disease-support- forums/studies-research/2013437-where-is-the-headache- located-by-dr-ann-corson

betty

Post edited by: Bettyg, at: 02/27/2011 03:36 PM

Post edited by: Bettyg, at: 08/05/2011 11:34 PM

http://www.mdjunction.com/forums/lyme-disease-support- forums/studies-research/2889551-dr-holtorf-on-ld- diagnosistreatment-culmination/Itemid=217/func=post/ do=subscribe/id=2889551/sb_thread=2889551

95 AFTER THE BITE RASHES to view

http://picasaweb.google.com/AfterTheBite/ Rashes#5420758471878004530[/u]

bettyg, iowa leader, llmd coordinator/activist

Post edited by: Bettyg, at: 08/05/2011 11:35 PM

Post edited by: Bettyg, at: 08/13/2011 09:48 PM

http://www.mdjunction.com/forums/lyme-disease-support- forums/studies-research/3002414-neuropsychiatriclyme- assessment-by-dr-bransfield

bettyg, iowa activist, group leader, llmd coordinator

much more at this link i brought here in 2007 when the board opened up...

http://www.mdjunction.com/forums/lyme-disease-support- forums/tips/1007-bettygs-newbie-linksadvise-

betty

Post edited by: Bettyg, at: 10/23/2011 10:36 PM

Post edited by: Bettyg, at: 10/24/2011 03:36 PM

very detailed info here!!

http://www.radiologyassistant.nl/en/4556dea65db62

***************************************

NOT shown in my top post on welcome letter!

….“BIOLOGICAL”DENTIST & DOCTOR FINDER at the IAOMT website (International Academy of Oral Medicine and Toxicology).

www.iaomt.org

good luck; if having them REMOVED, YOU NEED A BIO DENTIST DUE TO MERCURY IN YOUR MOUTH; bio-hazardous!!

Post edited by: Bettyg, at: 01/29/2012 01:21 AM

http://flash.lymenet.org/scripts/ultimatebb.cgi? ubb=get_topic;f=1;t=114754;p=0

momintexas

LymeNet Contributor

Member # 23391

posted 02-07-2012 11:42 AM

Ah-ha....I just found this - thanks GiGi

GeneX Inc. is a privately owned laboratory focused on performing specialized testing for Lyme Disease and other related Tick Borne Diseases.

It is our intention to provide cost-savings for our patients as well as our clients. In doing so, IGeneX has not contracted with any insurance companies.

Therefore, we DO NOT bill patients’ health insurance for any testing performed through IGeneX.

PAYMENT FOR TESTING

Prepayment

We require prepayment at the time the specimen is sent to IGeneX for processing. We accept Visa, Mastercard, Discover, American Express, Personal Checks or Money Orders.

A statement will be mailed to you with information to send to your insurance company for reimbursement.

**********************************************************

International Patients/Clients: Credit Card only

**********************************************************

MEDICARE PATIENTS:

PLEASE PROVIDE ALL INFORMATION REQUESTED BELOW

REQUIRED: If CD57, Babesia FISH or Bartonella FISH is ordered,

please see Medicare Forms and print appropriate forms in order for

testing to be processed

Medicare - Primary (Any deductible is patients’ responsibility.)

- Complete and sign Medicare Box on Test Request Form

- Send a copy of the front and back of your Medicare Card.

Medicare - Secondary

We will bill for your testing with the receipt of:

- Complete and sign Medicare Box on Test Request Form

- Send a copy of the front and back of your Primary Insurance Carrier.

- Send a copy of the front and back of your Medicare Card.

Medicare – HMO:

Advance Notice for Medicare Senior Plans Form must be signed and sent with samples

We are not a provider with any HMO.

- Complete and sign Medicare Box on Test Request Form

- A copy of the front and back of your Medicare Card

- Send prepayment for testing. A statement will be sent to you so that you may submit it to your HMO.

Medicare –Senior Plans:

Advance Notice for Medicare Senior Plans Form must be signed and sent with samples

We are not a provider with any Senior Plan (Direct, Advantage, or Choice PPO). We will bill for your testing with the receipt of:

- Complete and sign Medicare Box on Test Request Form

- A copy of the front and back of your Medicare Senior Plan Card

- A completed form (enclosed) “Advance Notice for Medicare Beneficiaries with Senior Plans”.

Posts: 961 | From Tx | Registered: Nov 2009

© 1994-2011 The Lyme Disease Network of New Jersey, Inc.

All Rights Reserved.

Post edited by: Bettyg, at: 02/08/2012 04:27 AM

NOT OUR GOODLLMDS, ilads intl lyme associated disesae, LYME LITERATE MDS!

http://www.mdjunction.com/forums/lyme-disease-support- forums/general-support/3557884-movies-at-bottom-of- page#3563549

3-17-12 ... these are the most ACCURATE links from 2011 TORONTO CANADA ANNUAL ILADS LYME/VECTOR-BORNE CONFERENCE

TO WATCH THE LIVE STREAMING OF REAIRING, CLICK ON THIS LINK!!

http://tinyurl.com/7bk2udv

Conference videos by clicking here.

http://tinyurl.com/7mbedon

GOOD VIDEO LYME/CO-INFECTION MOVIES ARE SHOWN IN MY LYME COLLECTION VIDEO ONGOING LINK HERE;

http://www.mdjunction.com/forums/lyme-disease-support- forums/general-support/1169397-lyme-video-collection-add- yours-here-

Post edited by: Bettyg, at: 03/17/2012 02:36 AM