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king2626
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Hi guys, so below is the antibotic program I have been given based off clinical findings. I am on this for 6 wks, see the LLMD again at that point we retest and take it from there. 3 x per day (2 in the am 1 in pm) Doxy 100 mg each 1 x per day 5 days per week Zitrhomax 600 mg 3 x per day 2 days back to back Flagyl 250mg She also suggested some herbs and acidopholis. Does the above sound pretty standard? Also, how long does it typically take for one to feel a "herx"? |
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jaime1978
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yes, it sounds pretty standard for the get go. doxy is usually the first line of defense, and 300mgs is a good dosage. zith is another great drug, and flagyl is pretty commonly used as well. Of course, given all the strains of this disease, there are so many drug choices out there, and people usually cycle thru them. I believe I've heard and read that you should stay on each combo for about 3 months to cover all growth cycles, before switching drugs. probiotics are a must with the antibiotics. systemic yeast is a big concern for lymies as it is, then add in the antibiotics, and you could have a recipe for disaster. you want to get a multi spectrum probiotic, usually a health food store carries them. I wouldn't just go with standard acidophilis. some good herbal supps are cats claw (samento), lauracidin, olive leaf extract, garlic, and if you have babs, artimisinin. Not sure what your doc suggested, but I'd follow thier advice, seems pretty standard to me. best of luck, jaime Please do not take anything I say as medical advice. I am not a doctor.
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fluffyluggage
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I'd be curious to know what herbs were recommended. Acidophilus is good, but I usually do better with a full-spectrum probiotic. If you can get a more comprehensive probiotic that includes acidophilus and other probiotics, you may do better with fighting the yeast. Other things that help fight yeast are oregano, garlic, and grapefruit seed. I've actually got a yeast defense natural remedy I take that seems to really be helping me, and I take it in addition to the probiotics... As for the ab's, it seems to be a fairly standard protocol, tho I'm a bit confused by the flagyl...Are you only taking 2 days of it, period? Or 2 days a week for 6 weeks? I'd also say be sure you are taking a really good multi-vitamin. As for the Herx, everyone differs. If you are going to experience it, it can occur within 24 to 72 hours of starting meds or increasing a dosage. That was definitely how it happened with me. Some people actually say it happens even faster! But if it doesn't happen right away, you may be feeling so bad that you only notice getting better, and then about 4 to 6 weeks later, you start to feel the cycle and you experience the Herx. No one can really tell you if you are going to experience that and how bad it's gonna be. Reactions vary from very mild to "OMG, I'm gonna die!" LOL... Good luck, hope it all works out well for you! *hugs* Keep us updated! Just because it's impossible doesn't mean it can't happen.
I'm not a doc, so anything I say is my opinion only. Nothing I say is meant as offense, I offer what I can as help.
I believe in educating myself on all my medical issues and being my own advocate, for no one else with do that on my behalf. I recommend we all do the same!
The definition of insanity is doing the same thing over and over again and expecting different results. Perhaps I truly am insane for expecting these docs to listen to me when I say the same things repeatedly to no avail? LOL. I am tired of seeking out new docs and getting the same result time and again...Forgive me if I seem bitter some days. |
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king2626
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Thanks for your input! So its not uncommon to be on AL of these meds at once? Goodness? When should I expect a "herx" I have felt a bit worse this am but I assume that could just be in my mind, doubt Iwould herx just 12 hrs after taking one doxy  |
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king2626
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Thanks fluffy we must have posted at the same time. She recommended Klair complete or jarrodophillus acidophilus. Also she recommended Artemesin herb--3 x per day. The flagyl is 2 times a wk two consect days for 6 wks. Sounds like I am going to be pumped up on meds and she said she is given me a lighter dosage due to my weight! |
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fluffyluggage
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Artemisinin kills one of the co-infections. I would definitely go about getting it. I am looking into getting it myself. As soon as money permits, it's next on my list. I am taking Olive leaf extract, Samento, and Lauricidin as my own protocol, and they are all very good at helping. I really believe in all 3 of them. OLE is a great supportive for the immune system, not necessarily a Lyme protocol, but great to be on just to support the immune system. As you may know, Samento and Lauricidin, tho, are alternative protocols. You may get some benefit, if you are interested. You can google info on them...Also, the second article that cmany just posted has info on both of them plus on artemisinin... You may want to research all 3 of those and see what you think, and/or talk to your LLMD. It may not be a bad idea to see about getting on some of this stuff and see what you can do. Obviously, you want to go really slow with any additions, and don't go crazy! LOL But any and all things you can do, hey, I'm all for it!  Good luck!! *hugs*Just because it's impossible doesn't mean it can't happen.
I'm not a doc, so anything I say is my opinion only. Nothing I say is meant as offense, I offer what I can as help.
I believe in educating myself on all my medical issues and being my own advocate, for no one else with do that on my behalf. I recommend we all do the same!
The definition of insanity is doing the same thing over and over again and expecting different results. Perhaps I truly am insane for expecting these docs to listen to me when I say the same things repeatedly to no avail? LOL. I am tired of seeking out new docs and getting the same result time and again...Forgive me if I seem bitter some days. |
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king2626
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Thanks for the info. I was thinking of just doing doxy this week, then adding the zithro and flagyl next week> Think its dumb to do that? WOudl you just pop them all at once per the drs suggestion or ease into it? I see alot of people on doxy only? |
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fluffyluggage
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Um, that's a toughie. I think if the doc recommended you start on all of it, I'd probably go ahead and do it all together. Oh, but one thing you should know about flagyl. NO ALCOHOLIC BEVERAGES!!!! It turns into formaldehyde in your stomach, and can be very bad for you (clearly!)...So, if they didn't tell you that already, just an fyi. If you have a reaction to all of them, then call the doc and see what she says, but I think I'd go ahead with all of it... But it's up to you. Whatever you do, do follow through with all of it for the full 6 weeks. And then follow up with you doc as recommended. Remember what Jaime said, that you have to be on a long-term protocol if you've been sick for a while, most likely several months at a time of each medication protocol before you'll know if it's working and before you will need to switch them off, I've heard up to 6 months on one protocol. But Jaime knows a lot more than I do! LOL  Just because it's impossible doesn't mean it can't happen.
I'm not a doc, so anything I say is my opinion only. Nothing I say is meant as offense, I offer what I can as help.
I believe in educating myself on all my medical issues and being my own advocate, for no one else with do that on my behalf. I recommend we all do the same!
The definition of insanity is doing the same thing over and over again and expecting different results. Perhaps I truly am insane for expecting these docs to listen to me when I say the same things repeatedly to no avail? LOL. I am tired of seeking out new docs and getting the same result time and again...Forgive me if I seem bitter some days. |
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king2626
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Yes, I was even told not to use mouthwash. No wine for me on NYE  She said that if it comes out in my labs with a definitive lyme, then she will prob have me on antibotics for 4 months. She said its likley my lyme is in my CNS (hence the twitching, buzzing, etc) and possibly brain. She said I should herx quickly due to this. I hope this makes me feel btr and that this is the answer to my ailment! Feel like I am slowly dying. |
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fluffyluggage
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Oh, hey! Wait a minute. There are some really good all-natural mouth-washes without alcohol! And it's really important to keep your mouth clean and to wash away the bacteria there. With this disease, one of the worst things we can do is allow bacteria to invade our bodies elsewhere. I think that's really irresponsible!! There are a number of alternative mouthwashes--go take a look in your health-food section of the grocery store and find something that's a better alternative to the regular mouthwashes. But don't let the bacteria in your mouth eat away at your organs in place of the Lyme!!! And please, please don't feel like you are slowly dying. Don't let that thinking come into play. I really feel like a positive attitude is one that will help in your treatment! Even if this particular protocol isn't the answer, there are soooooooooo many others. Just don't give up hope! *hugs* Just because it's impossible doesn't mean it can't happen.
I'm not a doc, so anything I say is my opinion only. Nothing I say is meant as offense, I offer what I can as help.
I believe in educating myself on all my medical issues and being my own advocate, for no one else with do that on my behalf. I recommend we all do the same!
The definition of insanity is doing the same thing over and over again and expecting different results. Perhaps I truly am insane for expecting these docs to listen to me when I say the same things repeatedly to no avail? LOL. I am tired of seeking out new docs and getting the same result time and again...Forgive me if I seem bitter some days. |
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