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king2626
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Forgot to ask. Does anyone see littel whitish type swirly dots when looking upon a white background or outside? Also like a fuzziness while inside or at night, as though there is a slightly off tv? I have had this for about 10 yrs.....I wonder, could I have had lyme for 10 yrs and not have known it? Could something have reactivated in my system? I know this far fetched but I always wondered what these dots were. I even went to several neuros 10 yrs ago when this started. |
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beauty4ashes
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I really don't think it is that far-fetched, if at all. I have been having those things going on for years & years & years,.... and now I find out I probably have had Lyme for the last 20-25 years!! So, IHMO, it is very possible.  I'm F.I.N.E. Frustrated, Irritated, Nonfunctional & Everything hurts!! Sarcasm: Embrace it!  ______________________ "Always hold your head up, but be careful to keep your nose at a friendly level" - Max L. Foreman ______________________ I know God will not give me anything I can't handle. I just wish he didn't trust me so much. - Mother Teresa ______________________ "There's always light at the end of every tunnel, just pray it's not a train! "  ______________________ Faith makes things possible, not easy! |
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king2626
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That many yrs you have felt ill, or did the main symptoms expose themselves later? Last time I was bit by a tick was when I lived in Connecticut-bit that was 18 yrs ago. I started to see the dots, got migraines with auras, began getting dizzy spells, stomach issues all around the same time 10 yrs ago--also I use to camp back then. I wonder if I have been infected for 10 yrs and if something set it off this past summer. |
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beauty4ashes
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It is possible. I have been trhough one thing after another for most of my life, medically and otherwise. My LLMD thinks that I have been infected with Lyme all this time because so many things that I have been going through, and some of the other conditions I've had and so forth are common with Lyme. Not saying all, but I fit the bill, so to speak. I had an EM rash a little over 3 years ago, and that's when I was thinking we were going to date back to, but he told me he thinks that I just got bit again and reinfected. Or, that even if that particular little bugger wasn't infected than because I already had Lyme, it still caused the reaction. And that is what he is thinking caused everything to sort of take a downward spiral with me as far as the strongest of my Lyme symptoms have been... the 'obvious' stuff anyway. I'm not sure if I'm putting it in a way that's making any sense or not. Does it? LOL Trying here, but yes, basically what I'm trying to convey is that, yes, you could have gotten Lyme clear back 10 years ago, even the 18 years ago. The symptoms don't always show up right away in everyone, lay dormant in the body, hiding & waiting to emerge, so to speak, and it can take a major thing in life to sort of "launch" in some people. It just can vary so much from person to person. I have heard it said here on the boards that no two people are quite alike in their Lyme cases. We're all very similar, yet "unique"..... kind of like snowflakes, I guess! Did that help, or just confuse you? Hopefully, it was helpful rather than the latter, LOL  Somebody come help me spit this out right cuz I think I'm funkin it up for this poor girl! Well, I'm trying to say it so it so it makes sense anyway. (((BIG HUGS))) I'm F.I.N.E. Frustrated, Irritated, Nonfunctional & Everything hurts!! Sarcasm: Embrace it! ______________________ "Always hold your head up, but be careful to keep your nose at a friendly level" - Max L. Foreman ______________________ I know God will not give me anything I can't handle. I just wish he didn't trust me so much. - Mother Teresa ______________________ "There's always light at the end of every tunnel, just pray it's not a train! " ______________________ Faith makes things possible, not easy! |
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Julie4848
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I think you did a good job in explaining this to her... When I first got lyme, everyday I would wake up feeling something "New". First it was the knee pain, then the neck pain, then the burning all over my body, then numbness, bee sting feeling, the list just goes on and on. After I started treatment little by little they would go away...But that little by little took almost a year... Julie Lyme will not win, we will and we WILL… |
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king2626
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You did a great job explaining Oh I get that bee sting feeling. When my pains started it hit my left ankle, I thought I had sprained it then in the am it was fine, however later that afternoon my right foot felt like it was being crushed then 10 min later it was fine. From that point I got deep bone type pains in my joints or it would hit a random finger, toe, spine, etc. A few days later I began to get vibrating feeling in my left foot...then came the EXTREME joint cracking 1 wk after this all hit. blah blah blah I find it amazing to have all these pains, buzzing, twitching and numbness in my body and only test pos on 31 and IND on 34 41. When I first took the test I thought I would be pos on all! |
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beauty4ashes
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Thank you both for that. I know all those pains too well... I'm still waiting for my actually Igenex results to come back so I'm really anxious to see what I look like "on paper". I feel like mine should come back "lit up like a Christmas tree", but I will probably be the same way... barely showing in the blood. We'll see! LOL When do you see your doctor next? Mine is in a couple weeks when we get back from vaca b/c we leave next week. That's when I'll start my treatment. I didn't want to herx on vacation and my LLMD agreed with that. He seemed to understand, one) I didn't want to be miserable, but two) I also didn't want to be a kill-joy for the rest of my family, LOL Julie had a good point the other day on one of my threads about my eyes in asking when the last time I had my eyes checked. I've been needing to get in... I'm overdue so getting in 'might' help with some of the effects we're having. I kept putting it off especially because I figured the blurriness has primarily worsened due to this othe stuff going on with me. This could be a long, long recovery so best to go ahead and get in, get them rechecked, make sure there's not something more serious going on, and hopefully be able to just update my prescription (I have a stigmatism). (((BIG HUGS))) (((BIG HUGS))) I'm F.I.N.E. Frustrated, Irritated, Nonfunctional & Everything hurts!! Sarcasm: Embrace it! ______________________ "Always hold your head up, but be careful to keep your nose at a friendly level" - Max L. Foreman ______________________ I know God will not give me anything I can't handle. I just wish he didn't trust me so much. - Mother Teresa ______________________ "There's always light at the end of every tunnel, just pray it's not a train! " ______________________ Faith makes things possible, not easy! |
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king2626
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Wait remind me, when were you last tested and what did you test pos on? I had my eyes checked about 3 wks ago, when I still thought maybe MS. My eyes-totally fine, no inflammation or anything seen hmmmmmmmm |
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beauty4ashes
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I'm still waiting for my results. My LLMD diagnosis me both clinically & comprehensively, and now we are just trying to see if we can back that up "on paper" with the Igenex labs for insurance purposes. I'm trying to get a better company in place before our renewal date in January. We have it as group insurance through our business. Anyway, this is my first time finally being tested (labs) for the Lyme. My last optometry appt. was 2 1/2 years ago so I am waaaaaay overdue, especially because of the Grave's Disease, I am also at higher risk of Glaucoma, and am supposed to go in annualy. We've just had so much going on in our family that some things have gotten out off. I'm hoping to get my KP doc to order an MRI & refer me to the ophthalmologist though due to all of the symptoms I have. I not only have the Lyme Arthritis, but I also have Neurological Lyme and Lyme Meningitis. I wouold like to get the scans just to check for anything else though, to be on the safe side. My ear pains are getting worse & worse again too. Anyway, Lyme has been known to cause other things so I don't want to take any chances... I just can't bring up the Lyme to the KP doc because they mocked me for it & basically refused to see me unless it was for something else. With my luck though, they'll see signs of Lyme, but decide I have MS, too. Oh what a crazy world we live in! (((BIG HUGS))) I'm F.I.N.E. Frustrated, Irritated, Nonfunctional & Everything hurts!! Sarcasm: Embrace it! ______________________ "Always hold your head up, but be careful to keep your nose at a friendly level" - Max L. Foreman ______________________ I know God will not give me anything I can't handle. I just wish he didn't trust me so much. - Mother Teresa ______________________ "There's always light at the end of every tunnel, just pray it's not a train! " ______________________ Faith makes things possible, not easy! |
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king2626
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So you are like me then, you have yet to test at least two bands pos? Do you ever wonder if FOR SURE you have it? Or is that just me |
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"MDJunction to me is a life saver... when i first was diagnosed with Scheuermann's Disease i wrote a message to a page i found on google, hoping that they could help me.... you'd never know it but that weird feeling (you know that one where it feels like someone actually cares) came over me when i opened my email next day to find that someone on the other side of the world (at the American Medical Library)had read my message while i was sleeping, and there low and behold was the address to MDJunction.... well it is everything to me, i live it breathe it and love it!!!!! I have found many people who are struggling with similar issues banding together to help each other. It is the best place in the world, and i couldn't think of another place to go to meet so many lovely people....
